Slice of PI

This week, Andrea looks at the impact of foundations, the role organizations play when it comes to support for patients and families with PI. Guests this week: Heather Smith from SCID Angels for Life and patient and parent, Martine Allard. 

Take a listen to next week's episode where Andrea discusses the important role that foundations play for families and patients with PI.

This week Andrea explores how we can transform our journey through creativity and other ways to give back. Special guests this week: Expert: Luz Adriana Manozca and paren, Funda Eyupoglu.

Take a quick glimpse at Friday's episode where Andrea explores ways to give back throughout your journey and how you can transform your journey through creativity. 

This week, Andrea looks at the complexities and challenges surrounding the important topic that is "transition". Every child will eventually transition out of pediatric care into adult care. However, parents will also have to transition. What does that look like for both the youth and the parent? Guests this week Dr. Catherine Biggs from BC Children's Hospital and parent Margaret Jurocko. 

Take a listen at what is coming up next week when Andrea looks at the challenge and complexities of transition from pediatric to adult care. 

This week Andrea talks to experts about the interesting and often unknown option of enzyme replacement therapy for ADA SCID. Guests this week are Dr. Eyal Grunebaum of SickKids Hospital in Toronto and mother Monica Nava. 

Take a quick listen to what Andrea has in store for next week's episode! 

This week Andrea looks at the important topic of gene therapy, the amazing advances made over the past two decades, the legacy of PI patients and what is on the horizon. Special expert guests this week include Dr. Donald Kohn and Alyssa Vaccaro. 

Take a listen to episode 7 where Andrea looks at gene therapy.