Remember Me

We are excited to share this weeks guest, Elin with all of you. During our conversation, Elin openly shared her feelings and her confusion as her husband, Larry’s, FTD began to set in. With a child at home, Elin shares the trials she encountered, the love that persists and the beautiful grief that remains. We loved chatting with Elin and we know you will enjoy hearing her perspective.

Mentioned in this episode: ⁠ALS Scribes of Strength⁠

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A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to ⁠Psilera⁠ for supporting this season of Remember Me.

Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers: 

⁠www.remembermefoundation.org⁠

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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).

Always, always accept the good.

Welcome to Season 12. We are so happy you’re back and if you’re joining us for the first time, welcome in.

This season, our stories are all being shared from the spouses perspective and we are so honored to welcome our first guest, Catherine.

Listening to the story of Al, Catherine's late husband, we were able to explore aspects of aggravation, hard decisions, and vulnerable topics (we discuss what it feels like to grieve “lightly,” - powerful stuff!) This episode was told with a steady undercurrent of love and compassion. Take a listen!

A big thank you to our listeners, our supporters, our Patreons and our guests. 

Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Thank you to our friends at Psilera for their support this season!

We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers: ⁠www.remembermefoundation.org⁠

Our season 11 finale - a chat with just us - reflecting on the season, our journey of building RM + our latest project: The Remember Me Foundation. We talk about the nitty gritty of building Remember Me - while grieving, and healing, and mothering.. and our realization that "this is what it's all about."

Thank you to our incredible guests this season - our SPONSORS (!) Psilera, Progranulin Information Navigator & AviadoBio. Our amazing Patreon members that give us so much love + support + JOY. We love you all. Thank you for sticking with us - 2026 is going to great, we promise. And if the holiday season feels heavy - just know you are not alone. You are a part of a community who gets it. And we hope you find ways to let some light in + accept the good. xx-R+M

A VERY special thank you to today’s sponsors ⁠⁠Progranulin Information Navigator⁠⁠ and ⁠⁠Psilera⁠⁠. 

Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! Also checkout our new charity foundation for the FTD Community ⁠www.remembermefoundation.org⁠

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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).

Always, always accept the good.

Get ready—comedian Kelsey Cook joins us for a powerful Real Talk episode all about Frontotemporal Dementia (FTD), caregiving, grief, and finding a way forward when life feels impossibly heavy. Kelsey opens up about her mom’s FTD journey and shares honest, heartfelt insights on love, loss, resilience, and why humor matters even in the hardest moments.

We adored connecting with Kelsey and hearing more about her incredible mom. Learn more about Kelsey at www.kelseycook.com or on Instagram @kelseycookcomedy.
Let us know your thoughts after listening! xx R+M

PS: Our Season 11 finale drops next week!

Thank you to our Season 11 Sponsors:

Progranulin Information Navigator
Psilera

Join our community on Patreon for exclusive episodes, behind-the-scenes content, and a supportive space for anyone touched by FTD: www.patreon.com/remembermecommunity

Stay connected with us on Instagram and catch updates, resources, and stories at
remembermeftd.com

Learn more about our nonprofit supporting families facing FTD at remembermefoundation.org

The Remember Me Podcast + Community offers hope, resources, and human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.

Allison Lindauer, PhD, APRN joins us to tackle the challenges of navigating behavioral changes caused by Frontotemporal Degeneration (FTD). We talk about some behavior management strategies and the importance of seeking support early and prioritizing your own well-being as a caregiver. Let us know what you think when you listen. - R+M

Allison Lindauer is a nationally certified nurse practitioner, researcher, and Associate Director at Oregon Health & Science University’s Aging and Alzheimer’s Disease Research Center, where she leads outreach and clinical care for families affected by dementia and FTD through her National Institute on Aging–funded STELLA-FTD study.

Learn more about the STELLA FTD Study here.

A VERY special thank you to today’s sponsors ⁠Progranulin Information Navigator⁠ and ⁠Psilera⁠. 

Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! Also checkout our new charity foundation for the FTD Community www.remembermefoundation.org

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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).

Always, always accept the good.

Emma Heming Willis is here! Powerhouse FTD advocate, loving wife and care partner to her husband Bruce, devoted mama to her two young daughters - entrepreneur and co-founder of Make Time Wellness and now a NYT bestselling author of the perfectly titled book The Unexpected Journey.

Emma's here to real talk with us about this journey. Let us know what you think when you listen and a big thank you to Emma for the light she is shining on FTD. Check out all the amazing work she is doing here. xx

A VERY special thank you to today’s sponsors ⁠Progranulin Information Navigator⁠ and ⁠Psilera⁠. 

If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates!

Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).

Always, always accept the good.

We’re tackling the question - Should I get genetic testing?

We have the incredible return guest - Erynn Gordon, CGC, program manager at Progranulin Information Navigator. We also brought on some incredible advocates in the FTD Community - Annika from Cure MAPT FTD, Jackie & Wanda from CureGRN and Michael from End the Legacy to share their personal experiences and thought processes around genetic testing.

Let us know what you think when you listen. - R+M

A VERY special thank you to today’s sponsors Progranulin Information Navigator and Psilera. 

FTD Genetic Resources:

Progranulin Information Navigator

Cure MAPT FTD

CureGRN

End The Legacy - ALS & FTD

FTD Disorders Registry

The Penn FTD Center Genetics Resources

The AFTD Genetics Overview

The National Society of Genetic Counselors

UCSF Memory Familial FTD Page

Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates!

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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).

Always, always accept the good.

Today we talk about 'the end' - our experiences, our fears + how peaceful it ended up being. We call in our friend Katie Duncan, nurse practitioner, educator and founder of Death Care Coach. and she so gently explains what happens to the body in the final days, hours + minutes. And above all letting us know that the body knows exactly what to do.

Help us de-stigmatize the conversation around death and dying by sharing this episode.

Let us know what you think when you listen. xx-r+m

You can now watch us on ⁠⁠YOUTUBE⁠⁠!

Special thanks to our sponsors:

Psilera⁠ + Progranulin Information Navigator

Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates!

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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).

Always, always accept the good.

We talk about the type of grief we feel like people don't understand: Anticipatory Grief. Losing someone bit by bit, and always waiting for the next change, the next disappointment - and the 'end'...Let us know what you think when you listen. xx-r+m

You can now watch us on ⁠YOUTUBE⁠!

Special thanks to Psilera for supporting our work at RM!

Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates!

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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).

Always, always accept the good.

One of the hardest parts of the wreckage that FTD leaves in its wake is the effect it has on families. In today's episode, we open up about the dynamics that have shifted and changed in our families and friendships - and what we've learned through it all. Listen with an open heart + mind as we dive in.

Let us know what you think when you listen, and if you'd like you can now WATCH US ON ⁠YOUTUBE⁠

Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates!

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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).

Always, always accept the good.