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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.... more
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 158 episodes available.
August 15, 2024An Interview With Dr. Jeffrey A. Cohen of the Cleveland Clinic on Cellular Therapies for MSLarry Luxner, senior correspondent for Rare Disease Advisor, interviews neurologist Jeffrey A. Cohen, MD, of Ohio's Cleveland Clinic on the latest developments in cellular therapies to treat multiple sclerosis....more11minPlay
August 05, 2024An Interview With Maureen Juip, Secretary of the Friedreich's Ataxia Research Alliance and Mother of 2 Children With FA Larry Luxner, senior correspondent for Rare Disease Advisor, interviews patient advocate Maureen Juip of Grosse Pointe, Michigan. Juip, newly appointed secretary of the Friedreich's Ataxia Research Alliance (FARA), is also the mother of 2 children with the rare neuromuscular disease....more9minPlay
August 01, 2024An Interview With Jacquelyn Bainbridge, DPharm, of the University of Colorado, on Cannabis Therapy for MS Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jacquelyn Bainbridge, DPharm, a neurology professor at the University of Colorado in Aurora, on the benefits of medical cannabis in treating multiple sclerosis....more13minPlay
July 25, 2024An Interview With Michelle C. Werner, CEO of Alltrna Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Michelle C. Werner, CEO of Alltrna, on nonsense mutations in Duchenne muscular dystrophy. She's also the mother of a boy with the disease....more15minPlay
July 17, 2024An Interview With Dr. Flavia Nelson of the University of Miami on Treatment Options for NMOSD Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Flavia Nelson, MD, director of the Multiple Sclerosis Center of Excellence at the University of Miami in Florida, on the difficulties of diagnosing neuromyelitis optica spectrum disorder....more14minPlay
July 11, 2024An Interview With Kevin M. Flanigan, MD, Director of the Center for Gene Therapy at Nationwide Children's Hospital in Columbus, Ohio Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kevin M. Flanigan, MD, director of the Center for Gene Therapy at the Abigail Wexner Research Institute of Nationwide Children's Hospital in Columbus, Ohio. The subject of our talk is exon skipping therapies for Duchenne muscular dystrophy....more11minPlay
July 01, 2024An Interview With Durresamin Khan, Pakistani Mother of a Boy With Duchenne Muscular Dystrophy Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Durresamin Khan, the Pakistani mother of a boy with Duchenne muscular dystrophy, about the difficulties of obtaining treatment for DMD patients who are ineligible for gene therapy....more9minPlay
June 27, 2024An Interview With Jenny Huang, Mother of SMA Patient and MIT Math Whiz Benjamin Lou Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jenny Huang, whose son, Benjamin Lou, is an award-winning math major at MIT who also has spinal muscular atrophy....more16minPlay
June 18, 2024An Interview With Omer Abdul Hamid, MD, of Nemours Children's Hospital in Orlando, FloridaLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Omer Abdul Hamid, MD, a neurologist at Nemours Children's Hospital in Orlando, Florida, on gene therapy's potential to treat Duchenne muscular dystrophy....more15minPlay
June 10, 2024An Interview With Pamela Gavin, New CEO of the National Organization for Rare Disorders (NORD) Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Pamela Gavin, the newly appointed CEO of the National Organization for Rare Disorders (NORD)....more15minPlay
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 158 episodes available.