That's So Chronic

Yay! It’s Tuesday! Which means a brand new episode of That’s So Chronic!

Today’s episode is with Ruby Quinn, and we are chatting about her diagnosis of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), endometriosis, and ADHD (attention deficit hyperactivity disorder). 

In this episode, Ruby starts by sharing her story of her ME/CFS diagnosis, and takes us through how she got a diagnosis amongst lockdowns, she describes her symptoms and how she manages them, as well as explaining how she navigated going to university at the same time. We then discuss her diagnosis of endometriosis, which - probably comes as no surprise to a lot of listeners - came with a bit of a negative experience of the healthcare system. And then, of course, we chat about all things ADHD and how this diagnosis fits into her life.

Feel free to connect over on IG and Tiktok, I’m @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Ahhhh!!!! WE’RE BACK! BRAND NEW EPISODES! Sorry for shouting but I’m SO EXCITED!

Welcome back! Today’s episode is with Allie Sharples, and we are chatting about her diagnosis of chronic inflammatory demyelinating polyneuropathy (CIDP), as well as being born with a cleft lip and palate. 

In this episode, Allie takes us all the way back to the beginning and explains the countless surgeries that she went through up until the age of 19. She then talks us through how even though she swore that she would never step foot in a hospital as a patient ever again, she ended up spending months there after suddenly becoming unwell at the end of 2021. Allie explains the diagnosis process of CIDP, how she manages her symptoms, and how life is looking for her now. 

Side note: big apologies for the knocking on the microphone throughout the episode! Allie’s story is so captivating, I’m hoping you will hardly notice :) 

Follow Allie on Tiktok: @alex__sharples

And connect with me on IG or Tiktok: @thatssochronic

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Welcome to That's So Chronic (or if you're a long time listener, welcome back!) a weekly podcast where Jess Brien (@jessssbrien) interviews people from around the world who are thriving - and sometimes only just surviving - with chronic illnesses, life changing injuries, and potentially disastrous diagnoses... all while having a laugh along the way.

You can expect new patient stories every Tuesday, and on the final Tuesday of the month, we chat about anything and everything that's in our That's So Chronic world. Whether that be a That's So episode focusing on a book, film, or another type of content, or a Spotlight On episode where we deep dive into a person or an organisation making waves in the chronic illness and disability space.

Follow on IG and Tiktok: @thatssochronic

Sign up to the free monthly newsletter on Substack: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

And feel free to reach out over at www.thatssochronic.com or send me an email: [email protected]

Episodes featured in the trailer (in order of appearance):

• Emily Spink & Crohn's Disease

• Abbie Madden & Congenital Glaucoma

• Oliva Odey & Complex Regional Pain Syndrome (CRPS) and Neural Sensitisation Syndrome

• Joshua Phillips & Obsessive Compulsive Disorder (OCD)

• Lee Weir & Type 2 Diabetes

• Hayley Sproull & Polycystic Ovarian Syndrome (PCOS)

• Sam Smith & Relapsing Remitting Multiple Sclerosis (RRMS)

• Tatjana & Attention Deficit Hyperactivity Disorder (ADHD)

• Carlyn Reed & Hodgkin's Lymphoma

• That's So: The Uncertainty Myth by Dr Toni Lindsay

• Spotlight On: Get Well Circus

• Spotlight On: Exsurgo

• That's So: Why Does It Still Hurt? by Dr Paul Biegler

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

It’s the final Tuesday of the month which means a That’s So episode! Today I am chatting about Dr Paul Biegler’s latest book Why Does It Still Hurt?

Throughout the book Paul begins to unpack the reasons behind why it might still be hurting, using his own chronic pain journey, as well as other patients’ stories, and interviews with some of the top pain researchers, scientists and doctors in the world.

In this episode, I sit down with Paul, and we talk about his process of creating the book, some examples of the studies, and why he made the transition from emergency medicine to journalism. 

Find out more about Paul: paulbiegler.com

Why Does It Still Hurt is available in stores and online, or at your local library. 

Don’t forget to connect over on Instagram or Tiktok, @thatssochronic. I always love hearing from you all! 

Sign up to the monthly newsletter: thatssochronic.substack.com

@thatssochronic | @jessssbrien | #ThatsSoChronic

If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email ([email protected]), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others

Hosted on Acast. See acast.com/privacy for more information.

Welcome back to That’s So Chronic! Today, after a couple of technical difficulties, I’m joined by singer songwriter Annie Vander, and we’re talking all about her diagnosis of complex regional pain syndrome (CRPS)

In this episode Annie shares the accident that subsequently changed the course of her career, the diagnosis process, her definition of CRPS, how she manages her symptoms, the inspiration behind her latest single Falling Into Nashville and I learn about an amazing therapy technique with a mirror. 

Also, a fun behind the scenes fact... I uploaded this episode using inflight wifi while I was on my way back to NZ from Australia. Wifi in the air will never not get old for me!!

Find Annie on Facebook facebook.com/AnnieVanderMusic and on Instagram: @annie_vander

And search ‘Annie Vander’ wherever you stream your music! 

Don’t forget to connect with That’s So Chronic on Instagram and Tiktok: @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Welcome to That’s So Chronic! Today’s episode is with Natasha Godetz, and we are chatting about her diagnosis of juvenile idiopathic arthritis and the journey that led her to a double hip replacement. 

In this episode, Natasha explains what it was like receiving a diagnosis when she was 10 years old, the effects university had on her health, the ups and downs of moving overseas and exploring the world on immunosuppressants (which side note does involve shingles, strep throat, a parasite, and dengue fever), the impact holistic health practices has had on her journey, and of course the big one… what it’s like having a double hip replacement at age 32. 

You can connect with Natasha on instagram @natashagodetz or on her website natashagodetz.com

And don’t forget to follow That’s So Chronic on instagram and tiktok! @thatssochronic 

Thanks for listening! See you next week!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

YAY! We’re BACK! Thank you for being so patient while I took a break for the summer holidays here in NZ! 

Today’s episode is with Shana Pereira, and we are discussing her heart and kidney transplant, and honestly, at times you will think it is actually the plot of a movie... But more on that towards the end of the episode!

In this episode Shana talks us through her story that starts on Christmas eve 2015, how she felt when she discovered that her kidneys were failing, how the organ transplant process works, and the series of events that led to a Christmas miracle in 2020. Shana also chats about the importance of faith, holding on to hope, and being the COO of your medical team. 

*content warning* Shana does discuss her near death experience, which may be uncomfortable for some listeners, so please take care while listening!

Connect with Shana here: shanapereira.com

And don’t forget to follow That’s So Chronic on Instagram and Tiktok: @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Hello! Here is a sneaky lil bonus episode to finish the year! A 2022 That’s So Chronic wrapped episode, if you will! 

I thought why not lean into the end of year vibes, and share 22 moments that have made up my (and the pod’s!) 2022. These are mostly highlights and achievements that feel fun to celebrate, with some challenging aspects thrown in too.

If you would like to support the work I do here at That’s So Chronic by “shouting a coffee” you can do that here: www.jessbrien.com/shoutacoffee 

But another way to support the pod (and it REALLY helps!!!) is to press follow wherever you’re listening from today. 

In the meantime, while you’re waiting for new episodes in the New Year, don’t forget to follow That’s So Chronic on Instagram and Tiktok as well @thatssochronic 

And sign up to the newsletter on Substack right here: thatssochronic.substack.com 

THANK YOU SO MUCH for being here listening! As always it is a pleasure to be in your ears every week. 

See you next year!

@thatssochronic | @jessssbrien | #thatssochronic

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

It’s the final (regular) That’s So Chronic episode of the year! How is that even possible!? Seeing as it’s the final Tuesday of the month it’s a That’s So episode. Today we are chatting about the two latest films to be released on Netflix all about serial killer Charles Cullen. It is of course The Good Nurse and Capturing The Killer Nurse

…and I have got a lot of fun facts to share with you all!!!

The Good Nurse is directed by Tobias Lindholm and stars Jessica Chastain and Eddie Redmayne. “Nurse Amy Loughren is shocked when Charlie Cullen, one of her colleagues, is found responsible for the murder of dozens of patients over a period of sixteen years, across two states and nine hospitals, without being charged.”

Capturing The Killer Nurse is a documentary film directed by Tim Travers Hawkins and “reveals how investigators proved ICU nurse Charles Cullen was killing patients — and how close he came to getting away with murder.”

All the links!

Amy Loughren’s website: amythegoodnurse.com and socials @amythegoodnurse

The Atlantic article by Shirley Li

New York Times article by Dave Itzkoff

Two interesting interviews with Tobias Lindholm in WhyNow and Deadline

Jessica Chastain’s interview with IndieWire  

Find That’s So Chronic on IG and Tiktok: @thatssochronic and don’t forget to sign up to the newsletter: thatssochronic.substack.com 

Thanks for listening! Love ya!

@thatssochronic | @jessssbrien | #ThatsSoChronic

If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email ([email protected]), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others

Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! Welcome to That’s So Chronic. Today’s episode is with Olivia, who shares her journey navigating symptoms and trying to find a diagnosis. Olivia has been diagnosed with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) but refers to that as a blanket diagnosis that doesn’t really explain the full picture.

In this episode Olivia talks us through her symptoms that started about a year ago, how her medical team arrived at the diagnosis of ME/CFS, how she feels when she gets told she isn’t “bad enough” to warrant further testing, how she manages university study including the importance of lecture recordings, and we learn about her love for grocery shopping!

As always, feel free to reach out over on Instagram or Tiktok, I’m @thatssochronic

And thanks for listening! You’re the best!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.