Remarkable: Life with Rett Syndrome

Remarkable: Life with Rett Syndrome

By Tracey Hoyng

A podcast about the families all over the world who love someone with Rett Syndrome.
"One day you will tell your story of how you've overcome what you're going through now, and it will become part o... more
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Best of Remarkable: Life with Rett Syndrome

The most played episodes among Podcast App listeners.

  1. Number 1: Cora Foster & Olivia and Charlotte (USA) – Twinning with Rett Syndrome

    Cora's 4 year old twins Charlie and Olivia both have Rett Syndrome. Cora keeps an amazing account of their Rett Syndrome journey on their Instagram and it was great to sit down and have a talk about how Rett effects both girls. We also talked a bit about mental health and mindset, and how the girls are with their new baby sister Madeline. To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast. GET IN TOUCH! Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. FACEBOOK https://www.facebook.com/remarkablepodcast INSTAGRAM https://www.instagram.com/remarkablepodcast Thanks so much for listening, Tracey teamjovie.com

    52min
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  2. Number 2: Jo Huxley & Megan (AUS) – Life With A Late Diagnosis

    Jo's Rett Syndrome story is a little different to what we're typically used to hearing - her daughter Megan is currently 15 and wasn't diagnosed until she was 12, just 3 years ago. We had a great talk about how a later diagnosis of Rett Syndrome has effected them, and how Megan is doing today. To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast. GET IN TOUCH! Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. FACEBOOK https://www.facebook.com/remarkablepodcast INSTAGRAM https://www.instagram.com/remarkablepodcast Thanks so much for listening, Tracey teamjovie.com

    1h 3min
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  3. Number 3: Justine Aubuchon & William (USA) – Warrior William

    Justine's 2 year old son William has Rett Syndrome - yes boys can have Rett Syndrome too! It was such a great opportunity to sit down with Justine and talk about her William, how Rett Syndrome has effected him and how they have dealt with getting such a rare diagnosis. To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast. GET IN TOUCH! Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. FACEBOOK https://www.facebook.com/remarkablepodcast INSTAGRAM https://www.instagram.com/remarkablepodcast Thanks so much for listening, Tracey teamjovie.com

    24min
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  4. Number 4: Mel Lancaster & Katelin (USA) – Trails to a Texas Trial and beyond (Part 2)

    Part 2 of my chat with Mel for the Remarkable podcast. Again, we had such a great time chatting about everything they've experienced with Rett Syndrome. I didn't know much about clinical trials for Rett Syndrome beforehand, so I'm so glad to have spent the time with Mel and soak in the knowledge she has. Please remember to check out her blog for more info about their lives with Rett, and check out some of the links below if you're interested in the clinical trials available where you are. To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast. GET IN TOUCH! Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. FACEBOOK https://www.facebook.com/remarkablepodcast INSTAGRAM https://www.instagram.com/remarkablepodcast Thanks so much for listening, Tracey teamjovie.com

    33min
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  5. Number 5: Mel Lancaster & Katelin (USA) – Trails to a Texas Trial and beyond (Part 1)

    Mel's daughter Katelin is 26 and living with Rett Syndrome. It was such an honour to sit down with Mel not only once, but twice, for the podcast. I openly admit that I have alot of learning to do, so talking with Mel was such a great learning experience for me. We talk about a range of things - from her writing, to Atypical Rett Syndrome, to the clinical trials they were involved in. Mel's blog Trail to a Texas Trial is an amazing recount of everything they've experienced with Rett Syndrome and with the Trofinetide trial. This is Part 1 of our chat! To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast. GET IN TOUCH! Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. FACEBOOK https://www.facebook.com/remarkablepodcast INSTAGRAM https://www.instagram.com/remarkablepodcast Thanks so much for listening, Tracey teamjovie.com

    52min
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Remarkable: Life with Rett Syndrome episodes:

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How many episodes does Remarkable: Life with Rett Syndrome have?

The podcast currently has 13 episodes available.