Sciencing the s**t out of MS

There are lots of parts of MS that transgress the norms of society, that invite pity, that invite us to feel shame. So we learn from the example of disabled Iranian athletes and find a new seed to plant, one of honesty and authenticity. Oh, also Cora talks for a while about farts. Let's Science the s**t our of MS!!!

Cora talks about the road she has travelled to this point, the weird experiences and relapses, and ponders how we think about the challenges we've faced honestly and in ways that help us face the future. We're getting honest today about the hard parts of MS, but we'll face them together, as we Science the s**t out of MS.

Cora finds that somethign is wrong in her life and she realises what it is by going to buy a new wheelchair and meeting a disabled stranger. So this week Cora goes hunting for community!

You knew it was coming, it's the dreaded exercise episode. How does exercise affect fatigue in MS and what kinds of exercise are most effective? Let's take a look and Science the s**t out of MS!

How do we accommodate new or worsening disability and what can get in the way of that process? We've got new seeds to plant, so let's get our gloves on, and Science the S**t out of MS!!!

In a drive to feel more self esteem, self efficacy, and an internal locus of control I decided to do something really reckless. Sometimes thriving requires a little risk; did I survive? Let's find out together as we Science the S**t out of MS.

A new wheelchair and a whole new world opens up, a world of inacessibility and ableism; but maybe there's a way to see the barriers to access as barriers to a whole community, and maybe there's a way for us all to find a place to belong.

This week I bought a wheelchair and was supported a great deal in the effort by my other half; time to consider how I can best support her as we look to the qualitative literature about caregiver experiences.

References: https://docs.google.com/document/d/1xfL2gEoy_90Wuuc0TTAgBg7c9xh6q1i6XPOBiWe02gk/edit?usp=sharing

For the first time this week I started to see myself as a disabled person, as a woman on the train, despite my protests, called for someone to give up their seat for me. Today, we talk about agency and identity, and the social model of disability; together, let's science the s**t out of MS.

References: https://docs.google.com/document/d/1xfL2gEoy_90Wuuc0TTAgBg7c9xh6q1i6XPOBiWe02gk/edit?usp=sharing

What we say to ourselves makes a difference to how we feel, and might even help us to play darts better. Let's Science the s**t out of MS!

References: https://docs.google.com/document/d/1xfL2gEoy_90Wuuc0TTAgBg7c9xh6q1i6XPOBiWe02gk/edit?usp=sharing