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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.... more
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 173 episodes available.
May 08, 2025An Interview With Chris Lewis, Son of Famous Comedian Jerry LewisLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy....more14minPlay
April 30, 2025An Interview WIth Lisa Butler, CEO of the GBS-CIDP FoundationLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Butler, CEO of the GBS-CIDP Foundation, on what her organization is doing for patients with chronic inflammatory demyelinating polyneuropathy (CIDP)....more13minPlay
April 28, 2025An Interview With MDA Patient Advocate Donavon Decker, Winner of the 2025 MDA Legacy Award for Community Impact in ResearchLarry Luxner, senior correspondent for Rare Disease Advisor, talks to Donavon Decker, who has limb-girdle muscular dystrophy. Decker is the winner of the 2025 MDA Legacy Award for Community Impact in Research....more14minPlay
April 15, 2025An Interview With MDA 2025 National Ambassador Lily SanderLarry Luxner, senior correspondent for Rare Disease Advisor, interviews 17-year-old Lily Sander with Charcot-Marie-Tooth disease. The Muscular Dystrophy Association has named Sander its 2025 MDA Patient Ambassador....more15minPlay
April 11, 2025An Interview With Duchenne Expert Katherine Mathews, MD, of the University of IowaLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Katherine Mathews, MD, winner of the Muscular Dystrophy Association's 2025 Legacy Award for Achievement in Clinical Research for her contributions to understanding and treating genetic disorders affecting the neuromuscular system....more12minPlay
April 07, 2025An Interview With Generalized Pustular Psoriasis Expert Arash Mostaghimi, MDLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Arash Mostaghimi, MD, an associate professor of dermatology and a practicing physician at Boston's Brigham and Women's Hospital. Dr. Mostaghimi is a recognized expert on generalized pustular psoriasis (GPP)....more10minPlay
April 01, 2025An Interview With Clinical Hematologist and Professor Dr. Luke ChenRare Disease Advisor correspondent Tori Rodriguez interviews clinical hematologist and professor Luke Chen, MD, about IgG4-related disease and how it mimics various malignancies....more17minPlay
March 17, 2025An Interview With John Anderson, MD, Expert on Hereditary AngioedemaLarry Luxner, senior correspondent for Rare Disease Advisor, interviews John Anderson, MD, chief research officer at AllerVie Clinical Research, on the complexities of diagnosing and treating hereditary angioedema....more11minPlay
March 13, 2025An Interview With Retired NFL Athlete and Amyloidosis Patient Advocate Art StillLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Art Still, former defensive end for the Kansas City Chiefs and an NFL Hall of Famer who's now a patient advocate dedicated to raising awareness about amyloidosis....more18minPlay
March 06, 2025An Interview With Heather Landau, MD, on the Latest Therapies for AmyloidosisLarry Luxner, senior correspondent for Rare Disease Advisor, interviews oncologist-hematologist Heather Landau, MD, of Sloan Kettering Memorial Cancer Center in New York City, for National Amyloidosis Awareness Month....more18minPlay
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 173 episodes available.