Slice of PI
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Slice of PI episodes

  • Ep 26: Gene Therapy Abroad

    Gene therapy seems to be everywhere right now. But what is gene therapy? What is happening in Canada with gene therapy? And more importantly, what is happening in other countries that can teach us to create a sustainable solution for children with ultra-rare diseases to access novel gene therapies?

    In this episode, Andrea talks to Dr. Claire Booth, a pioneer in gene therapy in Europe to answer some of these questions. 

    Season 3 is supported by Pharming

    36 min
  • Ep 25: National Patient Registries

    What are patient registries? Why are they important and why should patients and caregivers care about about them? How can they impact patient care? Is there a patient registry for primary immunodeficiency in Canada? This week, Andrea talks to Dr. Beata Derfalvi as they answer some of these questions and also look at what Canada can learn from other countries. 

    Season 3 is supported by Pharming

    37 min
  • Ep 24: Intro to Season 3 - We're Back!

    Andrea is back with another season of Slice of PI! In this episode, host Andrea Fernandez de Soto, looks at what is in store over for listeners this season in Slice of PI. 

    Season 3 is supported by Pharming

    13 min
  • Ep 22: Self Care, Parenting and Fun

    In the penultimute episode, Andrea looks at the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff. 

    51 min
  • Trailer S2: E22

    Take a listen to Friday's episode where Andrea will discuss  the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff. 

    1 min

About Slice of PI

From the publisher's feed

A podcast by and for patients living with primary immunodeficiency (PI). “A Slice of PI” explores the diverse experiences of people living with PI through reflexive investigation of the social and…