Remember Me

Anticipatory Grief, Complicated Grief, Disenfranchised Grief... we cover it all + Rachael's explanation for her fascination with grief and all things *bittersweet*

We're nearing the end of season 9! Thank you for all of your support this season + beyond! Please don't forget to check out our Patreon for bonus episodes + more! And follow us on Instagram.

Please check out the amazing sponsors mentioned in this episode:

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

In Part 2 of this powerful story we discuss Kayla's coming back to her mom in the final year's of Diana's life. Kayla tells us all about her grief journey and her hopes for her future.

Please check out the amazing sponsors mentioned in this episode:

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Here is part one of an episode we weren't sure what to title - and after you listen, we think you'll understand why.

Kayla recounts and her 20 year experience witnessing her mom Diana's dramatic FTD journey -- starting from when she was just 8 years old. This is such an important episode and we hope it gets to the people who need to hear it. Stay tuned for part 2 dropping later this week. Thank you, Kayla for sharing your story.

*Trigger warning: This episode discusses physical and verbal abuse.

Please check out the amazing sponsors mentioned in this episode:

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠PATREON⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Today's episode is told by Liz, who was 12 years old when her father passed away from FTD-ALS. Her perspective was both fascinating and inspiring and we felt so honored to hold space for her and her dad, David. We hope this episode of love and resilience helps carry you through Thanksgiving week. Take good care.

Please send this episode to someone you think needs to hear it.

Please check out the amazing sponsors mentioned in this episode:

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Today's episode is the first one this season told from the spouses perspective... and Allyson is such a special spouse to her husband Evan. From misdiagnosis of adult onset ADHD to the final diagnosis of FTD was a long, long journey. But Allyson's love for Evan shines throughout. This is a very special episode that is so raw and honest about the awfulness of this disease..but also such a beautiful example of love and commitment.

We hope this episode finds someone who needs to hear it!

Please check out the amazing sponsors mentioned in this episode:

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠PATREON⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Ready to dive into all the feels? This may be our favorite convo on grief to date. In today's episode Aisha tells us about her mother's journey with FTD - and because we know Aisha, we felt like we were able to dive deep into all the things we wish people knew about our grief journeys. Thank you Aisha for sharing your story with us!

We hope this episode reaches someone who needs to hear it, so please share with a friend!

Please check out the amazing sponsors mentioned in this episode:

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Long-time listener and "Re-member" Liz, shares her father Eugene's journey with FTD. A year plus since his passing, Liz shares her experience with grief, how it manifests for her - and how she keeps herself tethered to the memory of who he was before FTD.

We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today.

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All things Remember Me FTD Community + Advocacy: ⁠⁠⁠⁠www.remembermeftd.com⁠⁠⁠⁠ | ⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠

Ways to support our podcast: follow us on Instagram | leave an apple review | join our ⁠⁠Re-Members Only group⁠⁠ or contact us about ⁠⁠partnerships⁠⁠.

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

This week we have an amazing expert guest - Katie Duncan - a former Hospice Nurse turned End of Life Coach who answers all of our (mostly Rachael’s) burning questions about the dying process.

We cover so much - from the death rattle to the death “rally” - thoughts on morphine and more. All in an effort to normalize the conversations on end of life and hopefully help people feel they are not alone on this journey.

A very special thank you to Katie for lending her expertise for our community. You can find all of Katie’s amazing resources here:

⁠https://www.deathcarecoach.com⁠

Her Instagram: ⁠https://www.instagram.com/death.care.coach⁠⁠

Her TikTok: https://www.tiktok.com/@death.care.coach

Her Book: https://www.amazon.com/dp/B09GTJRQPH

Please share this episode with someone you think may need to hear it! And for all things remember me, check out ⁠www.remembermeftd.com⁠ or follow us on IG ⁠@remembermepodcast⁠

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Today's story is about a woman who was very aware of her disease and the fact that she was changing. Told from her daughter Kyra's perspective, Debbie's episode dives into the many unique layers of grief that come with Frontotemporal Dementia. A special thank you to Kyra for so delicately expressing the end of life experience in an effort to help others.

We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today.

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All things Remember Me FTD Community + Advocacy: ⁠⁠⁠www.remembermeftd.com⁠⁠⁠ | ⁠⁠⁠@remembermepodcast⁠⁠⁠

Ways to support our podcast: follow us on Instagram | leave an apple review | join our ⁠Re-Members Only group⁠ or contact us about ⁠partnerships⁠.

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Today's story is shared with the perspective of 20 years in the rear view mirror.

Cindy joins us to tell the story of her father Jerry's journey with early onset Alzheimers, which he was diagnosed with in the late 80s. With many years of reflection, Cindy shares her perspectives on her grief journey and her relationship with her sweet Dad. Cindy recently authored a book with reknown FTD expert Dr. Bruce Miller called Finding the Right Words, which chronicals her father's disease but also focuses on remembering Jerry for who he was before the diesase (you know we love that!).

We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today.

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All things Remember Me FTD Community + Advocacy: ⁠⁠www.remembermeftd.com⁠⁠ | ⁠⁠@remembermepodcast⁠⁠

Ways to support our podcast: follow us on Instagram | leave an apple review | join our Re-Members Only group or contact us about partnerships.

Speaking of... Check out our friends at ⁠⁠Wake Up Maggie Film⁠⁠.

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!