Rare Enough

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In this episode, we have a heartfelt conversation with Luke Anderson, the son of Lori Stevens, who bravely fought but ultimately lost her battle with brain cancer.  Luke shares his personal journey and the creation of the Lori Project, an initiative dedicated to bringing awareness and support for navigating end-of-life care.  Join us as we learn how Luke's mission is making a difference for families facing similar challenges.  

Find information on the Lori Project here: www.theloriproject.com

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In this episode we introduce Brian and Emily Godawski- an inspiring duo who faced brain cancer with unwavering resilience.  Brian, a brain cancer survivor, and Emily, his devoted caregiver, overcame immense challenges by embracing "faith over fear."  Their shared story offers hope and inspiration, showcasing the power of love, strength, and unwavering belief in each other.  

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In honor of Childhood Brain Cancer Awareness Month, we introduce Kelly and Evie Fisher.  Kelly and Evie share the poignant and inspiring story of Allie, Kelly's daughter and Evie's little sister, who bravely battled brain cancer.  Through their journey, Kelly and Evie have shown remarkable strength and resilience, navigating their profound loss with courage.  They continue to honor Allie's legacy by advocating for increased awareness and support for families affected by childhood brain cancer.  

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Meet Simon Khagi, MD, Medical Director of Neuro-Oncology at Hoag Family Cancer Institute and a triple-board-certified oncologist.  He specializes in primary brain, spine, lung, and advanced skin cancers and has extensive experience with glioblastoma, astrocytoma, oligodendroglioma, meningioma, ependymoma, medulloblastoma, brain metastases, and rare brain tumors.  

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This is a special anniversary episode celebrating the first year of the Rare Enough Podcast!  For our fourteenth episode, we introduce Michael and Vanessa Hugo!  The Hugo's are a patient and caregiver dynamic duo that work day in and day out on advocating for others in the brain cancer community.  Learn all about their journey with glioblastoma and how they have never given up. 

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For this episode, we introduce Colin Gerner, the CEO and co-founder of StacheStrong, who is leading a dedicated fight against brain cancer. Under his leadership, StacheStrong has become a prominent force in raising awareness and funding for critical research, driven by a personal mission to transform lives and find a cure.  

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For Brain Tumor Awareness Month, we are highlighting not just one but three incredible brain cancer survivors! Our latest survivor episode features three extraordinary individuals: Blake Burke (Oligodendroglioma), Molly Marco (Astrocytoma), and Josiah Mihok (Glioblastoma), each with different tumors and different treatments. Listen along as they share their journey with brain cancer.

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Meet Frank Leonard, the President for Novocure Oncology. Frank leads the global business operations for a medical device company pioneering innovative treatment modalities for solid tumor cancers, including glioblastoma. Learn about Tumor Treating Fields and much more!

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In our tenth episode, we introduce Laura Dill,  full time caregiver to both of her parents who were diagnosed with the same incurable brain cancer only 14 days apart.  Listen along to see how she triumphantly turned her tragedy around to not only help herself, but to also help others facing a similar experience. 

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Meet Zach Round, a survivor and thriver who triumphed over brain cancer. In recounting his story, Zach reveals how he faced adversity head-on, while never allowing obstacles to stop him from living his best life.

“I have had to dig deep every day to keep moving forward and sharing my journey helps to let everyone know that you are not alone and that you have a purpose – show up for it.”

-Zach