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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.... more
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 158 episodes available.
June 03, 2024An Interview With Patricia Weltin, Founder and CEO of Beyond The Diagnosis Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Patricia Weltin,founder and CEO of Beyond the Diagnosis—a nonprofit that uses art to raise public awareness of children with ultra-rare diseases....more18minPlay
May 30, 2024An Interview With Sarah Glass, PhD, of the n-Lorem FoundationLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Sarah Glass, PhD, chief operating officer of the n-Lorem Foundation—and the mother of a boy with an ultra-rare disease....more17minPlay
May 28, 2024An Interview with Dimitrios Karussis, MD, PhD, on Stem Cell Therapy for Multiple Sclerosis Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Dimitrios Karussis, MD, PhD, who heads the Multiple Sclerosis Center at Israel's Hadassah University Hospital in Jerusalem....more15minPlay
May 16, 2024An Interview With Mary Morlino, Patient Navigator at the Undiagnosed Diseases Network Foundation Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Morlino, who has sarcoidosis and is the patient navigator for the Undiagnosed Diseases Network Foundation....more12minPlay
May 07, 2024An Interview WIth Tracy Sharp, a Patient With Lambert-Eaton Myasthenic Syndrome Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Tracy Sharp at the Muscular Dystrophy Association's 2024 Clinical & Scientific Conference in Orlando, Florida. Sharp, 70, has Lambert-Eaton myasthenic syndrome (LEMS), a very rare and debilitating neuromuscular disease....more14minPlay
May 03, 2024An Interview With University of Pennsylvania Neurologist and CIDP Expert Chafic Karam, MD Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chafic Karam, MD, an expert on chronic inflammatory demyelinating polyneuropathy with the University of Pennsylvania's Perelman School of Medicine in Philadelphia....more8minPlay
April 25, 2024An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Israeli expert Avner Reshef, MD, director of the Allergy, Immunology, and Angioedema Center at Barzilai University Medical Center in Ashkelon, only a few miles from the border with war-torn Gaza....more18minPlay
April 25, 2024An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Israeli expert Avner Reshef, MD, director of the Allergy, Immunology, and Angioedema Center at Barzilai University Medical Center in Ashkelon, only a few miles from the border with war-torn Gaza....more18minPlay
April 25, 2024An Interview With Pediatric Neurologist Edward Smith, MD, on the FDA Approval of Vamorolone for Boys With Duchenne Muscular Dystrophy Larry Luxner, senior correspondent for Rare Disease Advisor, interviews pediatric neurologist Edward Smith, MD, about the recent approval of vamorolone, a synthetic corticosteroid, in boys with Duchenne muscular dystrophy....more16minPlay
April 15, 2024An Interview With Sharon Hesterlee, PhD, Chief Research Officer at the Muscular Dystrophy Association Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sharon Hesterlee, PhD, chief research officer at the Muscular Dystrophy Association, about the recent proliferation of gene therapies and other treatments for neuromuscular diseases....more8minPlay
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 158 episodes available.