In this episode Lou discussed PDA (Pathological Demand Avoidance) with Dr Theresa Kidd and Dr Miriam Kirby.  What is PDA?  Is it a real diagnosis?  Comparing PDA to ODD.  Helping families to access the right support if they suspect PDA in their child or have had a recent diagnosis.  The discussion then moves to Collaborative Proactive Solutions (CPS) and how this model works for PDAers, how educators are benefiting from CPS in schools when working with PDA students as well as the upcoming visit to WA by Dr Ross Greene!

Please sign and share this petition to bring Collaborative Proactive Solutions to Australian Schools!
https://www.change.org/CPSinAustralianschools
Please write to Education Minister, Sarah Mitchell and request that CPS (Collaborative Proactive Solutions) be introduced to NSW schools: [email protected]

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Support materials mentioned by Theresa and Miriam:

1. The Kidd Clinic website: https://www.kiddclinic.com.au/

Dr Kidd is bringing Dr Ross Greene to WA in September!  Join the mailing list to hear more about this and make sure you don't miss Ross's visit and training!

2. PDA Society in the UK website: https://www.pdasociety.org.uk/

3. Kristy Forbes Facebook group: https://www.facebook.com/inTunePathways

4. Book: "The Family Experience of PDA" by Eliza Fricker https://www.amazon.com.au/Family-Experience-PDA-Illustrated-Pathological/dp/1787756777/ref=asc_df_1787756777/?tag=googleshopdsk-22&linkCode=df0&hvadid=463938214949&hvpos=&hvnetw=g&hvrand=5248029444617133627&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=9071774&hvtargid=pla-1330963301971&psc=1

5. Book: "Pretty Darn Awesome" by Lauren O'Grady https://www.amazon.com.au/Pretty-Darn-Awesome-Understanding-Pathological/dp/B08N1N9WDQ

6. Book: "Collaborative Approaches to Learning for Pupils with PDA: Strategies for Education Professional" by Ruth Fidler and Phil Christie https://www.amazon.com.au/Collaborative-Approaches-Learning-Pupils-Professionals/dp/1785920170

7. The Kidd Centre webinars for teachers by Jonelle Fraser: https://www.kiddclinic.com.au/professional

This is the episode where Lou announces her recent diagnosis of terminal lung cancer but the focus of this episode is a discussion between Lou and parent Advocate, Symone Wheatley-Hey.  Symone discusses her struggles with the WA education system and the efforts of the WA Square Peg Round Whole group to engage with Education Minister, Sue Ellery.

Please sign and share this petition to bring Collaborative Proactive Solutions to Australian Schools!
https://www.change.org/CPSinAustralianschools
Please write to Education Minister, Sarah Mitchell and request that CPS (Collaborative Proactive Solutions) be introduced to NSW schools: [email protected]

Call to Action: Here's the contact details so that you can write to Minister Sue Ellery:
Address:

12th Floor, Dumas House, 2 Havelock Street, WEST PERTH WA 6005

Telephone:

61 8 6552 5700

Fax:

61 8 6552 5701

Email:

[email protected]

PLEASE SUBSCRIBE, RATE AND REVIEW!

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Instagram: @squarepegroundwholepodcast
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Website: www.squarepegroundwhole.com.au

1. Western Australian joint Disability Royal Commission submission:  HAVE YOUR SAY ANONYMOUSLY  https://freesuggestionbox.com/pub/awjmhmf?fbclid=IwAR0CDdCcFRc-loHJLlhYz7FtsWo6iyBRk44cWHfyDwOzbWV4NTACVE0jb08

2. Template to write to your local MP (found on WA Facebook group):
https://www.facebook.com/groups/1198774187604032/permalink/1206759080138876

3. Legislative Council questions on notice: https://www.parliament.wa.gov.au/Hansard/hansard.nsf/0/79569FAF37D0AEFD482588D80029EC16/$File/G41%20S1%2020221011%20All.pdf?

Please sign and share this petition to bring Collaborative Proactive Solutions to Australian Schools!
https://www.change.org/CPSinAustralianschools
Please write to Education Minister, Sarah Mitchell and request that CPS (Collaborative Proactive Solutions) be introduced to NSW schools: [email protected]

 In this episode, Lou talks to Yenn Purkis. 
Yenn Purkis is an author, public servant and passionate advocate for Autistic people and their families. Yenn is the author of ‘Finding a Different Kind of Normal: Misadventures with Asperger Syndrome’ – an autobiography, ‘The Wonderful World of Work: A Workbook for Asperteens’- an activity book about employment for teens on the Autism spectrum. Yenn is co-author of ‘The Guide to Good Mental Health on the Autism Spectrum’ and ‘The Parents’ Practical Guide to Resilience for Children aged 2-10 on the Autism Spectrum.’ Yenn has also contributed to other books, journals, blogs and websites. Yenn has a diagnosis of Asperger Syndrome and atypical schizophrenia.

Yenn has been working full-time for the Australian Public Service since 2007. In between writing and paid work, Yenn frequently gives talks about living well with Autism and mental illness. 

Lou and Yenn talk about behaviourism, Yenn's life growing up, the intersection of neurodivergence with mental illness, gender diversity and other related topics that Yenn has first hand experience with, as well as Yenn's experience when they spent some time in prison in earlier life. 

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Website: www.squarepegroundwhole.com.au

RESOURCES DISCUSSED DURING THIS EPISODE:

1. Yenn Purkis website: http://yennpurkis.com/

2. 

Please sign and share this petition to bring Collaborative Proactive Solutions to Australian Schools!
https://www.change.org/CPSinAustralianschools
Please write to Education Minister, Sarah Mitchell and request that CPS (Collaborative Proactive Solutions) be introduced to NSW schools: [email protected]

Call to Action: Towards the end of this episode, Sarah and Lou make a plea for listeners to contact the Minister for Education in WA.  Here's the contact details so that you can write to Minister Sue Ellery:
Address:

12th Floor, Dumas House, 2 Havelock Street, WEST PERTH WA 6005

Telephone:

61 8 6552 5700

Fax:

61 8 6552 5701

Email:

[email protected]

In this episode Lou and Dr Sarah Bernard talk about life growing up for Sarah and her discovery of her own neurodivergence.  They also discuss Sarah's blogs about Ableist School Reports and letters, Autistic play and Behaviourism.  They delve into a discussion about the Aged Care and Disability Royal Commissions and Sarah's career as a Geriatrician and they finish with a focus on WA, where Sarah lives and the sort of advocacy that parents will endeavour over the next little while.  A really uplifting and educational discussion with a beautiful and lovely person.

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Website: www.squarepegroundwhole.com.au

Resources discussed during this episode:
1. Tim Chan - Autistic Advocate, website: https://www.timhchan.com/

2. Dr Mary Dougherty, Founder, Autistic Doctors International, website: https://autisticdoctorsinternational.com/

3. Book: Neurotribes by Dr Steve Silberman: https://www.booktopia.com.au/neurotribes-steve-silberman/book/9781760294366.html?dsa=s1-east&gclid=Cj0KCQjwzqSWBhDPARIsAK38LY_xnqNsAMst4L0a-4TeBZtk_LmhtBMGWoYfs6GJNgLmN_3y935fPnIaAuSeEALw_wcB

4. Book: Neuroqueer Heresies by Nick Walker: https://www.wob.com/en-au/books/nick-walker/neuroqueer-heresies/9781945955266?gclid=Cj0KCQjwzqSWBhDPARIsAK38LY_GbwlSrP9XeyZszwJ05P-FDqq4x9QbwrIjhnYL7wOVAIHSwl1g0bcaApcfEALw_wcB

5. The Neurodivergent Doctor Blog - https://neurodivergentdr.wixsite.com/website

6. UK Report: Positive Behavioural Support in the UK: A State of the Nation Report  https://www.ingentaconnect.com/contentone/bild/ijpbs/2022/00000012/a00101s1/art00001?fbclid=IwAR0UHhrtfNHdoHViEYH3IKqEu7hNAmQErpMY7iMEJcjbSwRlWiHSo5ae7Zk

Please sign and share this petition to bring Collaborative Proactive Solutions to Australian Schools!
https://www.change.org/CPSinAustralianschools
Please write to Education Minister, Sarah Mitchell and request that CPS (Collaborative Proactive Solutions) be introduced to NSW schools: [email protected]

This is a long episode but worth every minute of your time!  Whilst this episode focuses on education and will be particularly useful to Queenlanders, there's messages, tips and knowledge shared here that is for anyone who needs to understand devaluation of people with disabilities, disability discrimination in education and really covers all the challenges we parents and teachers of Square Peg kids face as we constantly battle to break down the barriers of segregation, exclusion, behaviourism and devaluing  people with disabilities.

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Website: www.squarepegroundwhole.com.au

Resources discussed during this episode:

1. Social Role Valorisation - learn more about the courses you can attend here: http://www.asrva.org.au/

2, Community Resource Unit (CRU)  - https://cru.org.au/

3. Broadreach Training and Resources website - Norman Kunc and Emma Van der Klift
https://www.broadreachtraining.com/

4. Book: Being Realistic isn't Realistic by Norman Kunc

5. Youtube: The Right to be Disabled by Norman Kunc

6. Paper: The Stairs Didn't go Anywhere by Michael F. Giangreco

Please sign and share this petition to bring Collaborative Proactive Solutions to Australian Schools!
https://www.change.org/CPSinAustralianschools
Please write to Education Minister, Sarah Mitchell and request that CPS (Collaborative Proactive Solutions) be introduced to NSW schools: [email protected]

This episode is a conversation between two loving mums.  Lou talks to Jane Hancock, mum to previous guest, Shadia Hancock.  It's an honest, and cathartic chat and reflection of times gone by.  This episode will give young families hope, support and optimism for the future.   It was an absolute pleasure to talk to such a beautiful person and loving mum.

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Website: www.squarepegroundwhole.com.au

Resources discussed during this episode:


1. Autism Actually website: https://www.autismactually.com.au/

2. Positive Partnerships website: https://www.positivepartnerships.com.au/

3. Peter Hutton's Episode "Dancing in the Grey": https://www.squarepegroundwhole.com.au/episodes/dancing-in-the-grey-with-entrepreneurial-educator-peter-hutton

4. Shadia Hancock's Episode "Autism is Actually Awesome": https://www.squarepegroundwhole.com.au/episodes/autism-is-actually-awesome

5. Uniquely Human podcast with Barry Prizant and Dave Finch: https://uniquelyhuman.com/

6. Dr Emma Goodall on the Reframing Autism website: https://reframingautism.org.au/team/dr-emma-goodall/

7. Dr Mona Delahooke, ICAN Network, Reframing Autism (all featured throughout Square Peg Round Whole website, Facebook page and with episodes from all of these experts)

Please sign and share this petition to bring Collaborative Proactive Solutions to Australian Schools!
https://www.change.org/CPSinAustralianschools
Please write to Education Minister, Sarah Mitchell and request that CPS (Collaborative Proactive Solutions) be introduced to NSW schools: [email protected]

Lou has been working towards this interview for a long time and her determination has paid off.  She secured a meeting to introduce Dr Greene to the NSW Department of Education and staff from the NSW Education MInister's office.  Dr Greene will explain CPS (Collaborative Proactive Solutions) and advocated for NSW to move beyond behaviourism, and towareds neurodiversity-affirming teaching practices.  If NSW implement this, it will be the first state in Australia to take this huge step, which would bring students and families improved access to leaning and a sense of safety and belonging. 

In this episode, Lou and Dr Ross Greene  passionately argue in favour of the introduction of CPS in Australian schools. 

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Website: www.squarepegroundwhole.com.au

Resources discussed during this episode:

The Lives in the Balance, not for profit organisation founded by Dr Ross Greene: https://livesinthebalance.org/

NSW Behaviour Strategy: https://education.nsw.gov.au/student-wellbeing/attendance-behaviour-and-engagement/behaviour-strategy

Book: Lost at School by Dr Ross Greene
https://www.booktopia.com.au/lost-at-school-ross-w-greene/ebook/9781416583677.html?gclid=CjwKCAjwp7eUBhBeEiwAZbHwkThRerr0CVkUKwaZey_HUuRw2knGMVP3_5gBhLX7mohxVJjIukJzchoCBHsQAvD_BwE

Dr David Roy has lived through the worst trauma possible; knowledge that his son was allegedly abused whilst attending his special school aged 3 years old.  This episode shares shocking details but also the inspirational advocacy that came from it.  Lou and David discuss the events that led to David and his wife's drive for a Parliamentary Inquiry following the alleged abuse and neglect of their son and the ongoing agitation that David has found necessary to force change and reforms in NSW education.

There's also discussion of the Disability Royal Commission.  Please listen to the Family Advocacy podcast series, "Talking Disability Royal Commission"

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Patreon membership:  Patreon members receive early release of episodes and assistance with advocacy efforts.  If you would like to support me to pay for this podcast production and help me realise my dream to work more in this field, please feel free to become a patreon member:  https://www.patreon.com/squarepegroundwhole

Instagram: @squarepegroundwholepodcast
Twitter: @PegWhole
Website: www.squarepegroundwhole.com.au

Resources discussed during this episode:

1. Talking Disability Royal Commission with Family Advocacy podcast: https://podcasts.apple.com/au/podcast/talking-disability-royal-commission-with-family-advocacy/id1623103540

2. "Finding your Element" by Ken Robertson: https://www.booktopia.com.au/finding-your-element-sir-ken-robinson/book/9780143125518.html?source=pla&gclid=Cj0KCQjwmuiTBhDoARIsAPiv6L8k4cyHzvzAYTvbLBomcRqOZbLcHsWinWnDg0-JfFHnIqeAAdcY9yQaAudOEALw_wcB

3. "Teaching the Arts" by Dr David Roy, William Baker and Amy Hamilton: https://textbooks.zookal.com.au/products/teaching-the-arts-9781108552363?variant=34007253745796&gclid=Cj0KCQjwmuiTBhDoARIsAPiv6L9tgQxjn_BcQVZ-O7DnG5T6_Rq3dubTGKHVg1TIeUldtaQ8TsmKT1gaAoJtEALw_wcB

4. NSW Ombudsman Inquiry: https://www.ombo.nsw.gov.au/__data/assets/pdf_file/0018/47241/NSW-Ombudsman-Inquiry-into-behaviour-management-in-schools.pdf

Lou interviews Katrina and Kat from the Bridges Learning System.  On the same journey as Lou, moving away from behaviourism and towards neurodiversity affirming practices, these two clever women have created a wonderful curriculum for neurodivergent children.  The "Insight Sprites" take children through an affirming process where they discover neurodiversity and through interactions with the characters, learn to accept and embrace difference.  The curriculum has been developed with input and guidance from neurodivergent adults and can be accessed easily online, available to teachers, families and therapists.  The discussion moves from an overview of the curriculum, unpacking behaviour and even touching on the intersection of neurodivergence and the criminal justice system.  Finally Kat shares an extensive list of mentors and resources listed below and on the Square Peg Round Whole website.

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Patreon membership:  Patreon members receive early release of episodes and assistance with advocacy efforts.  If you would like to support me to pay for this podcast production and help me realise my dream to work more in this field, please feel free to become a patreon member:  https://www.patreon.com/squarepegroundwhole

Instagram: @squarepegroundwholepodcast
Twitter: @PegWhole
Website: www.squarepegroundwhole.com.au

Resources discussed during this episode:

1. Bridges Learning System website: https://bridgeslearningsystem.com/

2. Terra Vance and Neuroclastic website: https://neuroclastic.com/

Parts 1 and 2 of the Weaver and Concluder series https://neuroclastic.com/weavers-and-concluders-two-communication-styles-no-one-knows-exist/

The Identity Theory of Autism https://neuroclastic.com/the-identity-theory-of-autism-how-autistic-identity-is-experienced-differently/

Very Grand Emotions https://neuroclastic.com/?s=very+grand+emotions

3. Social Media accounts:

Fidgets and Fries https://www.facebook.com/fidgetsandfries
Free Matthew Rushin https://www.facebook.com/FreeMatthewRushin

4. Activist and Author:

Mia Mingus blog Leaving Evidence https://leavingevidence.wordpress.com/2015/02/06/medical-industrial-complex-visual/

5. Sources of Aggression checklist from We are like your Child

http://wearelikeyourchild.blogspot.com/2014/05/a-checklist-for-identifying-sources-of.html

6. OTs for Neurodiversity
https://www.facebook.com/neurodiversity.ot

7. Learn Play Thrive https://learnplaythrive.com/

8. Rachel Dorsey website https://dorseyslp.com/
Rachel Dorsey Facebook group https://www.facebook.com/dorseyslp

Finally the wonderful Chris Varney is on the podcast!  Lou and Chris talk about the foundation of the I CAN Network, Chris's life growing up, self acceptance and development of Autistic identity and how he learned that it's more important to be proud of what you CAN do than what you CAN'T!  If you haven't checked out the I CAN Network for the Autistic person in your life, you're missing out.

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Patreon membership:  Patreon members receive early release of episodes and assistance with advocacy efforts.  If you would like to support me to pay for this podcast production and help me realise my dream to work more in this field, please feel free to become a patreon member:  https://www.patreon.com/squarepegroundwhole

Instagram: @squarepegroundwholepodcast
Twitter: @PegWhole
Website: www.squarepegroundwhole.com.au

Resources discussed during this episode:

The I CAN Network website - https://icannetwork.online/

Eunice Kennedy Shriver - Book, "The Kennedy who Changed the World"
https://www.booktopia.com.au/eunice-eileen-mcnamara/book/9781451642285.html?source=pla&gclid=Cj0KCQjwjN-SBhCkARIsACsrBz7g1ga0uGz_xdtUiLK8im12DJdehvlrgQqOk_rBS-QiK9PTBPNR6BwaAjY6EALw_wcB

Circular Spectrum by Rebecca Burgess - https://the-art-of-autism.com/understanding-the-spectrum-a-comic-strip-explanation/