In episode 49, host Kevin Schaefer interviews Ashley Fox from Southern

California. Ashley is currently studying psychology at a community college, and she has SMA type 2. She talks about growing up with SMA, becoming a cheerleader in high school, and recently starting Spinraza.

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We discuss how Asuragen is stating that a new screening kit, quickly and thoroughly analyzes SMN1 and SMN2 genes in the lab. & With all the variables that can come into play getting her Spinraza injection, DeAnn never feels totally at ease. She’s grateful for the opportunity and shares her journey to dose 10.

Are you interested in learning more about the spinal muscular atrophy? Please visit www.smanewstoday.com

We discuss how interim phase 2/3 data shows that risdiplam improves motor function in people with SMA types 2 and 3 & setting new year’s resolutions when you have SMA by Forums Director Kevin Schaefer.

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We discuss how AveXis is unaware of the cause of inflammation, that led to the STRONG trial hold of AVXS-101. Forums Director Kevin Schaefer shares some of his highlights from this year.

Are you interested in learning more about the latest treatment for spinal muscular atrophy? Visit TreatSMA.com to see how this treatment works, hear about family stories, and learn about the steps to starting treatment. Visit TreatSMA.com.

Forums Director Kevin Schaefer recounts the story of acquiring his JACO robotic arm in his latest column & DeAnn Runge talks about Kala Godin's latest column, Pondering the Possibilities of the Future, where she writes about anticipating treatments that are on the horizon. DeAnn Runge can relate to this because she had some of the same feelings while awaiting Spinraza. Can you relate?

Are you interested in learning more about the latest treatment for spinal muscular atrophy? Visit TreatSMA.com to see how this treatment works, hear about family stories, and learn about the steps to starting treatment. Visit TreatSMA.com.

In episode 48, hosts Kevin Schaefer and Michael Morale discuss the latest news regarding Roche and Genentech’s experimental therapy risdiplam. We also talk with our very own DeAnn Runge. DeAnn discusses the origins of her YouTube series “Dose of DeAnn.” She also explains why she shares her story of living with SMA with others.

We discuss the FDA granting priority review for risdiplam, which is a potential oral therapy for all SMA types. & How do you guys manage to do fun things that require a bit of travel? After hearing her favorite band will be touring nearby, forums moderator DeAnn Runge is trying to devise a plan to go. Unfortunately it doesn’t look like it will work out because of how difficult it is to travel.

Are you interested in learning more about the latest treatment for spinal muscular atrophy? Visit TreatSMA.com to see how this treatment works, hear about family stories, and learn about the steps to starting treatment. Visit TreatSMA.com.

We discuss how BillionToOne announced that prenatal blood test for SMA are now available in 4 countries in Europe and Forums Director Kevin Schaefer talks about being proactive and maintaining an independent lifestyle with SMA.

Are you interested in learning more about the latest treatment for spinal muscular atrophy? Visit TreatSMA.com to see how this treatment works, hear about family stories, and learn about the steps to starting treatment. Visit TreatSMA.com.

Forums Director Kevin Schaefer reflects on his love for movies, and

especially the films that taught him lessons about living with SMA. Also, on the forums, www.smanewstoday.com/forums, there’s a specific category just for YouTube videos. All of the latest videos can be found from the Morale Monologue, Ryan’s Robotics and Dose of DeAnn. Here is a brief recap of the most recent episodes.

Are you interested in learning more about SMA? Please visit www.smanewstoday.com

We discuss how researchers are stating how exercise can help increase functional SMN protein, and can supplement SMA treatments.

Being sick more holidays than being healthy have nurtured some rather unconventional traditions for DeAnn. Despite this being the most worrisome time of the year it can also be the best. There’s nothing like expressing love and gratitude between family and friends.

Are you interested in learning more about the latest treatment for spinal muscular atrophy? Visit TreatSMA.com to see how this treatment works, hear about family stories, and learn about the steps to starting treatment. Visit TreatSMA.com.