That's So Chronic

Welcome to That’s So Chronic! Today’s interview is with Sean Prenter, and we’re talk about his experience living life after sustaining a traumatic brain injury.

In this episode, Sean talks us through the moment when he fell off a balcony, the recovery process, as well as how recovery looks when you’re a student, how he managed to complete a goal by being able to ski again, and why he wants to share his story. 

Sean is also a co-founder of the Otago Disabled Students’ Association (@otagodsa on instagram, and facebook) so of course we chat about that too.

But just a heads up, there is little issue with the sound quality in this episode compared to other episodes. I hope you don’t mind! 

SIGN UP TO THE FREE THAT’S SO CHRONIC NEWSLETTER: thatssochronic.substack.com (Sorry for shouting, I'm just excited!)

And as always, you can find TSC over on instagram and tiktok: @thatssochronic

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Yay! It’s Tuesday! Which means another interview here at That’s So Chronic. Today we are heading to the UK, and hearing from Rosie Wilson. Rosie is living with a diagnosis of coeliac disease and multiple sclerosis (MS) which is what we are chatting about today.

In this episode, Rosie takes us through her coeliac diagnosis (as well the important questions like what her final meal would be if suddenly the world ended in the next five minutes) before getting to the big one: when she started experiencing symptoms of MS, the four day hospital stay that resulted in a diagnosis, her treatment plan, what she has had to change, and the pressure that comes with being a teacher.

Rosie offers a unique perspective, as she hasn’t been living with her diagnosis of MS for very long, and I really appreciated her willingness to share her story while she was still coming to terms with it herself.

You can find Rosie on instagram: @cynicalcoeliac

And as always, you can find me over on instagram & tiktok: @thatssochronic

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Welcome back to That’s So Chronic! Today I was able to sit down with Amber Tresca from the AboutIBD podcast to talk about her diagnosis of ulcerative colitis.

In this episode Amber talks us through her diagnosis of UC, the effects not having insurance had on her level of care, the decision to go through with J-pouch surgery, why she does the work that she does, and some excellent advice for anyone out there who has just been diagnosed with a chronic illness. 

If you want more of Amber (don’t blame ya!) make sure you check out her podcast AboutIBD, her website aboutibd.com and over on social media (instagram @about_IBD, and facebook & twitter @aboutIBD)

The link to find out more about IBD Moms is here: ibdmoms.org

And don't be afraid to reach out - you can find me over on instagram and tiktok: @thatssochronic 

Thank you for listening. If you enjoyed this episode, why not share it with someone who you think would enjoy it as well! 

Have a great week!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! Welcome back to That’s So Chronic! Today I was able to sit down with Ben Hampton from A Gluten Free Podcast to talk about his diagnosis of coeliac disease.

In this episode Ben runs us through his journey to a diagnosis, what coeliac disease even is, the somewhat silver lining of being diagnosed in the middle of a global pandemic, what he’s found the most difficult, and the importance of finding a community.

You can listen to Ben over on A Gluten Free Podcast wherever you listen to your pods, and connect with him over on instagram @a.gffamily and on tiktok @aglutenfreefamily 

And you can find me on instagram and tiktok: @thatssochronic. I love hearing from you so don't be afraid to reach out.

Thanks for listening and supporting! Don’t forget to press follow and leave a review. You’re the best! 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday friends! For today’s Spotlight On episode, I’m chatting to Richard Little from Exsurgo - A company that combines neuroscience, engineering and data analysis to help treat a range of neurological conditions without the use of pharmaceuticals.

In this episode we’re talking about what inspired Richard to begin working in this space, his definition of chronic pain, what the latest piece of technology Axon is all about, and some advice for anyone out there with an idea to make a change in the medical industry.

Don’t forget to head to their website www.exsurgo.com for more information, and keep an eye on their social media (instagram, facebook, twitter and linkedin) @exsurgoneuro.

The Spinoff article I mentioned at the beginning of the episode: thespinoff.co.nz/partner/25-08-2021/fighting-chronic-pain-by-controlling-brain-waves

If you have a company, product, or exciting venture you would like to talk about on That’s So Chronic, send me an email: [email protected]

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

We made it! It’s Tuesday! Another That’s So Chronic episode! Today we are hearing from Cheyenne Welham, and we are talking about her diagnosis of hypermobile ehlers danlos syndrome (hEDS) and living life with an ostomy bag.

In this episode Cheyenne explains what EDS is, the 10 year journey to her getting a diagnosis, the life changing decision to go through ileostomy surgery, the toll this has had an her mental health, and why she’s dedicated to sharing her story. 

If you would like to find out more about Cheyenne, you can head to her instagram: @cheyber_space

And you can find me on instagram and tiktok: @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! Welcome to That’s So Chronic! Today I was able to catch up with Megan, to talk about her diagnosis of vulvodynia, endometriosis and adenomyosis.

In this episode Megan talks us through her diagnosis story, what it was like being a part of the PIPI programme at Burwood Hospital, the importance of finding a good GP, her experience navigating the private v public aspect of the NZ health system, and everything in between! 

Megan shares her story so openly, and I’m grateful that I could help her share her story with all of you.

If you’re a new listener - Hi! Welcome! I would love you to hit that follow button (and maybe even a cheeky 5 star review?!) wherever you’re listening. Love you the most!

You can find That’s So Chronic on instagram and tiktok: @thatssochronic

See you next week! 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

YAY! WE’RE BACK! Today’s episode is with Logan Donnelly (@_kiwidad) and we are chatting about his diagnosis of secondary hypogonadism, and what that means for his fertility. 

In this episode Logan talks about his diagnosis, the decisions he made in regards to treatment, how wildly different specialists’ opinions can be, why he poured so much time and energy into becoming an expert on his own condition, and what motivated him to keep trying even though a lot of people were saying it wouldn’t be possible. 

You can find Logan on instagram: @_kiwidad  

You can also join the testosterone replacement New Zealand facebook group here: https://www.facebook.com/groups/730371087688492

And if you're interested in hearing more about Logan and Charlie's birth story, listen to his interview over on Kiwi Birth Tales

Make sure you're following That’s So Chronic on instagram and tiktok: @thatssochronic, and don’t forget to press follow on Spotify or Apple pods if you’re new around here! 

PS… Thanks for being patient while I took a little breather, it’s so good to be back! 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday friends! Yep, another PSA… Interviews are going on a little break while I get caught up again! Thanks for being so understanding. I hope you don't forget about me and That's So Chronic! 

But, this reminds me… Here’s the application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Don’t forget to sign up to the free monthly newsletter: thatssochronic.substack.com

Aaaaand follow That’s So Chronic on instagram & tiktok: @thatssochronic

Miss you already! See you soon xx

@thatssochronic | @jessssbrien | #thatssochronic

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! Welcome back to That’s So, a monthly series here at That’s So Chronic where we get to chat a little bit deeper on a piece of content (book, film, interview, etc!) that’s in our That’s So Chronic world. Today… The Invisible Kingdom by Meghan O’Rourke.

The Invisible Kingdom - Reimagining Chronic Illness, blends New York Times best seller Meghan O’Rourke’s own experiences of searching for answers/a diagnosis, as well as interviews between health professionals, patients, researchers, and public health experts, to unpack “invisible” illnesses. 

In this episode we get to hear from Meghan to learn about what goes into writing a book, what the response has been, and similarities between the New Zealand and American health system (sorry, but WHY are we still using FAX MACHINES?!) This book took me on a ride, and I can’t wait to share my thoughts with you all!  

“The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.”

“Remarkable.” – The New York Times

Follow Meghan O’Rourke on twitter and instagram: @meghanor, and over on facebook. You can also find out more at: meghanorourke.com

Add The Invisible Kingdom to your GoodReads, and purchase your copy online, on Google Books or Kindle, or borrow from your local library.

@thatssochronic | @jessssbrien | #ThatsSoChronic

If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email ([email protected]), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.