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Tess has developed a new habit. It's about her breathing. And it seems like she may be trying to tell us something.
If you're from the Hao-Fountain community and you see behaviors that you're working to address, give me a shout: [email protected]
If you're like me, you're bombarded these days with articles all about the importance of regularly getting good sleep. My wife and I would do this if we could. But instead, we have children.
I have aged. Since the last time we were together, I've passed the half-century mark. And I have a few thoughts for ya.
Come spend a day on a snowy peak here in Maine. Come watch our Tess as she puts on her ski coat and hits the slopes once again.
Psst! Hey. You. Yeah. I'm talking to you. Can you help me?
Why, and how, we need your help to keep the foundation and our mission afloat.
Where to send people to donate: usp7.org/donate
Seven men. On foot over 183 miles total. Nearly 300 kilometers. Deep in the heart of Texas.
This marathon was to raise money for Hao-Fountain research. Thanks to all of you who've generously supported us so far. In case you haven't had a chance to donate yet, here's where you can do that: https://bit.ly/3vGHHIy
An invitation from across the Atlantic. And a return after many years to a city west of here. The city where it all began.
The bedroom of your teenage child. It's a refuge. Sacred territory. Never to be breached, unless specifically invited inside.
Our sweet Tess returns to the emergency room, for the THIRD time in a month.
From the publisher's feed
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7…