See the Invisible: Living with an Invisible or Rare Disease

See the Invisible: Living with an Invisible or Rare Disease

By Ronda F JeffersonHealth & Fitness
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See the Invisible: Living with an Invisible or Rare Disease episodes

  • Asthma, Allergies and Travel

    Asthma, Allergies and Travel.  These words can strike fear in those who have to encounter all of these together.  I will go over tips in this episode on how to make a trip safer.

     

    Note - I used the word "safer" because in some instances, even if you've taken appropriate steps, dander and other allergens can travel on other people's clothes. 

     

     

    Contact: Email: [email protected]

    Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

    Facebook: SeetheInvisible2020 | Facebook

    Website: SeetheInvisible2020.com – Dare to be seen!

    Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

    YouTube: SeeTheInvisible - YouTube

     

    https://www.aafa.org/traveling-with-asthma-allergies/

     

    https://www.aarp.org/travel/travel-tips/safety/info-2019/flying-with-allergies.html

     

     

    38 min
  • Asthma, Allergies and the ADA

    Today I will explore how the ADA addresses Asthma and Allergies. Some may not realize that both Asthma and Allergies are considered disabilities and protected under the Abilities with Disabilities Act.  Links to information regarding the ADA are in the description below.

     

    Source:

    Are Asthma and Allergies Disabilities? | AAFA.org

     

    ADA Information:

    ADA.gov homepage

    ADA Designated Investigative Services

     

     

    Disclaimer: 

    I am in no way a medical, insurance or legal expert.  If you 

    have any questions in those areas, please be sure that you contact a specialist in that field.  I will discuss topics or articles that I have found on publicly accessible means.  Any opinion discussed is based on my experiences and my understanding of that particular topic and how it pertains to my life with my illness. It is not meant to, and should not be, used in place of any medical advice.

     

    Contact: Email: [email protected]

    Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

    Facebook: SeetheInvisible2020 | Facebook

    Website: SeetheInvisible2020.com – Dare to be seen!

    Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

    YouTube: SeeTheInvisible - YouTube

    29 min
  • Living with Asthma Pt. 4 - Asthma and Pregnancy

    Today I will review some of the information regarding when you're pregnant and have asthma. 

     

    Source:

    https://www.aafa.org/asthma-during-pregnancy/

     

    Disclaimer: 

    I am in no way a medical, insurance or legal expert.  If you 

    have any questions in those areas, please be sure that you contact a specialist in that field.  I will discuss topics or articles that I have found on publicly accessible means.  Any opinion discussed is based on my experiences and my understanding of that particular topic and how it pertains to my life with my illness. It is not meant to, and should not be, used in place of any medical advice.

     

    Contact: Email: [email protected]

    Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

    Facebook: SeetheInvisible2020 | Facebook

    Website: SeetheInvisible2020.com – Dare to be seen!

    Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

    YouTube: SeeTheInvisible - YouTube

    36 min
  • Exploring Asthma Pt. 3

    In part 3 of exploring Asthma, we look at what to look for in an infant or toddler who may have asthma.  

    Disclaimer: 

    I am in no way a medical, insurance or legal expert.  If you 

    have any questions in those areas, please be sure that you contact a specialist in that field.  I will discuss topics or articles that I have found on publicly accessible means.  Any opinion discussed is based on my experiences and my understanding of that particular topic and how it pertains to my life with my illness. It is not meant to, and should not be, used in place of any medical advice.

     

    Contact: Email: [email protected]

    Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

    Facebook: SeetheInvisible2020 | Facebook

    Website: SeetheInvisible2020.com – Dare to be seen!

    Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

    YouTube: SeeTheInvisible - YouTube

     

    Sources:

    Asthma in Infants | AAFA.org

    Bronchiolitis - Bing

    Croup - Bing

    pulmonary aspiration - Bing

    Epiglottis - Bing

     

    33 min
  • Exploring Asthma Pt. 2

    We continue to explore Asthma in this episode, as well as take more of a look at accessibility.  There are different types of Asthma and the recognition of which type of a patient has is very important in treatment.  The statistics on the impact of Asthma are staggering in loss of school, work, medical costs, and most importantly, human life.  I know that I found many of these statistics a surprise and many of these issues need to be addressed. 

     

    Contact: Email: [email protected]

    Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

    Facebook: SeetheInvisible2020 | Facebook

    Website: SeetheInvisible2020.com – Dare to be seen!

    Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

    YouTube: SeeTheInvisible - YouTube

     

    Sources

    https://languages.oup.com/google-dictionary-en/

     

    https://www.mayoclinic.org/diseases-conditions/asthma/expert-answers/vocal-cord-dysfunction/faq-20058019

     

    https://www.aafa.org/asthma-facts/

    What Are The Different Types Of Asthma?

     

    https://asthma.net/types/allergies

     

    https://acaai.org/asthma/types-asthma/nonallergic-asthma

    https://www.aafa.org/asthma-capitals/

     

    https://www.mnn.com/health/allergies/stories/6-types-of-asthma-and-how-theyre-treated

     

    accessmedicine.mhmedical.com/content.aspx?sectionid=249369743

     

    https://www.thoracic.org/patients/patient-resources/resources/allergic-bronchopulm-aspergillosis.pdf

     

    https://asthma.net/types/aspirin-induced

     

    https://www.webmd.com/asthma/guide/adult-onset-asthma

     

    https://link.springer.com/chapter/10.1007/978-1-4614-4292-9_7

     

    https://www.mayoclinic.org/diseases-conditions/exercise-induced-asthma/symptoms-causes/syc-20372300

     

    https://www.webmd.com/asthma/guide/cough-variant-asthma

     

    40 min
  • Exploring Asthma Pt. 1

    We start to explore Asthma in this episode.  There are different types of Asthma and the recognition of which type of a patient has is very important in treatment.  The statistics on the impact of Asthma are staggering in loss of school, work, medical costs, and most importantly, human life.  I know that I found many of these statistics a surprise and many of these issues need to be addressed. 

     

    Contact: Email: [email protected]

    Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

    Facebook: SeetheInvisible2020 | Facebook

    Website: SeetheInvisible2020.com – Dare to be seen!

    Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

    YouTube: SeeTheInvisible - YouTube

     

    https://languages.oup.com/google-dictionary-en/

     

    https://www.mayoclinic.org/diseases-conditions/asthma/expert-answers/vocal-cord-dysfunction/faq-20058019

     

    https://www.aafa.org/asthma-facts/

    What Are The Different Types Of Asthma?
    https://www.aafa.org/asthma-capitals/

    https://www.mnn.com/health/allergies/stories/6-types-of-asthma-and-how-theyre-treated

    accessmedicine.mhmedical.com/content.aspx?sectionid=249369743

    42 min
  • Life with Allergies Pt. 4

    This series of episodes explore an invisible illness that many people suffer and survive with but that many don’t actually consider an illness.  Allergies.  Allergies are more than an inconvenience, just watery eyes or runny nose.  These can be life-threatening and need attention so that others are aware. 

    This episode will focus on life as an adult, navigating the world of leisure, love, and work.

     

     

     

    Contact: Email: [email protected]

    Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

    Facebook: SeetheInvisible2020 | Facebook

    Website: SeetheInvisible2020.com – Dare to be seen!

    Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

    YouTube: SeeTheInvisible - YouTube

     

    If you're interested in a podcast that explores true crime, tragedies and understanding why events happened to try to prevent them from happening again, check out this podcast. 

    Danger on Delmarva Podcast:  https://www.podbean.com/pu/pbblog-cxf4i-b515fd 

    Sources:

    Asthma and Allergy Foundation of America | AAFA | Home

    Food Allergy & Anaphylaxis Connection Team | Campaign Home (foodallergyawareness.org)

    https://www.foodallergyawareness.org/education/adults-with-food-allergies/shopping-cooking-eating/

    https://www.foodallergyawareness.org/education/adults-with-food-allergies/socializing-with-friends/

    https://www.foodallergyawareness.org/education/adults-with-food-allergies/dating-and-relationships/

    https://www.foodallergyawareness.org/education/adults-with-food-allergies/shared-living-spaces/

    https://www.foodallergyawareness.org/education/adults-with-food-allergies/food-allergies-in-the-workplace/

    https://www.foodallergyawareness.org/education/adults-with-food-allergies/events-within-the-workplace/

    https://www.foodallergyawareness.org/education/allergy-related-organizations/

     

     

    Petition for Epipen affordability/access:  http://chng.it/PYxts4wvNY

    Petition for Diabetic Medical Supplies Affordability: http://chng.it/wvDV49qmxT

    44 min
  • Life with Allergies Pt. 3

    This series of episodes explore an invisible illness that many people suffer and survive with but that many don’t actually consider an illness.  Allergies.  Allergies are more than an inconvenience, just watery eyes or runny nose.  These can be life-threatening and need attention so that others are aware. 

    This episode with focus on recent High School graduates and how they must navigate a new world either in the workplace or college.

     

     

     

    Contact: Email: [email protected]

    Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

    Facebook: SeetheInvisible2020 | Facebook

    Website: SeetheInvisible2020.com – Dare to be seen!

    Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

    YouTube: SeeTheInvisible - YouTube

     

    If you're interested in a podcast that explores true crime, tragedies and understanding why events happened to try to prevent them from happening again, check out this podcast. 

    Danger on Delmarva Podcast:  https://www.podbean.com/pu/pbblog-cxf4i-b515fd 

    Sources:

    Asthma and Allergy Foundation of America | AAFA | Home

    Food Allergy & Anaphylaxis Connection Team | Campaign Home (foodallergyawareness.org)

    Petition for Epipen affordability/access:  http://chng.it/PYxts4wvNY

    Petition for Diabetic Medical Supplies Affordability: http://chng.it/wvDV49qmxT

    44 min
  • Life With Allergies Part 2

    This episode explores an invisible illness that many people suffer and survive with but that many don’t actually consider an illness.  Allergies.  Allergies are more than an inconvenience, just watery eyes or runny nose.  These can be life-threatening and need attention so that others are aware. 

     

    Contact: Email: [email protected]

    Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

    Facebook: SeetheInvisible2020 | Facebook

    Website: SeetheInvisible2020.com – Dare to be seen!

    Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

    YouTube: SeeTheInvisible - YouTube

     

    Danger on Delmarva Podcast:  https://www.podbean.com/pu/pbblog-cxf4i-b515fd 

    Sources:

    Asthma and Allergy Foundation of America | AAFA | Home

    Food Allergy & Anaphylaxis Connection Team | Campaign Home (foodallergyawareness.org)

    Petition for Epipen affordability/access:  http://chng.it/PYxts4wvNY

    Petition for Diabetic Medical Supplies Affordability: http://chng.it/wvDV49qmxT

    44 min
  • Life with Allergies Part 1

    This episode explores an invisible illness that many people suffer and survive with but that many don’t actually consider an illness.  Allergies.  Allergies are more than an inconvenience, just watery eyes or runny nose.  These can be life-threatening and need attention so that others are aware. 

     

    Contact: Email: [email protected]

    Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

    Facebook: SeetheInvisible2020 | Facebook

    Website: SeetheInvisible2020.com – Dare to be seen!

    Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

    YouTube: SeeTheInvisible - YouTube

    Sources:

    Asthma and Allergy Foundation of America | AAFA | Home

    Food Allergy & Anaphylaxis Connection Team | Campaign Home (foodallergyawareness.org)

    Petition for Epipen affordability/access:  http://chng.it/PYxts4wvNY

    Petition for Diabetic Medical Supplies Affordability: http://chng.it/wvDV49qmxT

     

     

    22 min

About See the Invisible: Living with an Invisible or Rare Disease

From the publisher's feed

I want to share information about living with and dealing with a chronic or invisible disease. This is made even more difficult if the disease is rare. I'll share my story and also invite some guests…