Remember Me

This story, told by Shay, beautifully outlines the devastation FTD (or Pick's disease, as she refers to it) causes. Shay was in elementary school when her sweet mom, Mrs. Hast began to exhibit symptoms. The journey is full of tenderness and pain and Shay so eloquently describes the dance between the two.

After you listen, let us know what you think by commenting on the episode art on instagram @remembermepodcast

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**Please be advised that some of this content may be triggering to some as it discusses the following: Self-harm, Abuse, Suicidal ideation

If you are struggling - help is available. Speak with someone today at the National Suicide Prevention Lifeline | Available 24 hours | 800-273-8255

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Learn more about remember me at www.remembermeftd.com/ 

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Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Welcome Back, Happy New Year + OMG, YOU GUYS, it's SEASON 4!!

Listen now to learn a big theme of the season... in this episode we set the scene for what's in store. xx, R+M

After you listen, let us know what you think by commenting on the episode art on instagram @remembermepodcast

--- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro

--- Learn more about remember me at www.remembermeftd.com/ ---

Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

In our Season 3 finale, we finally hear the story of the couple behind the Remember Me cover art. 

Maria's father Gary shares his perspective of Lia's journey with FTD-ALS... and their beautiful life and love story. 

Gary shares his experience as a full-time caregiver, how he maximized his time with Lia with his "best summa eva"... and how he is now coping with life after losing Lia.

This is one for the books. Rachael takes the drivers seat as Maria cries on mute... you're going to want a few boxes of tissues for this one - and make sure you listen to the very end... 

xxR+M

We'll be back Jan 11th! Not sure what you're going to do without Remember Me for two months? Sign up for Re-Members Only! You get 2 exclusive podcasts a month, access to our community zoom events, grief content, dementia tips and more. Learn More Here: www.remembermeftd.com/joinro

We are currently booking interviews for Season 4, so please submit your applications before we fill up! www.remembermeftd.com/tellyourstory

Today's Sponsors:

--- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro

--- Learn more about remember me at www.remembermeftd.com/ ---

Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Our much anticipated interview with singer-songwriter, and wonderful human being, Parker McKay.

Parker won over the hearts of many this fall as a contestant on NBC's The Voice, where she was chosen to be a member of Kelly Clarkson's team. Parker revealed on the show that weeks before leaving for taping, her mother Tracey had died from complications of Frontotemporal Dementia (FTD) at age 57. 

We feel so fortunate that Parker wanted to join us to tell more of her story - and share more about who her mother Tracey was before FTD. 

Parker is just as she appears on TV - kind, charming, genuine… and her love for her mother Tracey beautifully shines through in this episode. We can't wait to have our new BFF Parker back in the future as we know she is going to continue to be an amazing advocate for this disease. We love you, Parker! -xxR+M

Let us know what you think by commenting on the episode art on instagram. @remembermepodcast 

We are currently booking interviews for Season 4, so please submit your applications before we fill up! www.remembermeftd.com/tellyourstory

Today's Sponsors:

--- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro

--- Learn more about remember me at www.remembermeftd.com/ ---

Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

This week, we chat with Shari about her mother's relatively new diagnosis of Primary Progressive Aphasia and Vascular Dementia. 

Shari is SO open about her feelings during this journey - the frustration, the guilt, and the grief...and ugh, we love it when people are just so vulnerable and honest... because we know it helps all of you (and it helps us too!). One of the biggest things we took away from this interview was Shari's amazing ability to just let her mom be. Dementia can make people have odd behaviors and it's very easy to want to correct them or get embarrassed - but Shari just seems to meet Linda where she's at and accept her and go with the flow. It's beautiful and inspiring!

At the end of the episode we learn all about fiercely independent, talented artist, Linda. Thank you to Shari for sharing her with us. We hope you enjoy the episode and please let us know what you think by commenting on the episode art on instagram. @remembermepodcast xxR + M

We are currently booking interviews for Season 4, so please submit your applications before we fill up! www.remembermeftd.com/tellyourstory

Today's Sponsors:

--- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro

--- Learn more about remember me at www.remembermeftd.com/ ---

Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

This week, we proudly present an interview with Lauren Miller Rogen, Filmmaker, Alzheimers Advocate, co-founder of HFC, and now friend of Remember Me.

Lauren openly shares her mother Adele's journey with early onset Alzheimers disease... and she shares the journey with such honesty, vulnerability and love. She talks about what it was like to try and start her life in Los Angeles while her conflicted heart wanted to be back in Florida with her mom - a feeling many of us know all too well. And of course, we talk all about her incredible mom - who she was before the disease - an amazing teacher and mother.

This conversation was so relatable - the feelings, the heartache, it is all the same to what we felt with our own parents... and Lauren did an amazing job of showing us her accept the good outlook - creating a beautiful community and incredible resources through HFC. Below, you'll find a link to our blog post with some great resources from HFC that we think you should check out ASAP: 5 HFC Resources You Should Check Out Now 

Thank you to Lauren (and to Seth) for the amazing work they are doing for this community. For giving this community a voice. We are so thankful.

xx R + M

Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast

Today's Sponsors:

--- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro

--- Learn more about remember me at www.remembermeftd.com/ ---

Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Stephanie shares her husband Paul's current journey with Frontotemporal Degeneration (FTD). Stephanie is so beautifully honest about some of the lesser spoken about parts of the journey and shares what it's like to have her once incredibly supportive and loving partner change so drastically. We loved learning about who Paul truly is - an accomplished and celebrated mechanical engineer, a loving, supportive safe haven for his wife, and a doting father to his incredibly smart girls. Thank you to Stephanie for sharing her story with all of us.

Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast

Notes

--- Join Re-Members Only at www.remembermeftd.com/joinro

--- Learn more about remember me at www.remembermeftd.com/ ---

Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Caroline shares her journey with her mother, Margaret, a beloved family physician, who was diagnosed with Frontotemporal Degeneration (FTD) at age 59. Caroline opens up about what this journey has been like, grieving her mother and best friend while she is still living, and also managing the 800 mile distance between them.

We spend a good deal of this episode talking about transitioning a loved one into residential care. We know this is a topic that comes up a lot in our community so definitely be sure to listen if that has been a part of your journey.

Caroline also came on to promote the FTD Hot Shot Challenge, a viral campaign to raise awareness for FTD, so make sure to check that out HERE.

Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast

Notes

--- Join Re-Members Only at www.remembermeftd.com/joinro

--- Learn more about remember me at www.remembermeftd.com/ ---

Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

It's World FTD Awareness Week so we decided to do something special!

This episode contains excerpts of stories of Frontotemporal Dementia (FTD) previously told on Remember Me. We collaged this episode together to share a snapshot of some of the first signs of FTD, the journey of receiving the diagnosis, and the heartbreaking realization that this disease has no treatment or cure. The featured stories are told from the perspectives of children, spouses, and siblings from all over the United States and beyond.

It is short and sweet, and we invite you to share it with friends, neighbors, coworkers, doctors and more... help us #endFTD and raise awareness. If you know someone affected by this disease, let them know they are not alone, we are here. 

This episode is dedicated to our parents, Lia and Frank. We miss you + we'll never stop fighting for you.

xx Rachael + Maria

Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast

SHOW NOTES:

--- Join Re-Members Only at www.remembermeftd.com/joinro

--- Learn more about remember me at www.remembermeftd.com/ 

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Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Shelley shares her journey with her mother, Mary, who was diagnosed with Primary Progressive Aphasia in her 50s, and died suddenly 6 years later.

This is a heartbreaking story but Shelley is a wonderful storyteller - funny, witty and no doubt someone who accepts the good. One of our favorite parts was getting into all the feelings of being mom's while going through this journey with our parents. 

Shelley's mom Mary was really special. We hope you carry some piece of her with you after hearing this episode.

Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast

Notes

--- Join Re-Members Only at www.remembermeftd.com/joinro

Today's Sponsors:

--- The Association for Frontotemporal Degeneration: Check out what is happening for FTD World Awareness week at www.theaftd.org 

--- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout

--- Learn more about remember me at www.remembermeftd.com/ ---

Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!