Patrick and Amy are joined by three of the most prolific and committed rare disease podcasters out there: Effie Parks from Once Upon A Gene, Kyle Bryant from Two Disabled Dudes, and Bo Bigelow from Stronger Every Day. Those three titans behind the mic join us for a candid discussion about patient centricity, we touch on some recent news, FLOW’s Jessica Lauren Richmond is back with the latest installment of The Well.

 

Show Notes:

Subscribe to:

Once Upon a Gene

2DD

Stronger Everyday

 

Recent novel therapy news:

 

CSL Behring gene therapy makes comeback after hold for FDA priority review

 

BioMarin delays planned FDA filing for hemophilia gene therapy

 

FDA Grants Breakthrough Therapy Designation to BIVV001 for Hemophilia A Treatment

 

Presenting Sponsor: Takeda.

Visit bleedingdisorders.com to learn more.

 

The Bloodstream Podcast is brought to you in part by a new campaign from CSL Behring called Portraits of Progress. To learn more, check out www.PortraitsofProgress.com 

 

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