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For the second in a series of interviews with innovators in advocacy and business, Greg sits down with two powerful women from TSC Alliance - Kari Luther Rosbeck, President and CEO, and Lisa Moss, Vice President of Donor Relations. Kari and Lisa have dedicated their lives to helping individuals and families living with TSC, and they have become heroes within the epilepsy community.
In 2002, Kari founded the annual Comedy for a Cure in Los Angeles, providing much needed laughter to help raise money for TSC research. The event has grown to a highly-anticipated tradition that now raises over $500,000 each year with major comedians performing, and even Greg takes part on stage!
This episode discusses the importance of caregivers, the need to sometimes laugh to get through difficult times, how they raised major funding through charity events, the medical breakthroughs that TSC Alliance is funding and facilitating, and so much more!
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.
Legendary jazz saxophonist Wayne Shorter once said, "The word 'jazz' means to me 'I dare you. Let's jump into the unknown!'" On this episode, Greg sits down with chairperson and CEO of Jazz Pharmaceuticals, Bruce C. Cozadd as the first in a series of conversations with epilepsy innovators, including heads of pharmaceutical companies and charity organizations. Bruce, having a musical background as a master pianist, relates the improvisation, structure, and cooperation of jazz performance to the corporate development of new medication and therapies for patients in need.
They discuss taking risks, the transparency that is needed for a company in pharmaceuticals, and the importance of community and advocacy. Whether you have epilepsy or another condition, or you are a caregiver of somebody who does, it might feel like jumping into the unknown, but companies like Jazz will be there along the way.
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
In the third season premiere of "Talk About It," Greg flips the script and brings a friend of the show, internationally recognized DJ Hapa, to the studio to run the interview! This episode is very special, because not only is Hapa here to guide us, but Greg's son Jake is the one being interviewed. This is our first chance to hear Jake's story in his own words, the difficulties he has overcome, and the great unknowns he bravely ventures to solve.
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
In the Season 2 finale of "Talk About It!," Greg turns to some friends who happen to be famous faces: YVETTE NICOLE BROWN, CHRIS GORHAM, and the one and only MEREDITH VIERRA! You know them from their work on television, but they're also Caregivers in real life. Friends help support each other…. going through some of the same things we all face as caregivers. The many challenges of caregiving that do not discriminate. But talking, laughing, and crying about it sure makes it a lot easier…
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
Join Greg as he interviews Wendy Miller, a Dean at the Indiana University School of Nursing. Wendy talks about her experiences living with epilepsy and her exciting research to build a new "epilepsy library" to help people with epilepsy live their best lives.
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
Join Greg as he interviews two heroes of the epilepsy social sphere: @BrainAblaze and @TiffanyKairos. Plus, Greg shares his short list of epilepsy social must-follows. All this and more… The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
Greg talks about it with some of our amazing Twitter followers.
You will smile. You will cry. And you will laugh listening to these inspiring every day stories from our community about living - and thriving - with seizures.
We all learn from each other. Remember… You are not alone.
We will be hosting more Twitter Spaces soon for your chance to talk about it with Greg.
Talk About It – The Podcast is sponsored by SeizuresAreSigns.com.
This week the tough questions come from Greg's Twitter followers. What would they ask one of the top epilepsy doctors in the world? Their questions and Dr. Joe Sirven of the Mayo Clinic's answers will surprise you.
They tackle the differences between brand and generic medicines, holistic approaches to treatment, and what everyone should know about some of the most difficult aspects of epilepsy, such as SUDEP (Sudden Unexpected Death In Epilepsy).
Greg and Joe have a history you're going to have hear to believe. Greg's recent appearance on Joe's podcast and NPR radio show: "What's Health Got to Do with It?" wasn't enough. Listen now. (Available wherever you find your favorite podcasts, like this one.)
Talk About It with Greg Grunberg is sponsored by Greenwich Biosciences, the US leader in the field of cannabinoid prescription medicines.
Our show is produced by The 'Talk About It!' Company who is solely responsible for the content. Visit us at TalkAboutIt.org.
Greg Grunberg is joined by an amazing group of epilepsy advocates working together to create Seizure Smart Schools in their states and ultimately around the country:
Cyndi Crunk and her daughter Lyndsey championed Kentucky's Lyndsey Crunk Act in April 2018. Barbara Watkins, in loving memory of her daughter Samantha championed Texas' Sam's Law in June 2019. Colleen Quinn and her son Paul St. Pierre championed New Jersey's Paul's Law in January 2020.
Hear all of their amazing and inspiring stories and learn how you can help create seizure safe schools in your community.
Join their Facebook page/group: National Epilepsy Advocates for Seizure Safe Schools.
This podcast series is sponsored by Greenwich Biosciences, the US leader in the field of cannabinoid prescription medicines.
Talk About It with Greg Grunberg is produced by The 'Talk About It!' Company who is solely responsible for the content. Visit us at TalkAboutIt.org.
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