Talking Blood Cancer

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis welcomes Angela Daly, a Senior Social Worker at the Sunshine Coast University Hospital, and they discuss the challenges faced by patients diagnosed with blood cancer. Giving insights into her role in helping patients and their families navigate the complex healthcare system.

Angela shares the top priorities she addresses when meeting newly diagnosed blood cancer patients, emphasising the importance of understanding patients' support systems, their geographical location, and access to treatment facilities. Angela tells the difficulties faced by patients residing in remote areas who must travel extensively for treatment, and dealing with additional stresses such as financial costs and the complexities of coordinating care with existing family responsibilities.

Exploring the social worker's role in aiding patients to manage the emotional and logistical aspects of their diagnosis. Social workers help interpret medical information, connect patients with support services, and advocate on their behalf. Angela speaks on the value of fostering strong relationships with local and regional organisations like the Leukaemia Foundation, which play a pivotal role in providing support to blood cancer patients and their families.

Angela's personal experiences growing up in a remote area and her professional tenure at the Leukaemia Foundation grew her understanding of the healthcare needs of rural and regional patients. Her dedication to oncology social work is evident as she strives to make the cancer journey as manageable as possible for those affected.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis invites Alex Wilson to share his journey navigating the healthcare system following a diagnosis of blood cancer. Alex candidly discusses his experiences, offering insights into the practical challenges and emotional responses at the time of his diagnosis, especially as a young adult.

They delve into the importance of understanding the healthcare process and how familiarising oneself with basic medical terms, navigating appointments, and managing finances can significantly aid patients in their journey. Alex reflects on the need to be proactive in healthcare discussions, maintaining a sense of control in a situation that can often feel overwhelming.

Highlighting Alex’s resilience and practical approaches to dealing with cancer diagnoses, emphasising the importance of a strong support network of family and friends. He shares valuable tips on preparing for medical appointments, maintaining a sense of normalcy, and setting personal goals during treatment.

His transition from a 21-year-old man feeling invincible, to a mature adult facing a second cancer diagnosis with clarity and assertiveness. Alex’s story underscores how previous experiences can shape an empowered approach to subsequent healthcare challenges, promoting confidence in communication with healthcare professionals.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Eve Cossette about her experience with a diagnosis of acute lymphoblastic leukaemia (ALL). Diagnosed during the height of COVID-19 while living far from her family in Canada, Eve's journey offers insights into both the physical and emotional challenges of facing blood cancer.

Eve shares the unexpected nature of her diagnosis, which occurred at a time when she felt healthy and was renovating her new home in Melbourne with her partner. The initial shock, the communication hurdles during a pandemic, and the support she sought from close friends and her partner throughout this difficult time.

Eve reflects on the nuances of her treatment, which included managing intense side effects such as fatigue and mobility issues related to avascular necrosis (AVN), a condition she developed as a complication of her therapy. She discusses the importance of adapting to a changing physical condition and the critical role of a strong support network.

They then emphasised the significance of open communication with medical professionals, particularly in managing expectations around treatment and potential side effects like fertility. They also highlighted Eve’s mental health journey and the importance of psychological support and openness with loved ones.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this special episode of the Talking Blood Cancer podcast, hosts Kate Arkadieff and Maryanne Skarparis wrap up the season and reflect on an incredible year filled with impactful stories. They discuss the various conversations they've had throughout the year.

Kate and Maryanne share their appreciation for the healthcare professionals who have provided insights and support to the community. Emphasising the powerful and touching moments that have stood out in their discussions.

Addressing the impact of these stories on their audiences. Highlighting the messages they’ve received from listeners about feeling less alone, more understood, and better equipped to support loved ones.

Kate and Maryanne extend their best wishes for the festive season, expressing hopes for moments of joy, connection, and resilience. Thanking their listeners and the community for being part of this journey, acknowledging the strength and support that has been shared throughout the year.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Bhaskar Majumdar and his daughter, Urvi Majumdar, about their experience with blood cancer and the profound impact it had on their lives.

Discussing the complexities of Bhaskar’s journey, beginning with his initial diagnosis of acute lymphoblastic leukaemia (ALL) and the subsequent need for an allogeneic haemopoietic stem cell (HPC) transplant. Bhaskar shares his initial reaction to the diagnosis, the sudden and unexpected changes to his health. They also talked about the various complications Bhaskar faced post-transplant, including fluid in the lungs, infections, and the challenges of prolonged treatments, highlighting the unpredictable nature of recovery.

Urvi shares her perspective as the donor, recounting the emotional weight and concerns associated with the process. Emphasising the importance of a reliable support system and the unique emotional challenges that come with being a donor, such as the fear of potential COVID-19 exposure that could jeopardise the procedure. Both Bhaskar and Urvi mention the critical role of family support and the valuable assistance provided by the Leukaemia Foundation.

They reflect on the broader healthcare landscape, contrasting accessibility and systemic differences between countries. Bhaskar praises the collaboration of healthcare professionals in Australia and the practical support they received. Urvi's role as a National Ambassador for the Leukaemia Foundation was also highlighted and the importance of sharing their story to support others.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis is joined by Michael Burridge, who candidly shares his experience living with blood cancer.

Michael, a resident of Emerald, Queensland, recounts his life before diagnosis, working in the mining industry and living on a farm. He delves into the four years leading up to his diagnosis when he was misdiagnosed with various conditions such as Ross River fever. Michael then describes the severe pain that led him to the ICU, where advanced scanning technology helped identify his condition, leading to an immediate flight facilitated by the Royal Flying Doctor Service to Brisbane.

Michael shares the emotional and physical journey following his diagnosis with myeloma. From his initial treatment at Royal Brisbane Hospital to his ongoing outpatient chemotherapy, Michael details the significant role of healthcare professionals and support services. He acknowledges the support he received from the Leukaemia Foundation's accommodation and social workers, which played a pivotal role in his ongoing journey.

Michael's story shows the importance of remaining positive, staying engaged in physical activities, and maintaining strong social connections to aid in his treatment and recovery. Offering valuable insights and advice for others undergoing treatment for myeloma, and highlighting the benefits of a supportive network and maintaining a positive outlook.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff is joined by Siobhan Hoy to discuss her experiences living with blood cancer and the aftermath of her treatment.

Siobhan's journey with leukaemia, starts from her initial diagnosis at 14 to her experience with a relapse at 18. She opens up about the physical and emotional hurdles she encountered, the impact on her family, and the logistical difficulties of receiving treatment far from home. Sharing candid insights into how she navigated these challenges, including her role in her close-knit family and her decision to focus on being an aunt rather than having children of her own.

Siobhan shares her unique perspective on life after a bone marrow transplant. She talks about the challenges she faced, such as the development of graft versus host disease that initially attacked her skin and eventually led to lupus-like symptoms. Highlighting the difficulties in diagnosing post-transplant complications and the importance of effective medical support.

Kate and Siobhan talk about the emotional toll of long-term illness, with Siobhan describing how she managed judgement and misconceptions about her appearance due to her autoimmune disease and cancer scars. Emphasising the importance of communication, education, and humour in addressing such challenges. It shows Siobhan's resilience and adaptability, alongside her belief in the power of laughter and support from loved ones.

They conclude with a shared hope that their conversation will resonate with others facing similar struggles. Siobhan's story is one of strength and optimism, providing a source of comfort and inspiration for listeners.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis is joined by Rosie Proctor to recount her journey with acute myeloid leukaemia. Diagnosed in 1993 at the age of 32, Rosie shares the initial symptoms she experienced, including pain in her hip and a high fever, leading to her diagnosis.

Rosie elaborates on the challenges and emotions she encountered following her diagnosis, particularly during her bone marrow transplant, where she received her sibling's marrow. Despite developing graft versus host disease, she persevered through chronic fatigue and other health hurdles. Also delving into her coping strategies, such as journaling, music, and the unwavering support from her family and partner, which helped her manage anxiety and unease before and after her transplant.

Rosie's post-transplant journey, returning to work less than a year after her transplant. Rosie found purpose and fulfilment in helping others, particularly in operating theatres. Her story emphasises the importance of maintaining trust in medical professionals, the value of communication with the treating team, and the significance of emotional and practical support for patients and their loved ones.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network.

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis is joined by Dr Ralph McConaghy to discuss the important topic of having early conversations about serious illness and end-of-life decisions.

Dr McConaghy, who is the Medical Director of the Palliative Care Service at Wesley Hospital in Brisbane, emphasises the necessity of open communication with loved ones about potential outcomes and the end-of-life process. He believes that such discussions do not alter the outcome but can help individuals cope better with what lies ahead.

He shares his personal experiences and insights from his career in palliative care. He candidly talks about the emotional toll his work can take and the methods he employs to manage this stress, such as exercise, photography, and maintaining a sense of humour. He also reflects on the rewarding aspects of his profession, including the deep connections he forms with patients and the satisfaction of helping them find dignity and humanity during their final days.

They also centred around the misconceptions about palliative care. Dr McConaghy stresses that palliative care is not just for the final days or weeks of life but is crucial throughout the course of an illness for symptom control and emotional support. He discusses how supporting patients and their families with advance directives and resuscitation plans can provide much-needed clarity and comfort.

Dr McConaghy also touches on the transformative moments in his career, learning from failures, and the profound impact of discussing love and relationships with his patients. Highlighting how the dying can sometimes become a source of comfort for their loved ones, demonstrating remarkable strength and peace.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis is joined by Sage Wilder to discuss his personal journey with acute lymphoblastic leukaemia (ALL). Diagnosed in 2016, Sage details his experiences from the initial symptoms, including extreme fatigue and night sweats, through to his intense chemotherapy treatment and eventual bone marrow transplant.

Sage discusses the physical and emotional challenges he faced during his treatment, such as commuting long distances to the Prince of Wales Hospital for a clinical trial. He shares insights on how he managed these difficulties with the strong support of his family and friends, particularly highlighting his father's role as his bone marrow donor. Sage’s background as a rugby league player played a significant role in his determination to regain physical fitness post-treatment.

Exploring how Sage found therapeutic value in physical activities, like walking his dog on the beach, and gradually rebuilding his strength with the help of a coach. He talks about the importance of listening to his body and setting realistic goals during recovery. Sage’s story emphasises the critical role of maintaining a positive mindset and the therapeutic effect of staying physically active.

Moreover, Sage opens up about his concerns regarding relationships post-treatment and how he met his supportive partner at the gym. Together, they navigated challenges such as infertility caused by cancer treatment but found joy in the birth of their naturally conceived son, Ziggy. Sage concludes by expressing gratitude for being part of the conversation and offering support to those facing similar battles, reinforcing the message that there is light at the end of the tunnel.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network