Remember Me

Let's welcome Katie Brandt back to Remember Me to speak on a very important topic - Advanced Care Planning. 

Sounds scary, huh? Rest assured that Katie breaks it down in a digestable, reassuring way. You'll want to take notes on this one, you guys! Katie, Thank you for making the dark a little brighter and advocating for the importance of this process. We absolutely adore you!

Today Katie Referenced:

-----

Connect with us on instagram @remembermepodcast and let us know what you think of today's episode. If you want to learn more about Katie, please visit her website here.

---

Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.

---

For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com

"Always, always, accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

We're wheels up and on our way! Listen to learn more about our plans for the International Society for Frontotemporal Dementias (ISFTD) Conference in Lille, France!

Connect with us on instagram @remembermepodcast and let us know what you want to learn about our time at ISFTD!

---

Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.

---

For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com

Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france

"Always, always, accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

This week's story comes to us all the way from the U.K. Kit shares her journey with her mother Gloria's Behavioral Variant FTD. 

Kit's way of articulating this journey had us feeling moved and inspired... and her reading at the end may be our favorite one yet. 

Connect with us on instagram @remembermepodcast and let us know what you thought of today's episode.

---

Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.

---

For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com

Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france

"Always, always, accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Today we are joined by Mike, who shares his family history of FTD.  Mike was a young boy in grammar school when his father started to change. He shares how he saw it impact his whole family... and all the while not knowing it was even FTD. 

Mike then opens up about another family member sadly recently diagnosed with this disease. And we think Mike's openness about the FTD experience - how he copes - what his fears are - to just to be something really powerful. Thank you Mike, for sharing your story with us.  

Connect with us on instagram @remembermepodcast and let us know what you thought of today's episode.

---

Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.

---

For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com

Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france

"Always, always, accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Today we are joined by Dr. Erica Srinivasan to talk all about our "favorite" topic... grief.  

Anticipatory grief, ambiguous loss, coping strategies, and more... and of course we focus in on the unique grief experience that is the FTD Journey. 

 Dr. Erica G. Srinivasan is an Associate Professor of Psychology at the University of Wisconsin—La Crosse, where she also serves as the Director for the Center for Grief and Death Education, and is Co-Chair for the Gerontology Emphasis. Additionally, she is the lead instructor in the University of Wisconsin—Madison’s Grief Support Specialist Certificate Program. She conducts research on grief and dementia, aid-in-dying and loss and coping with COVID-19. She has a passion for normalizing conversations about death and grief, which serves as a foundation for all of her professional work. 

Connect with us on instagram @remembermepodcast and let us know what you thought of today's episode.

---

Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.

---

For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com

Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france

"Always, always, accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Maria's friend Evan joins the girls this week to share the story of his mother Diomi's journey with Primary Progressive Aphasia.  

This is our first ever Mother/Son story on Remember Me... and Evan is the perfect storyteller. Throughout this episode you will feel like you're in the room with Evan and his family as he so beautifully captures the experience and the boundless love his mother showed for him -- even throughout her disease.  

Oh, and Maria thoroughly enjoys having a story that centers around a Greek family... no surprise! 

Connect with us on instagram @remembermepodcast and let us know what you thought of today's episode.

---

Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.

---

For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com

Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france

"Always, always, accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

It's World FTD Awareness week and we are honored to present an interview with talented model and incredible advocate, Nicole Petrie. 

We are in awe of this young and fierce advocate who's daily videos of her mother Cheryl captured the hearts of 1 Million TikTok followers - helping to shed a light on FTD and the caregiving experience. Nicole's advocacy continued this summer as she was a featured model in Sports Illustrated, sharing her cause of FTD awareness in honor of her mom. 

In today's episode we get to learn more about Nicole's journey with her mother Cheryl's behavioral variant FTD diagnosis, and most importantly learn more about who Cheryl really is -- an incredible "super mom" to her 3 daughters. You can learn more about Nicole on Instagram and TikTok @nicolepetrie 

Connect with us on instagram @remembermepodcast and let us know what you thought of today's episode.

---

Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.

---

For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com

Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france

"Always, always, accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Rachael tells the story of her father Frank's journey with Behavioral Variant FTD from a fresh new perspective... 2 years after our first episode of Remember Me.

Connect with us on instagram @remembermepodcast and let us know what you thought of today's episode.

---

Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.

---

For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com

Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france

"Always, always, accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

It's our last episode of our dementia research mini-series! And as a follow up to our recap of Day 4, we interviewed Dr. Adam Boxer to learn more about fluid biomarkers - AKA - we ask him all about what the bloodwork and lumbar puncture is used for.

Stay tuned for a very special ending of our 8-part series. Thank you for coming on the journey with us and please let us know what you think of this series by reaching out to us on our website! www.remembermeftd.com

Adam L. Boxer, MD, PhD, is Endowed Professor in Memory and Aging in the Department of Neurology at the University of California, San Francisco (UCSF). He directs UCSF’s Neurosciences Clinical Research Unit and the Alzheimer’s Disease and Frontotemporal Degeneration (FTD) Clinical Trials Program at the UCSF Memory and Aging Center. Dr. Boxer’s research is focused on developing new treatments and biomarkers for neurodegenerative diseases, particularly those involving tau and TDP-43.

Dr. Boxer received his medical and doctorate degrees as part of the NIH-funded Medical Scientist Training Program at New York University Medical Center. He completed an internship in Internal Medicine at California Pacific Medical Center, a residency in Neurology at Stanford University Medical Center, followed by a fellowship in behavioral neurology at UCSF.

We loved Dr. Boxer! Enjoy the science side of our experience, you guys!

--

Special thank you to the ALLFTD Study for their support in the creation of this series. You can support Remember Me by visiting our website www.remembermeftd.com where you can shop our merch, join re-members only or donate. You can follow us on instagram @remembermepodcast.

----

Today's sponsor is The Bluefield Project: The Bluefield Project to Cure FTD, is on a mission to support research to improve our understanding of a genetic form of Frontotemporal dementia, and to help find a cure for this devastating disease. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org

----

Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

IT'S OUR LAST DAY OF RESEARCH! WE DID IT!

As you know at this point in the mini-series -- we participated in the ALLFTD Study -- Rachael as the participant, and Maria as the study partner... and today's episode recaps our Day 4: The Lumbar Puncture. 

A long day, but we had a lot of laughs, bonding moments... and some disco music. Everything is an adventure with us, so be sure to listen! Want to learn more about ALLFTD? Visit allftd.org Be sure to connect with us on instagram @remembermepodcast to let us know what you think of today's episode!

------ Special Thanks To Our Sponsor: The Bluefield Project 

The Bluefield Project to Cure FTD is on a mission to support research to improve our understanding of a genetic form of Frontotemporal Dementia, and to help find a cure for this devastating disease. There are now four investigational therapies in clinical trials for progranulin-FTD. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org 

---- To learn more about Remember Me, visit remembermeftd.com

#dementiaresearch

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!