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Our sweet Tess returns to the emergency room, for the second time in a month. The latest in a long line of medical mysteries involving our girl.
You're familiar with Sam-I-Am, probably. Tess definitely is. But there's a new book on our shelf that has become her favorite.
We're holding an event next year and we're inviting some of the greatest minds in science. Think Real Genius meets Midnight Madness.
How do people with autism see the world? And what can we do to help them soothe themselves when they're in distress or discomfort?
There's another candle on the cake. Let's celebrate with our T-Bird, as we do each November.
It's been a difficult week here in Maine. Tess may not grasp what's happened, but she knows something's different.
Hitting you with episode three about the meetup in the mountains. My wife and I are in Denver, Colorado for a USP7 conference and it's our mission to get scientists wound up about helping us cure this thing.
More about the roundtable in the Rockies. My wife and I are in Denver for a USP7 conference and we're having a sitdown with a bunch of brilliant scientists.
From the publisher's feed
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7…