Today, hi yes I’m back, we discuss the gallstone in the gas station incident, caused Lyme antibiotics and how my mom navigated it as a parent and caretaker. Also we go into how that led to my SMAS diagnosis. We are all over the place as usual, enjoy :)

Today we talk about the beginning of my medication for Lyme and treatment. It was slow, and hard. We also talk about how sometimes being in someone who is chronically ill’s life is actually easier than you think. And ofc some education on Lyme and a few funny stories.

So, a lot of you have asked why did we leave my home state for Lyme care, and what are my mom and I’s stories. Well, here’s part 1 of not sure how long series. We get really really honest. This is the beginning, why we went to Cali for treatment, and my health then. Don’t worry more funny stories are coming but this one is more about our shitty health care system and the black listing of Lyme disease.

Join me as I break down feeling delusional in my feelings of PTSD and medical trauma and how it is expressed on my mom. Then she joins me, and we talk all things of our medical trauma, our bond we have and how it’s okay to have the feelings I have, and how I’m not crazy. plus some goofy alien talk and Alex the cat sign off.

for years, I’ve been sick, in chronic intense pain. But now, with a possible relief, for one of my chronic illnesses, on the horizon, what if I’m scared of it getting “better”. join me on a stupid tangent on how now that I’m getting surgery for my MALS, how it really makes me feel.

This week I talk about the incident this weekend in the Chronic illness community where a woman promoted using NG tubes for weight loss and how very wrong she is was along with how the medical community has lead to me having hyper vigilance.

Today I talk about rare diseases and the advocacy needed in honor of Rare Disease Day (feb28) and then switched to toxic positivity in the chronic illness community and in the expectations on living in general.

So this episode started out as a reflection of being 19, noting how my friends have grown, time has passed and I’ve felt frozen. Then half way through my Dr messages me and reminds me that although I’m 19, they can still treated like a child who doesn’t know their body. Enjoy some upset autumn :)

Today I talk about my Celiac Plexus Block and MALS and what it is, as awareness day is coming up for that too! I also talk about once again the failure of doctors causing a delayed diagnosis and life long consequences.

Exactly what the title states! Today I go over my survivors guilt when it comes to being chronically Ill along side my experience staying at the first hospital in my journey and how that leads to a lot of my anxiety now while also talking about how grateful I am for where I am and how I feel guilty about it.