Rare Enough

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In this episode, Abraham Gonzales shares his journey through two unimaginable tragedies: losing his wife, Mari, to GBM and surviving the Robb Elementary School tragedy. His story is one of caregiving, heartbreak, and remarkable resilience.
Content warning: This episode includes discussion of grief, loss, and traumatic events that may be difficult for some listeners. Please listen with care.

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Rare Enough is a podcast powered by Head for the Cure, sharing real stories of resilience, hope, and community from those facing brain tumors and the people who walk beside them. Subscribe, listen, and share, because every story matters, and no one should face brain cancer alone.

Follow on Instagram @RareEnoughPodcast Learn more at BrainsfortheCure.org

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Renowned sportscaster Danny Parkins joins host DJ Stewart to share how his career behind the microphone has become a force for change far beyond sports. Danny reflects on his early days in broadcasting, the origins of his first radiothon that has since raised nearly $2 million for brain cancer research, and partnerships with the Chicago Cubs, Brain Up, and Head for the Cure that continue to honor his brother Brad’s legacy. With honesty and heart, he opens up about Brad’s mantra “Respect the Journey,” the humor that carried his family through difficult moments, the challenges of caregiving while raising his own young family, and the lasting lessons learned through grief. Full of inspiration, this episode highlights how love, resilience, and community create an enduring legacy in the face of glioblastoma.

Support the show

Rare Enough is a podcast powered by Head for the Cure, sharing real stories of resilience, hope, and community from those facing brain tumors and the people who walk beside them. Subscribe, listen, and share, because every story matters, and no one should face brain cancer alone.

Follow on Instagram @RareEnoughPodcast Learn more at BrainsfortheCure.org

Send a text

In this episode of the Rare Enough Podcast, host DJ Stewart sits down with Dr. Phillip “Jay” Storm, Chief of Neurosurgery at The Children’s Hospital of Philadelphia and a leader in pediatric brain tumor research. Together, they explore why pediatric brain tumors are not just “smaller versions” of adult tumors, the unique challenges they present, and the groundbreaking work of the Children’s Brain Tumor Network in advancing treatment through collaboration and data sharing. This conversation sheds light on the importance of innovation, teamwork, and hope in the fight against childhood brain cancer.

Support the show

Rare Enough is a podcast powered by Head for the Cure, sharing real stories of resilience, hope, and community from those facing brain tumors and the people who walk beside them. Subscribe, listen, and share, because every story matters, and no one should face brain cancer alone.

Follow on Instagram @RareEnoughPodcast Learn more at BrainsfortheCure.org

Send a text

Our newest episode of the Rare Enough Podcast features Kansas City’s beloved meteorologist, cancer survivor, and passionate advocate for the brain cancer community, Gary Lezak. In this inspiring conversation, Gary opens up about his personal cancer journey and how it led him to partner with Head for the Cure, helping raise awareness and hope for those impacted by brain cancer.

Support the show

Rare Enough is a podcast powered by Head for the Cure, sharing real stories of resilience, hope, and community from those facing brain tumors and the people who walk beside them. Subscribe, listen, and share, because every story matters, and no one should face brain cancer alone.

Follow on Instagram @RareEnoughPodcast Learn more at BrainsfortheCure.org

Send a text

In this episode, DJ talks with Unsha Bakker, a dedicated nurse navigator, about her vital role in guiding patients and caregivers through brain tumor diagnoses. She shares her journey into nursing, the barriers underserved communities face in accessing care, and the human side of nursing, emphasizing the importance of mental health support and self-care for both patients and providers.

Support the show

Rare Enough is a podcast powered by Head for the Cure, sharing real stories of resilience, hope, and community from those facing brain tumors and the people who walk beside them. Subscribe, listen, and share, because every story matters, and no one should face brain cancer alone.

Follow on Instagram @RareEnoughPodcast Learn more at BrainsfortheCure.org

Send a text

In this episode we’re joined by filmmaker Ryan Lovell to talk about how Rare Enough came to life. From the very first spark of an idea to the documentary that changed everything, Ryan shares the inspiration behind the stories and the people who shaped them. We also dive into the making of A Beautiful Brain, a powerful film honoring caregivers, grief, and the beauty found in resilience. Don’t miss this behind-the-scenes look at the stories that started it all.

Support the show

Rare Enough is a podcast powered by Head for the Cure, sharing real stories of resilience, hope, and community from those facing brain tumors and the people who walk beside them. Subscribe, listen, and share, because every story matters, and no one should face brain cancer alone.

Follow on Instagram @RareEnoughPodcast Learn more at BrainsfortheCure.org

Send a text

This episode we sit down with Dr. Akhavan, Physician Scientist at The University of Kansas Cancer Center, to dive deep into the promising world of CAR T-cell therapy. Dr. Akhavan breaks down how this innovative treatment is being applied in the brain cancer space, what patients and families need to understand about its potential and limitations, and why quality of life remains a critical part of the conversation. Whether you're newly navigating a diagnosis or seeking new hope in treatment options, this episode is packed with valuable insight, empathy, and education.

Support the show

Rare Enough is a podcast powered by Head for the Cure, sharing real stories of resilience, hope, and community from those facing brain tumors and the people who walk beside them. Subscribe, listen, and share, because every story matters, and no one should face brain cancer alone.

Follow on Instagram @RareEnoughPodcast Learn more at BrainsfortheCure.org

Send a text

In this episode, we sit down with Trishla to explore the world of neuro-oncology research. Trishla shares how meaningful moments shaped her passion for clinical trials and patient care. We discuss the challenges around access, the need for more research in brain cancer, and the options available to patients and families. 

Support the show

Rare Enough is a podcast powered by Head for the Cure, sharing real stories of resilience, hope, and community from those facing brain tumors and the people who walk beside them. Subscribe, listen, and share, because every story matters, and no one should face brain cancer alone.

Follow on Instagram @RareEnoughPodcast Learn more at BrainsfortheCure.org

Send a text

In episode 26 of the Rare Enough podcast, Drew Houts joins us to share his journey as a caregiver to his wife, Julie, during her fight with glioblastoma. Through the challenges they faced together, Drew discovered the gaps in support for patients and caregivers and turned that insight into action. He then helped lead the creation of Join Your Path to Hope (JPH), a personalized tool offering guidance and support for others navigating a brain cancer diagnosis. You won’t want to miss this heartfelt and empowering conversation.

Support the show

Rare Enough is a podcast powered by Head for the Cure, sharing real stories of resilience, hope, and community from those facing brain tumors and the people who walk beside them. Subscribe, listen, and share, because every story matters, and no one should face brain cancer alone.

Follow on Instagram @RareEnoughPodcast Learn more at BrainsfortheCure.org

Send a text

May is Brain Tumor Awareness Month, and in this episode, we share the story of Erin Gaffney, an incredible Oligodendroglioma fighter who gets real about her journey, including undergoing an awake craniotomy, navigating the weight of survivor’s guilt, and learning to give herself grace through it all. Listen along and be inspired by her strength and vulnerability.

Support the show

Rare Enough is a podcast powered by Head for the Cure, sharing real stories of resilience, hope, and community from those facing brain tumors and the people who walk beside them. Subscribe, listen, and share, because every story matters, and no one should face brain cancer alone.

Follow on Instagram @RareEnoughPodcast Learn more at BrainsfortheCure.org