Staring Down the Storm: Autism Advocacy in America

Staring Down the Storm: Autism Advocacy in America

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Staring Down the Storm: Autism Advocacy in America episodes

  • We Keep Asking Families to Do the Impossible. With Tiffany Neal

    For years, we've been told that autism advocacy is about awareness. But what if awareness isn't enough anymore? What if the real challenge is building communities that actually support families, caregivers, and autistic individuals where they live—especially in places that often get overlooked?

    In this conversation, I sit down with Tiffany Neal, who brings more than two decades of experience in autism advocacy, to discuss the realities families face in rural Indiana and beyond. We explore the overlap between autism and the trans community, the barriers that exist in healthcare and education, and why so many parents are left feeling isolated while trying to navigate systems that were never designed with them in mind.

    We also tackle a bigger question: why are families still forced to fight so hard for basic support? From universal healthcare to better training for medical professionals, Tiffany challenges us to rethink what meaningful advocacy actually looks like. Are we creating systems that help people thrive, or are we asking families to carry impossible burdens on their own?

    Most importantly, we discuss the human side of advocacy. Real change doesn't happen through slogans or social media posts—it happens through relationships, vulnerability, teamwork, and showing up for one another. Because the truth is, disability touches every family eventually. The question isn't whether we'll need community. The question is whether we're willing to build it before we do.

    Learn more about Hands In Autism here: 

    Website: HANDS In Autism 

    Email: [email protected] 
    LinkedIn

    Chapters

    00:00 Tiffany’s Journey into Autism Advocacy

    05:08 Navigating the Trans Community and Autism

    14:16 Universal Healthcare and Its Impact

    21:17 Challenges in Rural Education for Autism

    28:10 Realities of Parenting with Autism

    32:57 Empowering Voices in Advocacy

    36:48 The Role of Caregivers and Community

    49:10 Building a Supportive Team

    01:00:05 Emotional Connections and Genuine Care


    Contact Tabitha:

    [email protected]

    https://tabithazeigler.com/

    1 hr 4 min
  • Building a More Inclusive Georgia. With Bella Bautista

    What does it mean to truly represent a community that has been pushed to the margins? That's the focus of my conversation with Bella Bautista, the Democratic nominee for Georgia House District 14. Bella shared her journey into politics, her experiences as a trans woman in the South, and her commitment to bringing a new generation of leadership to the Georgia State Capitol. We discussed why representation matters and the importance of having leaders with lived experience shaping public policy.

    Bella spoke about the challenges facing LGBTQ+ communities across the country, including her advocacy against anti-trans legislation and her fight for greater equality and inclusion. We explored environmental concerns, particularly the impact of expanding data centers on local communities, and the need for policies that prioritize people over corporate interests. Why do so many communities feel unheard while powerful industries continue to influence decision-making?

    Beyond her campaign, Bella discussed her nonprofit work supporting marginalized individuals, including those experiencing homelessness. We touched on healthcare access, disability rights, expanded Medicaid, and the importance of building stronger, more supportive communities. Throughout the conversation, Bella emphasized a core belief: real change happens when ordinary people step up, get involved, and fight to ensure that our government works for everyone—not just the powerful.


    Find more info on Bella Bautista here: 

    Website: Bella For GA

    Email: [email protected]

    Instagram

    Chapters

    00:00 Introduction to Bella Bautista

    03:09 Bella's Political Journey and Community Representation

    06:04 Challenges Facing the LGBTQ+ Community in Georgia

    08:54 Environmental Concerns and Data Centers

    15:01 Advocacy for the Unhoused and Marginalized

    18:02 Bella's Nonprofit Work and Community Impact

    23:57 Disability Rights and Advocacy

    26:54 Campaign Goals


    Contact Tabitha:

    [email protected]

    https://tabithazeigler.com/

    35 min
  • The Working Class Has No Party. With Andrew Rice

    What happens when the people who claim to represent us stop listening to the people they're supposed to serve? That's the question at the heart of my conversation with Andrew Rice, who is challenging a long-time incumbent and taking aim at what he sees as a Democratic Party more interested in maintaining control than creating real change. We talked about political disillusionment, corporate influence, and why so many working-class Americans feel abandoned by both major parties.

    Andrew didn't hold back. We discussed healthcare as a human right, the growing power of corporations, and the ways technology and AI are reshaping work while leaving ordinary people behind. Why are we expected to celebrate endless hustle, burnout, and exploitation as signs of success? Why do we accept a system that creates extreme wealth for a few while millions struggle to afford basic necessities?

    We also explored representation beyond slogans and campaign talking points. What does authentic representation actually look like? Is diversity meaningful if working-class voices are still shut out of the room? From LGBTQ rights to economic justice, Andrew argues that many of our biggest challenges are interconnected—and that addressing symptoms without confronting root causes will never be enough.

    Most importantly, we talked about the future. Real change requires community, collaboration, and people willing to challenge the status quo. It also requires something we don't talk about nearly enough: joy. Self-love, connection, nature, and even having fun can be radical acts in a culture designed to keep us exhausted, isolated, and doubting our own worth. What kind of future could we build if we stopped accepting less than we deserve?


    Find more info on Andrew Rice here: 

    Website: Rice For CT

    Email: [email protected] 

    YouTube

    Facebook

    Instagram

    BlueSky


    Chapters

    00:00 Challenging the Status Quo

    02:59 Personal Background and Identity

    06:09 Disillusionment with Political Parties

    09:02 The Role of Corporations in Politics

    12:10 Healthcare and Socialism

    14:56 The Impact of AI and Technology

    18:10 The Struggles of the Working Class

    20:58 Human Rights and Global Perspectives

    23:56 The Need for Authentic Representation

    45:42 The Struggle Against Systemic Injustice

    51:01 The Illusion of Political Representation

    56:31 The Need for Diverse Voices in Congress

    01:01:51 The Importance of Collaboration and Community

    01:18:01 A Vision for a Better Future


    Contact Tabitha:

    [email protected]

    https://tabithazeigler.com/

    1 hr 22 min
  • Connecting Through Podcasting: A New Era of Advocacy. With Carlos Gomez

    At what point do we stop pretending the system is working? That’s the question I kept coming back to in this conversation with Carlos Gomez, better known as Coconut Justice. Carlos walked away from corporate advertising and started using his creative skills to support grassroots political candidates, independent media, and real community advocacy. Why? Because too many people with power are protecting themselves instead of helping the people they claim to represent.

    We talked about education, activism, media manipulation, and why so many communities feel abandoned right now. Carlos made a point that hit me hard: we actually have far more power than we think we do — but we’ve been conditioned to stay distracted, disconnected, and exhausted. So what happens when people start building community instead of outrage? What happens when we stop waiting for permission to care?

    We also got into some deeply personal territory — identity, allyship, conversion therapy, race, class, and the importance of creating spaces where people can exist safely and authentically. Real dialogue matters. Compassion matters. And shaming people into silence has never created understanding.

    This episode is challenging in all the right ways. Because if we want a better society, we’re going to have to stop outsourcing humanity to politicians, algorithms, and culture wars. We have to start showing up for each other again.

    Find more info on Carlos at Coconut Justice here: 

    Website: Gomez Creative Labs

    YouTube: Coconut Justice Podcast & Videos

    Shop: Carlos' Store

    Facebook: Coconut Justice 

    Instagram: Coconut Justice 

    Twitter: Coconut Justice 



    Chapters

    00:00 Introduction to Carlos Gomez and His Journey

    06:02 Background and Early Life Experiences

    17:56 Challenges in Political Advocacy

    24:07 The Future of Advocacy and Change

    36:10 Challenging Rape Culture and Promoting Allyship

    40:13 The Role of Money in Social Dynamics

    41:37 Midwestern Resilience and Community Spirit

    44:41 Awakening to Collective Power

    52:08 Unmasking Hypocrisy in Society

    55:40 The Journey of Deconstruction

    01:06:20 Rethinking Representation

    01:11:49 The State of Our Communities

    01:19:10 The Importance of Compassion in Identity

    01:21:27 Challenging Conversion Therapy and Misunderstandings

    01:30:29 Creating Safe Spaces for Others

    01:39:09 The Value of Life Experiences


    Contact Tabitha:

    [email protected]

    https://tabithazeigler.com/

    1 hr 50 min
  • Your Life Gets Bigger the Moment You Leap. With Chad Ennis

    Chad Ennis doesn’t fit neatly into a box — and honestly, that’s the point. In this conversation, we talked about identity, travel, race, power, education, masculinity, and what happens when you finally stop performing the version of yourself the world expects. Chad shared stories about growing up as a first-generation Jamaican-American, the influence of his grandfather, discovering he had ADHD, and how travel completely disrupted the way he understood himself and other people.

    We also got into something most people avoid: what happens when you genuinely engage with people you deeply disagree with. Chad shared the story of sitting in a bar for hours with a self-proclaimed white supremacist. Not to “win” an argument. Not to perform morality. But to understand what actually creates these belief systems in the first place. Could more honest conversations change people? Or are we all just trying to soothe our own guilt while society keeps fracturing underneath us?

    This episode challenged me because it forces a bigger question: are we actually interested in growth, or are we addicted to being right? We talked about power, political exhaustion, social media cruelty, patriarchy, and why so many people feel psychologically crushed by modern life.

    And maybe the most important takeaway came at the very end: stop waiting for certainty. Say yes anyway.

    Chad’s Reading Recommendations: 

    Giovanni’s Room by James Baldwin

    Another Country by James Baldwin

    Lord of Dark Places by Hal Bennett


    Chapters

    00:00 Introduction to Chad Ennis

    06:00 The Journey of Self-Discovery and Education

    09:54 The Impact of Camp Indie and Community

    18:03 Navigating Race and Identity Abroad

    25:32 Unexpected Encounters: Conversations Across Divides

    31:14 The Impact of Abrasive Leadership on National Discourse

    39:04 The Evolution of Protest and Advocacy

    51:17 The Burden of Moral Responsibility

    56:58 Understanding Power Dynamics in Society

    01:07:21 Finding Balance Between Technology and Nature

    01:16:44 The Power of Curiosity

    01:22:54 Understanding the Roots of Anger and Insults

    01:29:11 The Role of Men in Challenging Patriarchy

    01:37:54 Transformative Literature and Personal Growth

    01:40:59 The Essence of Saying Yes

    Contact Tabitha:

    [email protected]

    https://tabithazeigler.com/

    1 hr 43 min
  • Campaign Debrief: Reflections From the Trail, and on the State of America

    Early this year, I decided to leave my job with the US Postal Service and become a candidate for Indiana's 8th Congressional District, in this fall's midterm election.

    With the primary on May 5th, I had roughly three months to get set up, attend events, gain recognition and most of all, learn what people were looking for in this district.

    It was one of the most fascinating and meaningful experiences of my life.

    At the final result, I placed 2nd out of four candidates, with just under 12% of the vote. I met so many people looking for real, meaningful and consequential change, people who are tired of the same old politicians, left or right, blue or red, beholden to money and special interests, and who simply do not operate in their constituents' best interests.

    These conversations, and the momentum therein, made this campaign so worthwhile. I was proud to be a truly independent, grassroots, self-funded candidate: a single mother of three young kids, who identifies as LGBTQ+, running a nimble, dynamic campaign outside the box.

    And so, roughly a week later, my Canadian friend Ted Cragg, who also happens to be the producer of this podcast, mentioned that he was curious to know what the campaign experience was like, what my takeaways were, ideas for where to go next, and to share that with our listeners, who would likely be curious as well!

    So we got together to record this campaign debrief.

    There is such a deep need for bold progressive candidates in the Democratic Party, but even more than that, we talk about the rigid structure of our political process: how the two-party "system" results in an almost complete lack of choice, where parties feel they have all the leverage, particularly their entrenched leadership. We talk about what it would look like to have legitimate third parties, perhaps as regional blocs, and independent candidates with true momentum and impact.

    Most of all, we talk about money in politics. If we could boil this country's problems down to one cause, this would be it. The tentacles of money and wealth wind their way through everything we do, influencing every system and every campaign.

    I'm not sure yet what for me the next step will bring, but the podcast will surely play a role, and I am so blessed and appreciative to have this platform to connect with all of you.

    Chapters

    00:00 Running a Unique Campaign

    05:21 Feedback from the Campaign Trail

    11:55 Challenges with the Democratic Party

    19:30 Emerging Progressive Candidates

    21:58 The Need for Unity Among the 99%

    28:53 The Case for Third Parties

    36:20 The Future of American Politics

    40:27 The Role of Money in Politics

    44:53 Historical Context and Diversity in America

    49:58 The Impact of Colonialism and Imperialism

    52:25 Accountability and the Epstein Files

    01:01:14 Finding Common Ground for Change

    01:06:29 What to Expect for the Future

    *Contact Tabitha:*

    [email protected]

    https://tabithazeigler.com/

    58 min
  • Autism Isn’t The Problem - Ignorance Is. With Brianna Newhart

    What happens when the life you built your identity around suddenly stops making sense? That’s what I talked about with Brianna Newhart — creator of “Recovered Republican” — and this conversation goes way beyond politics. We talked about grief, religion, autism, disability, misinformation, and the exhausting pressure so many people feel to perform perfection just to be accepted.

    Brianna shared how losing her first husband to COVID forced her to confront the cognitive dissonance she had ignored for years. Why are so many people more loyal to ideology than to facts? Why are empathy and science treated like partisan issues now? We also talked about the cruelty parents face when seeking support for neurodivergent kids, and why early intervention can completely change a child’s future.

    One thing I appreciated so much about this conversation is how direct Brianna is about autism and disability advocacy. Vaccines do not cause autism. Parents are not “causing” their children’s disabilities. And why are we still treating diagnoses like shameful labels instead of pathways to support? The fearmongering has real consequences, especially for families already carrying so much.

    We also got honest about masking, burnout, autoimmune disease, people-pleasing, and the emotional toll of trying to survive in systems that were never built with compassion in mind. At some point, we have to ask ourselves: are we building communities rooted in humanity, or just doubling down on division and fear?


    Find more info on Brianna, The Recovered Republican, here: 

    Facebook

    Podcast

    Substack

    YouTube


    Learn more about stuff mentioned in the episode below:

    American Speech-Langauge-Hearing Association (ASHA)

    Kaylin Partlow - Autism Advocate - Love on the Spectrum

    The World Health Organization (WHO)

    Chapters


    00:00 The Journey of Grief and Awakening

    07:40 Understanding Neurodiversity and Autism

    14:02 The Intersection of Advocacy and Personal Experience

    21:50 Addressing Child Safety and Abuse

    29:57 Living with Autoimmune Disorders and Neurodiversity

    41:56 Navigating Family Dynamics and Neurodiversity

    46:31 The Impact of Grief on Identity

    52:38 Understanding Early Intervention and Parent Guilt

    58:31 Debunking Myths Around Autism and Parental Responsibility

    01:01:03 Advocacy and Misinformation in Autism Awareness

    Contact Tabitha:

    [email protected]

    https://tabithazeigler.com/

    1 hr 10 min
  • The Disability System is Collapsing. With Taylor Hines

    I’m still thinking about my conversation with Taylor Hines where we didn’t sugarcoat a single thing. What’s happening to families navigating disability right now isn’t just frustrating—it’s unacceptable. Services are being slashed, hours reduced, and the people making these decisions? Many of them have never stepped foot into the lives they’re impacting.

    So I have to ask: who are these systems actually designed to serve?

    Taylor brought a perspective that hit hard: this isn’t just policy failure, it’s a values failure. When support drops from meaningful, consistent care to a bare minimum of hours, what are we really saying about these individuals and their families? That they’re too expensive? Too complicated? Not worth it? We talk a lot about “advocacy,” but how much of it is performative versus rooted in real, lived experience?

    We also got into the language we use, labels like “profound disability,” and how they quietly reinforce limitation instead of possibility. If we met people where they are instead of boxing them in, how different could outcomes look? And why aren’t the people writing policies required to witness that firsthand?

    At some point, we have to stop pretending this is just bureaucracy. This is about priorities. About greed. About who gets care and who gets left behind. I have to ask - what kind of society are we actually building here?

    *Find more info on Taylor here:*

    Connie's Clubhouse
    - https://www.conniesclubhouse.work

    Donate to Connie's Clubhouse active campaigns here!
    - https://givebutter.com/conniesclubhouse

    *Chapters*

    00:00 Autism Advocacy and Connie's Clubhouse
    05:51 Understanding the GI Bill and Educational Benefits for Veterans
    18:00 Changes in Behavioral Support Services and Funding
    29:49 Community and Government Responsibility in Disability Advocacy
    39:56 Navigating Sensory Challenges in Daily Life
    55:37 The Need for Real Advocacy and Representation
    01:07:57 The Role of Government in Disability Advocacy
    01:16:56 Navigating Bureaucracy and Advocacy
    01:23:42 The Impact of Medical Debt
    01:37:58 Empowerment Through Advocacy
    01:56:19 The Impact of Immigration Policies on Communities
    02:10:59 Navigating the Education System for Disabled Children
    02:22:10 The Need for Genuine Leadership and Empathy
    02:33:39 A Call to Action for Support and Connection

    *Contact Tabitha:*

    [email protected]

    https://tabithazeigler.com/

    2 hr 35 min
  • How Much Should a Parent Have to Fight to Keep Their Child Alive? With Erika Thomison

    I sat down with my friend Erica Thomison, and honestly, I’m still angry. Not at her—at the system. Because how is it that a mom with a master’s in social work, someone who knows how to navigate the maze, is still spending 20+ hours on the phone just to get life-saving medication for her son? What chance does anyone else uneducated in “the system” have? We say these things are in place to support families—but are they? Or are they quietly pushing people to the brink?

    Erica shared the reality of raising a child with complex needs—dialysis, transplant, constant advocacy—and what struck me most wasn’t just the medical journey. It was the bureaucracy. The endless finger-pointing between Medicaid and Medicare. The pharmacies that can’t “run the code.” The red tape that quite literally puts lives at risk. And we’re supposed to accept this as normal?

    Let’s talk about the part no one wants to say out loud: the mental toll. What happens when parents are already maxed out and then told to “try harder”? When survival mode becomes your entire identity? We’re not just failing families—we’re breaking them. And then we act surprised at the consequences.

    But here’s the other side of this conversation: community. The “village.” Spaces where you can say the hard things out loud without judgment. So I’ll ask you—who’s in your village? And if you’re drowning… Why are we still pretending you’re not?

    Find more info on Erika here:

    Independent Living for Adults with Disabilities

    Chapters

    00:00 The Parent Cafe Experience

    06:08 Navigating Medicaid and Healthcare Challenges

    10:06 The Impact of Dialysis on Family Life

    18:29 The Ongoing Struggles with Healthcare Systems

    31:38 Mental Health and Parental Challenges

    34:20 Navigating Parenthood in Crisis

    39:06 The Weight of Judgment and Fear

    44:03 The Role of Social Workers and DCS

    50:11 Misuse of Resources and False Accusations

    56:03 Rethinking Domestic Violence Interventions

    01:01:08 Building Community and Support Networks


    Contact Tabitha:

    [email protected]

    https://tabithazeigler.com/

    1 hr 5 min
  • From Fighting Fires To Fighting For Florida. With Bernard Taylor

    I sat down with Bernard Taylor, a firefighter turned congressional candidate, and this conversation didn’t feel like politics - it felt like a reality check.

    When you’re responding to 911 calls and seeing how people actually live, you don’t get to hide behind talking points. You see the consequences of policy failures up close. So why are we still letting politicians sell us stories instead of showing us receipts?

    We got into something that should be obvious but isn’t: stop listening to rhetoric and start looking at voting records. It’s all public. So what’s the excuse? Are we just too comfortable voting for the letter next to someone’s name instead of holding them accountable? Because if we don’t demand better, why would they ever change?

    And then there’s education. Are we really underinvesting in it by accident—or is it intentional? What happens when people start thinking critically, asking questions, and pushing back? That’s a threat to a system that benefits from people staying uninformed. Bernard didn’t sugarcoat it, and honestly, neither will I.

    We also went where most conversations avoid—immigration, detention centers, war, and the value we place on human life. Why is it easier to fund destruction than dignity? At what point do we admit this isn’t dysfunction—it’s design?

    So here’s the question: if not us, who? If not now, when?

    Find more info on Bernard Taylor here:

    Bernard Taylor For Congress

    • Facebook
    • Instagram
    • Tiktok

    Chapters

    00:00 Personal Journeys into Politics

    09:02 Community Organizing and Activism

    15:04 The Role of Truth in Political Discourse

    23:58 The Need for Change in Immigration Policies

    30:51 Representing the Working Class

    34:56 The Fight for Florida's Resources

    39:45 Integrity in Politics

    42:47 The Challenges of Campaigning

    45:34 The Importance of Diverse Voices

    51:13 A Call to Action for Change

    Contact Tabitha:

    [email protected]

    https://tabithazeigler.com/

    54 min

About Staring Down the Storm: Autism Advocacy in America

From the publisher's feed

Tabitha Zeigler hosts a fiery, truth-packed podcast filled with people doing the work in the trenches for autism and neurodiversity advocacy.

These everyday heroes are leading the way…