Sign up to save your podcasts
Or
Share Rare Care Podcast
Share to email
Share to Facebook
Share to X
Share to email
Share to Facebook
Share to X
Or
Rare Care Podcast
Rare Care Podcast episodes
- An Interview With Jenny Huang, Mother of SMA Patient and MIT Math Whiz Benjamin Lou
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jenny Huang, whose son, Benjamin Lou, is an award-winning math major at MIT who also has spinal muscular atrophy.
16 min - An Interview With Omer Abdul Hamid, MD, of Nemours Children's Hospital in Orlando, Florida
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Omer Abdul Hamid, MD, a neurologist at Nemours Children's Hospital in Orlando, Florida, on gene therapy's potential to treat Duchenne muscular dystrophy.
15 min - An Interview With Pamela Gavin, New CEO of the National Organization for Rare Disorders (NORD)
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Pamela Gavin, the newly appointed CEO of the National Organization for Rare Disorders (NORD).
15 min - An Interview With Patricia Weltin, Founder and CEO of Beyond The Diagnosis
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Patricia Weltin,founder and CEO of Beyond the Diagnosis—a nonprofit that uses art to raise public awareness of children with ultra-rare diseases.
18 min - An Interview With Sarah Glass, PhD, of the n-Lorem Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sarah Glass, PhD, chief operating officer of the n-Lorem Foundation—and the mother of a boy with an ultra-rare disease.
17 min - An Interview with Dimitrios Karussis, MD, PhD, on Stem Cell Therapy for Multiple Sclerosis
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Dimitrios Karussis, MD, PhD, who heads the Multiple Sclerosis Center at Israel's Hadassah University Hospital in Jerusalem.
15 min - An Interview With Mary Morlino, Patient Navigator at the Undiagnosed Diseases Network Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Morlino, who has sarcoidosis and is the patient navigator for the Undiagnosed Diseases Network Foundation.
12 min - An Interview WIth Tracy Sharp, a Patient With Lambert-Eaton Myasthenic Syndrome
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Tracy Sharp at the Muscular Dystrophy Association's 2024 Clinical & Scientific Conference in Orlando, Florida. Sharp, 70, has Lambert-Eaton myasthenic syndrome (LEMS), a very rare and debilitating neuromuscular disease.
14 min - An Interview With University of Pennsylvania Neurologist and CIDP Expert Chafic Karam, MD
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chafic Karam, MD, an expert on chronic inflammatory demyelinating polyneuropathy with the University of Pennsylvania's Perelman School of Medicine in Philadelphia.
8 min - An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Israeli expert Avner Reshef, MD, director of the Allergy, Immunology, and Angioedema Center at Barzilai University Medical Center in Ashkelon, only a few miles from the border with war-torn Gaza.
18 min
About Rare Care Podcast
From the publisher's feed
Rare Disease Advisor's Rare Care podcast features conversations with experts, healthcare providers, patients, caregivers, and advocates about treating and living with rare diseases.