Join us as we chat with Taylor Steffensmeier, CDH survivor and mama of 2. Taylor will share her story of undiagnosed LCDH, ECMO, multiple re-herniations and much more.

On this episode we speak to Ashton Roach a Clinical Mental Health Counselor who has a passion for helping those experiencing grief, life crisis, and somatic (body) symptoms related to trauma. Loss is a part of life that everyone experiences, let's talk about it and remove the stigma surrounding loss and grief.

Resources

Books:

"The Grieving Brain." - Mary-Frances O'Connor, PhD

"Bearing the Unbearable." - Joanne Cacciatore, PhD

"The Wild Edge of Sorry." - Francis Weller

"Finding Meaning: The Sixth Stage of Grief." - David Kessler

"How to Carry What Can't be Fixed." - Megan Devne

Websites:

www.whatsyourgrief.com

Instagram Account:

GroundedGrief

With Thanksgiving upon us it seems fitting to discuss an issue often faced by children with CDH, eating/feeding difficulty. Join us as we hear from feeding therapist Karen Dilfer MS, OTR/L, C/NDT. Karen discusses the "get permission" approach to feeding therapy and offers helpful tips for parents as they seek new ways to encourage their tube fed children to eat.

The resources discussed by Karen can be found here:

https://drive.google.com/drive/folders/1U-7JMRbImJtl0Z6Ro9-HPMVTHLiI_y1C?usp=drive_link

Join us as we talk to 3 moms who have lost children to CDH. They get real with their grief and answer the tough questions surrounding loss.