Real Talk CDH

On this episode I talk with Kristin and Tom Polizzi, parents to CDH Angel Charlie and Founders of Charlie's Warrior of the Angels. You will laugh and you will cry but mostly you will be in awe of these to amazing people. They have endured unimaginable tragedy yet they still find ways to bless others all while honoring their warrior son and his battle against CDH.

On this episode I talk with Nicoletta, CDH mom and founder of Healthcare Redefined. As both a CDH mom and a board certified patient advocate Nicoletta understands the overwhelming feelings of this diagnosis coupled with an extensive NICU stay and care coordination between multiple specialists. She shares how her company could help you navigate this journey!

On this episode I chat with Dr Keijzer who is a pioneering researcher in the field of pediatric surgery and congenital anomalies, with a particular focus on congenital diaphragmatic hernia (CDH) and abnormal lung development.

His cutting-edge research delves into the mechanisms of normal and abnormal lung development due to CDH, with the ultimate goal of developing a prenatal therapeutic intervention to improve the outcomes for babies born with this condition.

Dr Keijzer shares his research and even answers the questions I know are bothering all CDH families when we first get diagnosed... Did I cause this? What could I have done differently?...

Join us as we hear from Jami, Shepherd's mama as she get's real about CDH, trach's and postpartum depression/anxiety. You will laugh, you will cry and you will be so glad you listened.

This episode is all about FETO. We hear from 3 moms who have asked the hard questions, done the research, had the procedure and are excited to share their journey with us all.

Continuing with our series on tough questions we are talking about the tough questions parents ask themselves when they are first told their child has CDH. These are questions that maybe you were too embarrassed or even ashamed to ask. Maybe you were thinking you were alone in asking them or maybe you just didn’t feel comfortable sharing these thoughts with anyone. Well we are here, 3 CDH mamas with 3 different perspectives and 3 very different journeys getting real with it all in the hopes you feel validated, encouraged and ultimately a little less alone as you navigate this journey!

On this episode we hear from Brianna Fullmer, mama to CDH Angel Reagan and founder of the Reagan Valeria Foundation. We smile, we cry and we laugh uncontrollably because though this is a story about loss it is first and foremost a story about hope.

In this episode I talk with Savannah Lopez Sotomayor about her beautiful angel baby William Joe. I laughed and I cried, sometimes at the same time as Savannah shared her loss journey. She gets real with her feelings, sharing openly about what helped her process Williams passing and what did not. She also shares the phenomenal ways she has found to keep his memory alive. You won't want to miss this!

Listen to CDH mama Sasha White share her journey with her son, CDH survivor Luka. Sasha shares her story from diagnosis, to wrestling with hospital choice and transfer.

Today we are talking with Shannon Connor, mama to CDH angel Molly. Shannon shares her journey with grief, the amazing friendships she has found along the way and the new venture she has taken on in honor of her CDH warrior.