T21 Alchemy

In this episode, host Oneness Sankara shares how a personal family story became a spoken word musical through community workshops and collective storytelling.

From poetic notes born of isolation and exhaustion → conversations with SEND parents → first public sharing at Certain Blacks Afro Future Festival- to the being joined by and amazing creative team to rehearse and develop the piece and share at The Albany Deptford.

You'll hear:
• The moment her story became bigger than one family 
• Why theatre (not blog/talks) was right 
• How she protected privacy while staying authentic 
• Research themes: isolation, fighting systems, fear for futures 
• Why spoken word musical (X-Men revelation included) 

SHOW NOTES:

About T21 Alchemy (the play):
Spoken word musical exploring disability parenting, inclusion and African Caribbean British identity through a mother raising a T21 child.

TIMESTAMPS
00:00 Introduction to T21 Alchemy - the play 
02:30 Why this story needed telling 
05:45 Isolation disability parents face 
08:20 From poetic notes → full play 
11:15 Themes: unheard, judged, fighting systems 
14:30 Why theatre? Collective power 
17:00 Spoken word musical format 
19:45 Personal vs community voices 
22:30 Protecting family/community 
25:00 Afro Future Festival debut (clip) 
27:15 X-Men moment: possibility in diagnosis 

R&D CREATIVES
Writer/Performer: Oneness Sankara 
BSL Performer: Jacqui Beckford 
Dramaturg: Kwame Kwei-Armah 
Director: Matthew Xia 
Composer: Christella Litras 
Producer: Michaela Waldram-Jones 


Key Themes:
Disability parenting • African Caribbean identity • Theatre as activism • Creative process 

Connect:
Instagram: @t21alchemy @thepurposementor  
www.onenesssankara.com  

Supported by Arts Council England
T21 Alchemy podcast episodes and theatre R&D supported using public funding by Arts Council England.

Support the show

Stay connected with T21 Alchemy: @t21alchemy @thepurposementor on Instagram

Beyond the Paperwork: Celebrating Our Extraordinary Ordinary Kids | T21 Alchemy

Dragons on buses, bank card heists, hydrogen peroxide interrogations—this is the joy we're fighting for.

Host Oneness Sankara shares candid conversations with her son  (who has T21), flipping the script from advocacy fatigue to family brilliance. While other episodes tackle systems and struggle, E3 centres the chaotic, funny, precious moments that make parenting magic.

What happens:

• Bank card heist: independence meets audacity
• Hydrogen peroxide deep dive + dragons on London buses
• Rock collections + "Mummy dashed me out!" origin story
• Singing Hands memories + www.singinghands.com phase
• T21 Alchemy play excerpt
• Why admin shouldn't steal childhoods

TIMESTAMPS
00:00 Intro with son
02:30 Celebrating joy over struggle
05:15 Bank card heist story
09:40 Singing Hands memories
12:20 Apedemak conversations
18:45 Ordinary moments matter
20:30 T21 Alchemy play excerpt
22:15 Afro-touching moment
23:00 Don't let admin steal childhoods

Key Themes:
Extraordinary ordinariness - Joy amid advocacy - Kids' brilliance - Systems vs family time

Resources:
Singing Hands (Makaton) - Daniel Tiger's Neighborhood

Connect: @t21alchemy
Share your child's stories!

Supported by Arts Council England
T21 Alchemy podcast episodes and theatre R&D supported using public funding by Arts Council England.

#DownSyndrome #T21 #SENDFamilies #Inclusion #Parenting

Support the show

Stay connected with T21 Alchemy: @t21alchemy @thepurposementor on Instagram

Host Oneness Sankara talks with speech therapist Cathy Johnston from the Lejeune Clinic about what parents really need to know about communication for children with Down syndrome (T21).

What you'll learn:

• Speech vs communication—and why the difference changes everything
• Why speech carries such heavy emotional weight for families
• The anatomy behind Down syndrome speech challenges
• When "early intervention" actually starts (it's simpler than you think)
• Practical home tools: Makaton, visual supports, parent-child interaction
• Neuroplasticity truth: there's no "missed boat" for your child

Key takeaways:

• Your child communicates constantly, even without words
• Parent interaction > formal therapy for language growth
• Communication is everyone's job, not just yours
• You're doing enough. You're not alone.

Resources: Lejeune Clinic - Makaton - Hanen "It Takes Two to Talk" - Speech and Language UK

About Cathy Johnston: 20+ years as speech therapist specialising in under-5s with Down syndrome. Works with Lejeune Clinic + NHS, focusing on early intervention and family support.

TIMESTAMPS
00:00 Intro
00:53 Cathy Johnston introduction
02:40 Kathy's background
05:17 Parents' biggest communication worries
11:00 Speech vs communication
15:20 Why speech matters emotionally
20:00 Speech-biased society
23:00 Rhythm, music, vocalizing
27:00 Speech anatomy
30:00 Down syndrome speech challenges
32:00 Brain development/neuroplasticity
35:00 Early intervention reality
38:00 Parent advocacy balance
42:00 Communication as team effort
52:00 Makaton + visual tools
55:00 Parent-child interaction
60:00 Closing reassurance

#DownSyndrome #T21 #SpeechTherapy #SEND #Parenting

Resources Mentioned:

• Lejeune Clinic: www.lejeuneclinic.com
• Makaton:https: www.makaton.org
• See and Learn: www.seeandlearn.com
• Hanen Program (It Takes Two to Talk): www.hanen.org  
• Speech and Language UK: www.speechandlanguage.org.uk

Part of T21 Alchemy: Black SEND parenting, disability inclusion, and theatre storytelling.
Instagram: @t21alchemy

Supported by Arts Council England
T21 Alchemy podcast episodes and theatre R&D supported using public funding by Arts Council England.

Support the show

Stay connected with T21 Alchemy: @t21alchemy @thepurposementor on Instagram

Welcome to the T21 Alchemy Podcast; where lived experience meets creativity, advocacy, and radical inclusion.

In this debut episode of a brand new season, host Oneness Sankara introduces a groundbreaking creative project born from her journey as a mother to a phenomenal 8-year-old with Down Syndrome (T21). This podcast sits alongside a developing play, exploring disability, parenting, and inclusion through real stories and conversations.

In Episode 1, you'll discover:

• The moment that sparked the T21 Alchemy play
• Why representation matters: the absence of Black and Brown families in Down Syndrome narratives
• How Malcolm Gladwell's research on talent and achievement challenged everything about "developmental delays"
• The self-fulfilling prophecy of low expectations in disability education
• Why early milestones don't determine success
• A powerful excerpt from the play confronting ignorance and ableism

This podcast is for:
Parents, carers, educators, allies, and anyone committed to a more inclusive world that centres disabled families and communities.

About the Host: Oneness Sankara is an artist, advocate, and mother using creativity as a tool for liberation and systemic change.

📌 Subscribe for upcoming episodes featuring play excerpts, conversations with SEND families, and deep dives into community, dignity, and access.

#T21Alchemy #DownSyndrome #DisabilityAdvocacy #InclusionMatters #SENDFamilies #BlackDisability #CreativeActivism

Note: This episode contains a single instance of mild language within an excerpt from the play.

Supported by Arts Council England
T21 Alchemy podcast episodes and theatre R&D supported using public funding by Arts Council England.

Support the show

Stay connected with T21 Alchemy: @t21alchemy @thepurposementor on Instagram

This episode is a part of the T21 Alchemy Series, where we blend the magic of diversity, special needs, and conscious parenting to create a brighter, more inclusive world.


In this special bonus episode, we're lean into the transformative power of challenging our own perceptions and biases. Join me on a brief yet impactful journey as I share my personal experiences and insights on making a difference, one person at a time.

**Key Takeaways:**

1. The Ripple Effect: Learn how every small effort can create a ripple that leads to a more inclusive world. By challenging our own perceptions, we set an example for others to follow.

2. Walking in Someone Else's Shoes: I'll share an important moment from my own life where I confronted my own biases and stereotypes, highlighting the importance of empathy and understanding.

3. Practical Steps: Discover a practical step for breaking free from preconceived notions, embracing diversity, and actively contributing to a more inclusive society.

4. Your Role: Understand the significant impact each one of us can have in breaking down barriers and fostering a more open-minded, accepting world.

Join me in this short, thought-provoking episode as we collectively take steps to shatter stereotypes and build an inclusive world, one perception at a time. Together, we can make a difference.

Jingles by @jb.rose.singing.vegan.mum
Episode Ad libs by Apedemak Sankara

Support the show

Stay connected with T21 Alchemy: @t21alchemy @thepurposementor on Instagram

This episode is a part of the T21 Alchemy Series, where we blend the magic of diversity, special needs, and conscious parenting to create a brighter, more inclusive world.

In this brief and uplifting episode of T21 Alchemy Series, we're celebrating the magic of small wins and the incredible power of humour. Join me for a quick dose of joy as I share personal anecdotes that highlight the beauty of embracing these moments.

**Key Discussion Points:**

1. Embracing the Little Victories:** I share personal examples of small but significant milestones. These brief moments of triumph are truly worth celebrating.

2. Humor's Healing Touch: In facing the ups and downs of our journey's it is illustrated how laughter can be a source of strength.

3.Positivity in a Nutshell: Discover how recognising little wins can create a positive and supportive atmosphere, making these brief moments of celebration even more special.


This short episode is a burst of joy, emphasizing the beauty of every small win and the  touch of laughter. Join us for a dose of positivity and celebration in a brief yet delightful journey.

Tune in, and let's share the magic of small wins and the joy of laughter. 🎙️🌟

Jingles by @jb.rose.singing.vegan.mum
Episode Ad libs by Apedemak Sankara

Support the show

Stay connected with T21 Alchemy: @t21alchemy @thepurposementor on Instagram

This episode is a part of the T21 Alchemy Series, where we blend the magic of diversity, special needs, and conscious parenting to create a brighter, more inclusive world.

Embark on a riveting episode as Amber Rojas unfolds her amazing journey including extraordinary impact of her daughter's birth video; which went viral. We explore the layers of strength, healing, and the profound power of love in the face of adversity.

From Viral Births to Healing Hearts: A Journey of Love and Power with Amber Rojas

Key Discussion Points

1. Viral Births and Beyond:

Amber shares the intimate story behind the viral video of her daughter Amadeus's birth. Delve into the emotions, challenges, and unexpected moments that defined her multiple birth journeys.

2. Navigating a Heart Operation:

Hear firsthand about what it took to navigate a child's heart operation. Amber takes us through the highs, the lows, and everything inbetween

3. Handling Haters with Grace:

Being in the public eye, Amber discusses the challenges of handling the negativity from detractors and social media haters . Discover how she manages to rise above the noise, maintaining a positive outlook focused on what's best for Amadeus and the rest of her family.

4. Balancing Motherhood:

As a single mother raising five children, one with Down syndrome, Amber sheds light on the distinctive challenges and joys of motherhood. Discover her insights into creating a supportive and nurturing environment for all her children, especially Amadeus.

5. Lessons in Advocacy and Community Building:

Amber is a beacon of support within the special needs community. From cohosting virtual events to launching the "Diversity and Down" podcast, discover the lessons she's learned about advocacy, fostering community, and the transformative power of "getting comfortable by being uncomfortable."

Tune in for an emotional and empowering conversation that transcends the ordinary, as we explore the depths of Amber Rojas' journey—a journey marked by viral moments, heartfelt challenges, and the triumph of love with her beautiful family.

Follow Amber @justwhenyouthinkshesdown
Jingles by @jb.rose.singing.vegan.mum

Episode Ad libs by Apedemak Sankara

Support the show

Stay connected with T21 Alchemy: @t21alchemy @thepurposementor on Instagram

This episode is a part of the T21 Alchemy Series, where we blend the magic of diversity, special needs, and conscious parenting to create a brighter, more inclusive world.

In this heartfelt episode of The Purpose Pod: T21 Alchemy Series, we delve into the profound significance of cultivating inclusive communities for individuals with disabilities and their loved ones. Join us as we explore the transformative power of being seen and the freedom to express oneself without the need for apologies or explanations.

Key Discussion Point

This discussion highlights the importance of embracing authenticity and fostering environments where individuals feel empowered to express themselves without the burden of societal expectations or the need to justify their existence.

Tune in as we celebrate the beauty of inclusive communities and the freedom to express oneself authentically, fostering a world where everyone is seen, heard, and valued for their unique contributions.

Jingles by @jb.rose.singing.vegan.mum
Episode Ad libs by Apedemak Sankara

Support the show

Stay connected with T21 Alchemy: @t21alchemy @thepurposementor on Instagram

This episode is a part of the T21 Alchemy Series, where we blend the magic of diversity, special needs, and conscious parenting to create a brighter, more inclusive world.

Navigating Expectations and Celebrating Uniqueness (Bonus Episode)

In this bonus episode of T21 Alchemy, I embark on an introspective journey through the intricate world of comparison, expectations, and the unique challenges that parents of individuals with Down syndrome often face. We delve into the pressure to ensure that our children achieve, even as we emphasise the beauty of their individual journeys. 

Key Discussion Points:-

1. The Weight of Expectations: Exploration the societal pressures that parents encounter, regardless of their child's abilities, and the additional layers of expectations placed on parents of children with T21/Down syndrome.

2. Celebrating Uniqueness: The conversation highlights the importance of celebrating the unique journeys of individuals with Trisomy 21/Down syndrome and the incredible value they bring to our lives and communities.

3. Chasing Rainbows Excerpt: I dust off my acting skills and share a powerful excerpt from the play Chasing Rainbows that creatively illustrates the tension between societal expectations and the pursuit of authenticity and self-acceptance.

Tune in for a thought-provoking discussion on the complexities of expectations, comparison, and the celebration of individuality. Through storytelling and personal insights, I explore the beauty and resilience that emerge from embracing our unique paths and the extraordinary value that all individuals can bring to our world.

Support the show

Stay connected with T21 Alchemy: @t21alchemy @thepurposementor on Instagram

Welcome back to the T21 Alchemy series, where we embark on a journey celebrating the beauty of all things T21/Down syndrome, Special Educational Needs (SEND), and conscious parenting. In this episode, we have the privilege of speaking with Cristina Bowman, the remarkable founder of Diff-Ability CIC, who has recently been honoured with a Platinum Champions Award for her unwavering commitment to positive change.

Key Discussion Points:

• A Warm Welcome for New Families:Cristina shares her inspiring journey of leading the creation of a heartfelt welcome pack for families whose babies are born with Down syndrome. This thoughtful gesture provides much-needed support, guidance, and a sense of belonging to these families during a critical time.
• The Power of Representation: Our conversation delves into why representation truly matters.
• Navigating Life Post-Diagnosis: Explore the essential aspects of post-diagnosis signposting and support. Emphasising the importance of empathetic guidance.
• Challenging Infantilisation:Our conversation takes a look at the issue of infantilisation of people with Trisomy 21.
• Turning Adversity into Positive Action: Cristina's journey is a powerful example of transforming adversity into positive action. Learn how personal experiences fuelled her drive to make a meaningful impact in her community and beyond.
• Reviewing Outdated Acts: We explore the important topic of reviewing the abortion act and its implications for individuals with Down syndrome and their families.

Join us in this enlightening episode that celebrates strength, resilience, and the extraordinary journey of embracing diversity and inclusion. Whether you're a parent, advocate, or simply curious about creating positive change, this conversation will inspire and empower. Stay tuned for more remarkable stories as we continue our journey through The T21 Alchemy Series

Stay abreast of themes discussed @t21alchemy 

Connect with Cristina of Diff-Ability CIC 
@diffabilityCIC https://www.facebook.com/DiffAbilityC

Jingle @jbrose

Episode Ad libs by Apedemak Sankara

Support the show

Stay connected with T21 Alchemy: @t21alchemy @thepurposementor on Instagram