Check out the blog post for this episode here! Follow along @thanks.for.doing.that.podcast!

In this special release, Heather talks with Chrissy Green about the reality for kids living with FRRS1L . Chrissy dives into the biology and science in the episode; but, basically the FRRS1L disorder causes disruption to messages in the brain and affects life holistically for these children and their families.

Finding Hope for FRRS1L is a parent initiated non profit that is seeking to foster community, create awareness, and find a cure. They have had ground breaking results in trial studies and are moving forward to get the treatment to the children.

Finding Hope for FRRS1L website
Follow along on instagram @hope4frrs1l and @everlyshope

Catch more of the story @thanks.for.doing.that.podcast!