See the Invisible: Living with an Invisible or Rare Disease

I continue to discuss the differences in the 1918 Pandemic and the current one. There will be a part 4.

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Contact Info:

Email: [email protected]

Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

Facebook: SeetheInvisible2020 | Facebook

Website: SeetheInvisible2020.com – Dare to be seen!

Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

YouTube:

SeeTheInvisible - YouTube

Sources:

How COVID-19 impacts people with disabilities (apa.org)

How Americans with disabilities can cope with the COVID-19 crisis (apa.org)

COVID-19's Impact on People with Disabilities (massgeneral.org)

COVID-19 poses unique challenges for people with disabilities | Hub (jhu.edu)

People with Disabilities | COVID-19 | CDC

How chronic illness and disability is impacted by COVID-19 | The Baylor Lariat

Coronavirus and Chronic Illness: What You Need to Know | The Mighty

https://news.un.org/en/story/2020/09/1071732

https://www.aarp.org/health/conditions-treatments/info-2020/chronic-conditions-coronavirus.html

How COVID-19 Severity is Impacted by Underlying Conditions | Time

I continue to discuss the differences in the 1918 Pandemic and the current one. There will be a part 3.

Contact:

Contact Info:

Email: [email protected]

Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

Facebook: SeetheInvisible2020 | Facebook

Website: SeetheInvisible2020.com – Dare to be seen!

Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

YouTube:

SeeTheInvisible - YouTube

Sources:

How COVID-19 impacts people with disabilities (apa.org)

How Americans with disabilities can cope with the COVID-19 crisis (apa.org)

COVID-19's Impact on People with Disabilities (massgeneral.org)

COVID-19 poses unique challenges for people with disabilities | Hub (jhu.edu)

People with Disabilities | COVID-19 | CDC

How chronic illness and disability is impacted by COVID-19 | The Baylor Lariat

Coronavirus and Chronic Illness: What You Need to Know | The Mighty

https://news.un.org/en/story/2020/09/1071732

https://www.aarp.org/health/conditions-treatments/info-2020/chronic-conditions-coronavirus.html

How COVID-19 Severity is Impacted by Underlying Conditions | Time

This episode will be a little bit of a history lesson. I learned a lot researching the misnamed "Spanish Flu" Pandemic and seeing where we've learned from that pandemic in some ways, but also repeated history in others

In future episodes, I will look at socio-economic factors, how technology has helped in ease of communication, the willingness of much (but probably not all) of our government leaders to maintain transparency and how these factors affected containment and accessibility during each pandemic.

Contact Info:

Email: [email protected]

Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

Facebook: SeetheInvisible2020 | Facebook

Website: SeetheInvisible2020.com – Dare to be seen!

Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

YouTube:

SeeTheInvisible - YouTube

Sources used:

 American Journal of Epidemiology 

Spanish flu - Wikipedia

Man Dies of Coronavirus Century After Losing Twin Brother to Spanish Flu | PEOPLE.com

Sisters Die 102 Years Apart from Spanish Flu, Coronavirus | PEOPLE.com

Italian, 101, Born amid Spanish Flu Pandemic Survives Coronavirus | PEOPLE.com

How COVID-19 impacts people with disabilities (apa.org)

How Americans with disabilities can cope with the COVID-19 crisis (apa.org)

COVID-19's Impact on People with Disabilities (massgeneral.org)

COVID-19 poses unique challenges for people with disabilities | Hub (jhu.edu)

People with Disabilities | COVID-19 | CDC

How chronic illness and disability is impacted by COVID-19 | The Baylor Lariat

Coronavirus and Chronic Illness: What You Need to Know | The Mighty

https://news.un.org/en/story/2020/09/1071732

https://www.aarp.org/health/conditions-treatments/info-2020/chronic-conditions-coronavirus.html

How COVID-19 Severity is Impacted by Underlying Conditions | Time

Lessons From the Past: How the Spanish Flu Impacted the Econ

In this episode, I review some personal experiences that helped shape how I react to certain situations, sometimes not always the best way. But I do try to learn from these. Some of these experiences helped drive me to start this podcast.

I also recorded this episode to upload to YouTube if you prefer to listen.

Contact Info:

Email: [email protected]

Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

Facebook: SeetheInvisible2020 | Facebook

Website: SeetheInvisible2020.com – Dare to be seen!

Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

YouTube:

SeeTheInvisible - YouTube

In this episode, I reviewed information from 5 Things Not to Say to Someone With an Invisible Illness - Paradigm Treatment

https://paradigmtreatment.com/someone-invisible-illness/

15 Things Not to Say to Someone with a Chronic or Invisible Illness

https://asweetlife.org/15-things-not-to-say-to-someone-with-a-chronic-illness-or-invisible-illness/

In the second part of this episode, we will finish the story of my journey to the diagnosis. Our journeys to find out our actual diagnosis may take years. During that time, we suffer through physical, emotional and mental pain, but because science has not put a name on it, it doesn't seem to exist. But it does, and it is creating challenges for us everyday.

While I always say that I want to focus on being positive, I think that it is important to address the obstacles that we faced to just put a name to the illness that was invading our life. It will show that no matter what, we are fighters, survivors and we deserve to be seen and heard.

6:42 Podcast after Introduction begins

Information on Multi-System Inflammatory Syndrome in children after Covid: Multisystem inflammatory syndrome in children (MIS-C) and COVID-19 - Symptoms and causes - Mayo Clinic

Contact Info:

Email: [email protected]

Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

Facebook: SeetheInvisible2020 | Facebook

Website: SeetheInvisible2020.com – Dare to be seen!

Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos642

Our journeys to find out our actual diagnosis may take years. During that time, we suffer through physical, emotional and mental pain, but because science has not put a name on it, it doesn't seem to exist. But it does, and it is creating challenges for us everyday.

While I always say that I want to focus on being positive, I think that it is important to address the obstacles that we faced to just put a name to the illness that was invading our life. It will show that no matter what, we are fighters, survivors and we deserve to be seen and heard.

Contact Info:

Email: [email protected]

Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

Facebook: SeetheInvisible2020 | Facebook

Website: SeetheInvisible2020.com – Dare to be seen!

Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

There are so many things that we must overcome daily, things that are specific to us as individuals, specific to us as a community, and specific to our illness. While there are some differences, let's first take a look at some of the obstacles that we face on a daily basis.

Source: Invisible Illness – 7 Ways To Get Past The Injustices and Challenges! (cfsunravelled.com)

5 Ways To Cope With Anxiety That Accompanies Chronic Illness (healingwell.com)

Contact Info:

Email: [email protected]

Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

Facebook: SeetheInvisible2020 | Facebook

Website: SeetheInvisible2020.com – Dare to be seen!

Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

This episode will showcase my thoughts on a "visible" invisible disease. There is so much judgement on this topic, even from medical professionals. Unlike other conditions, some people still consider it socially acceptable to judge those who are obese, even if they have a known health condition that impacts their weight. All people deserve to have their illnesses treated with dignity and respect.

Contact Info:

Email: [email protected]

Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

Facebook: SeetheInvisible2020 | Facebook

Website: SeetheInvisible2020.com – Dare to be seen!

Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

There are so many things that we must overcome daily, things that are specific to us as individuals, specific to us as a community, and specific to our illness. While there are some differences, let's first take a look at some of the obstacles that we face on a daily basis.

Source: Invisible Illness – 7 Ways To Get Past The Injustices and Challenges! (cfsunravelled.com)

Contact Info:

Email: [email protected]

Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

Facebook: SeetheInvisible2020 | Facebook

Website: SeetheInvisible2020.com – Dare to be seen!

Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos

I finish up my series about some of the best ways that we can become our own advocate.

Source: US News Article 6 Ways to Be Your Own Health Advocate | For Better | US News

Contact Info:

Email: [email protected]

Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter

Facebook: SeetheInvisible2020 | Facebook

Website: SeetheInvisible2020.com – Dare to be seen!

Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos