Remember Me

Victoria openly shares the brutality of anticipatory grief, the unending love she has for her mama and the ways she got to know herself in the darkness. We were blown away.

Please share this episode with someone you think needs to hear it.

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All things Remember Me Community + Advocacy: ⁠⁠www.remembermeftd.com⁠⁠ | ⁠⁠@remembermepodcast⁠⁠

Holding Space Course Begins 10/7: Register ⁠⁠here⁠⁠.

Check out our friends at ⁠⁠Wake Up Maggie Film⁠⁠.

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Our first episode of the season belongs to our new pal Scott.

Through an open letter to his grief and the most beautiful love for his Dad, Scott openly recounts the experience of his father Steve's FTD journey - and his magnificent ability to explain what grief feels like will leave you speechless.

We hope that Season 9 helps you feel less alone. Spread the word + share this episode with a friend for World FTD Awareness Week.

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All things Remember Me Community + Advocacy: ⁠www.remembermeftd.com⁠ | ⁠@remembermepodcast⁠

Holding Space Course Begins 10/7: Register ⁠here⁠.

Check out our friends at ⁠Wake Up Maggie Film⁠.

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

See what's in store for Remember Me Season 9...

Follow us on Instagram for the latest RM news @remembermepodcast or visit us at www.remembermeftd.com

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

We wrap up our special summer series with a heartfelt conversation on both our time on the road and our time as caregivers.

Thank you to HFC for this special opportunity + for supporting our work at Remember Me.

Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠.

And don't forget to follow us ⁠⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠⁠@wearehfc⁠⁠⁠⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more.

For all things RM: ⁠⁠⁠www.remembermeftd.com

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

We stopped at the ICONIC Amoeba Music... and we had the most tender conversation on music and grief with Co-Owner Karen Pearson. We loved hearing about her beloved Ilene. We could have talked for hours.

We hope this episode finds the people who need to hear it so please share!

And don't forget to follow us ⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠ and ⁠⁠⁠⁠@wearehfc⁠⁠⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more.

Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠⁠⁠here⁠⁠⁠⁠. Thank you to HFC for supporting our work!

For all things RM: ⁠⁠www.remembermeftd.com

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

A very special sit-down interview with Lauren Miller Rogen, actress, screenwriter, director AND co-founder of ⁠⁠HFC⁠⁠ alongside her husband Seth.

This is a raw + honest conversation between 3 daughters of dementia about the decision to donate their parents brain's to research.

We hope this episode finds the people who need to hear it so please share + DON'T FORGET to follow us ⁠⁠@remembermepodcast⁠⁠ and ⁠⁠@wearehfc⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more.

Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠here⁠⁠. Thank you to HFC for supporting our work!

For all things RM: www.remembermeftd.com

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Surprise! Here to share all about being on the road with ⁠HFC⁠ AKA Hilarity for Charity.

Have no idea what we're talking about? Take a seat. From touching brains at UCI Mind to jamming out at Ameoba music to chatting up strangers on Hollywood Boulevard with Bruno the BRAIN PUPPET... we had ourselves an adventure. Buckle up for some fun + stay tuned for some more bonus episodes from our trip. BUT DON'T FORGET to follow us ⁠@remembermepodcast⁠ and ⁠@wearehfc⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more.

Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠here⁠. Thank you to HFC for supporting our work!

For all things RM: www.remembermeftd.com

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is #2 of the TWO bonus episodes we produced for Season 8!

In this episode we tackle the different types of research with Dr. Irwin and Dr. Massimo, the Co-Directors of the Penn FTD Center.

Some of the questions we ask:

-What are the different types of research? Pharmacological vs. not?

-How does brain donation support research?

-How do we make research more accessible?

Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info!

Check out the companion blog post for this episode which can be read ⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠ full of more resources and info.

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We want to send big love to the entire ⁠⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠⁠.

To sign up for our e-mail visit our website ⁠⁠⁠⁠⁠remembermeftd.com⁠⁠⁠⁠⁠.

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is one of TWO bonus episodes we produced for Season 8!

In this episode we tackle Clinical Trials with our friend Dahlia Kamel, MS - Clinical Trials Lead at the Penn FTD Center.

Some of the questions we ask:

-What is a clinical trial?

-What do the different phases mean?

-What are the considerations for families? Benefit vs. Burden

Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info!

Check out the companion blog post for this episode which can be read ⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠ full of more resources and info.

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We want to send big love to the entire ⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠.

Want to support the podcast? Want more content + connection? ⁠Join us on Patreon in Re-Members Only⁠.

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

In conclusion...it's our season finale... and we're wrapping up this series with our own little bow. Make sure to listen til the very end.

And stay in touch, follow us on IG, and keep up to date on all things RM. You never know when you may get an encore *cough* bonus *cough* episode or two...

Thank you all for your support and love. Sincerely, R+M

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We want to thank the entire ⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠ for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories. 

For more support, resources, events, and all things RM, check out our website www.remembermeftd.com

Thank you for supporting our work and for supporting the FTD community. 

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!