Confessions of a Rare Disease Mama

Stream of consciousness/ Roman turns FOUR


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Join me as I recap Roman's big FOURTH birthday celebration! I also look back on how amazing and difficult the past four years of being a mother have been. We have come a long way from where we started and I can say without a doubt that the person who is sitting here typing this is not the same person she was four years ago (in all the best possible ways)! 

Check out the birthday reel I posted in honor of my sweet boy turning four:  https://www.instagram.com/p/CixJmzSLQkl/

If you feel compelled, please donate $4 for Roman's 4th birthday to help fast track treatments for our babies (and all other babies fighting ASMD):  https://www.gofundme.com/f/save-roman-and-stella

As always, thanks for tuning in this week!

Resources & Links for this episode:

  • Buy Soaring Together: Amazon, Barnes & Noble, or locally at Bike Trail Books in Loveland and the Cincinnati Zoo Gift Shop
  • Learn more about our brave warriors: saveromanandstella.com
  • Support our family: GoFundMe
  • Follow us!
    • Instagram: @confessionsofararediseasemama
    • TikTok: @rare_mama
    • Facebook: Jillian Arnold & Confessions of a Rare Disease Mama
  • Get your FREE Positive Affirmations for the Medical Parent PDF here!
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Confessions of a Rare Disease MamaBy Jillian Arnold

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