Remember Me

We are so thrilled to be back behind the mic for SEASON 8! (I know!! Crazy, right??). We launch this innovative season, where we match the stories to the science, with our new pal – Dr. David Irwin. Dr. Irwin gives us a broad overview of what FTD is and what is generally seen after a diagnosis. Dr. Irwin does a fantastic job explaining what is happening in the brain, where it’s happening and why it’s happening. What more could we ask for? 

We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories. 

Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.

The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

The tale has finally been told. Tune in to hear all the ins and outs of Remember Me's first tour...

and we hope this light bonus episode helps get you through the holiday week. Take care, friends. xx, R+M

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Special thank you to our sponsor, Make Time Wellness! Remember Me listeners get 20% off all products with promo code REMEMBER ME.

Shop here: https://maketimewellness.com/

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For more Remember Me content in between seasons, join us over at instagram @remembermepodcast, join us in Re-Members Only, or checkout our website www.remembermeftd.com

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

To honor Frank on the 3rd anniversary of his passing, we are re-releasing our very first episode... and with a little intro / checkin from your favorite duo.

Stay tuned for a BRAND NEW bonus episode next week... and for all things RM, visit our website remembermeftd.com or our instagram @remembermepodcast... and if you're in need of extra podcasts, we have 40+ bonus exclusive episodes available on Re-Members Only. Re-Members Only helps fuel our business and gives you more of the content you love: remembermeftfd.com/joinro

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

SURPRISE! We miss you all + we're here to fill you in on our upcoming adventure. We hope you enjoy this BONUS episode!

LEARN MORE ABOUT THE TOUR FOR FTD WORLD AWARENESS WEEK: www.remembermeftd.com/tourof3cities

Connect with us on IG: @remembermepodcast

Learn more about Re-Members Only here.

Sign up for our Newsletter here.

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

We close out season 7 with an update on FTD research from world renown neurologist Dr. Bradley Boeve.

Dr. Boeve shares the importance advocacy and awareness in pushing research forward, and what he is hopeful is on the horizon for our community.

If you've enjoyed this season, please connect with us on instagram @remembermepodcast, on our website.

If you miss us in between seasons, consider supporting our podcast by joining ⁠Re-Members Only⁠. There are currently over 30 bonus episodes, events and more.

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Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD.

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⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

"Always, always, accept the good."

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Rachael asks herself the question, "Do I want to know my genetic status?"

Make sure you listen til the end for a very special clip... and tune in next week for our season finale with Dr. Brad Boeve.

Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining ⁠Re-Members Only⁠!

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Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD.

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⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

"Always, always, accept the good."

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

A physician shares his family's journey with FTD clinical trials.

There are so many things to think about when getting involved in research and/or enrolling in a clinical trial, and this listener wanted to share his insight and learnings in case it could help other families navigate this journey.

We are so thankful for his insight and his hope... and salute him for caring for so many members of his family with so much grace and positivity.

Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining ⁠Re-Members Only⁠!

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Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD.

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⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

"Always, always, accept the good."

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Our friend Lauren from across the pond joins us to share her mother Lesley's journey with FTD.

Lauren takes us through the search for answers as to her mother's change in behavior - and the parts of her mothers life that made it hard to decipher what the culprit was.

She also dives into her journey with genetic testing and the things she thinks about as she awaits her mother's results.

Above all, Lauren beautifully illustrates her mother's profound love for her kids and grandkids -- and its clear to see THAT was the most important thing to Lesley.

Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining ⁠Re-Members Only⁠!

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Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD.

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⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

"Always, always, accept the good."

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Linde returns this week to dive into her journey with genetic testing following her mother Allison's passing.

This may be one of the most raw conversations we've ever had on Remember Me. Thank you, Linde for being so vulnerable and honest. This episode is inspiring on so many levels -- and stay tuned for a very special letter at the end.

UPDATE! Linde Jacobs was recently featured in the New York Times - you can read her article ⁠here⁠.

Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining ⁠Re-Members Only⁠!

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Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD.

---

⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

"Always, always, accept the good."____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

And we're back with our 100th episode (!) of Remember Me with fierce FTD advocate and friend of the podcast, Linde Jacobs.

Linde bravely shares her mother Allison's journey with FTD. Linde covers it all -- the 7 year struggle to get a diagnosis and the 'treacherous' search for resources and support. But above all, Linde shares her love for her mom, and her determination to care for her in the best way she could.

Stay tuned for next week's episode where Linde dives into more of her journey with genetic testing in "Allison, Pt. 2".

Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining ⁠Re-Members Only⁠!

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Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD.

---

⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

"Always, always, accept the good."

UPDATE! Linde Jacobs was recently featured in the New York Times - you can read her article here.____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!