We discuss a German study that suggests how Spinraza improved or stabilized motor and lung functions in SMA type 3 adults. Having a multitude of nurses and caregivers coming in and out of your life isn’t easy. Forums moderator DeAnn Runge shares her personal frustration with having high turnover in this field.

Are you interested in learning more about the latest treatment for spinal muscular atrophy? Visit TreatSMA.com to see how this treatment works, hear about family stories, and learn about the steps to starting treatment. Visit TreatSMA.com

We discuss early trial data that shows how Zolgensma produces promising results in young children with type II SMA. Forums Director Kevin Schaefer reads an excerpt from Kala Godin’s latest column,

“Progression Looks Different for People with SMA.”

Are you interested in learning more about the latest treatment for spinal muscular atrophy? Visit TreatSMA.com to see how this treatment works, hear about family stories, and learn about the steps to starting treatment. Visit TreatSMA.com.

Forums Director Kevin Schaefer talks about having a high quality of life while living with SMA.

DeAnn Runge's Segment: In his column, Five Servings of Strength, Michael Casten shares how his family meets challenges head on. Most recently he chronicles Halloween night and in another column shares the little things they do to put family first.

Forums moderator DeAnn Runge shares how stressful the scheduling process for Spinraza is for her. With so many aspects to consider it’s increasingly becoming a pain. Even more so than the injection itself.

We discuss how Scholar Rock’s early data supports the development of SRK-015, for SMA types 2 and 3.

Are you interested in learning more about the latest treatment for spinal muscular atrophy? Visit TreatSMA.com to see how this treatment works, hear about family stories, and learn about the steps to starting treatment. Visit TreatSMA.com.

Forums Director Kevin Schaefer recaps some of our recent columns. We discuss how risdiplam continues to show survival and motor function improvements, according to trial results.

Are you interested in learning more about the latest treatment for spinal muscular atrophy? Visit TreatSMA.com to see how this treatment works, hear about family stories, and learn about the steps to starting treatment. Visit TreatSMA.com.

A new moderator is joining the SMA News Today forums. Alyssa Silva is a current columnist and will also be moderating the forums along with her co-moderators to give a unique perspective on a variety of topics.

Forums Director Kevin Schaefer shares his thoughts on existing and emerging treatments for SMA.

In episode 45, host Kevin Schaefer talks with Jim and Becky Berry from Myrtle Beach, South Carolina. Jim and Becky share their experiences as parents of two sons with SMA, and they talk about the life of their late son Carson.

We discuss how the FDA placed a partial hold on the STRONG trial of AVXS-101, citing a concern that was seen in an animal study. This time of year forums moderator DeAnn Runge tends to Binge watch TV series. Her recent binge, Call the Midwife, led her to inquire about the history of SMA. Are you familiar with how SMA was discovered? With her knowledge that SMA was around when the show took place, she’s curious if a case will present itself during the course of the show.

Are you interested in learning more about the latest treatment for spinal muscular atrophy? Visit TreatSMA.com

We discuss how the SMA STAT genetic test, that’s offered free in the US, is enabling earlier diagnosis and Forums Director Kevin Schaefer reads from a forum topic about employment and SMA.

Are you interested in learning more about the latest treatment for spinal muscular atrophy? Visit TreatSMA.com to see how this treatment works, hear about family stories, and learn about the steps to

starting treatment. Visit TreatSMA.com

Forums Director Kevin Schaefer talks about embracing the imaginative spirit of Halloween. Forums moderator DeAnn Runge shares what’s been going on in the forums over the past week. Topics include health, winter activities and even SMA history. Feel free to join in on the conversation.

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