That's So Chronic

Happy Tuesday! As always it’s such a treat to have you here. Today I am sitting down with Sarah Cahill to talk about all things chronic migraine.

In this episode Sarah explains what chronic migraine is (spoiler alert… it’s not *just* a headache!), what inspired her to start sharing her story on her blog www.migrainedownunder.com, how she manages migraine attacks, what treatments are out there (and whether they’re available in New Zealand…) and then we get to hear all about the work she’s doing starting a not-for-profit incorporate society for people living with migraine.

For more information: migrainefoundation.org.nz

Sarah’s blog: migrainedownunder.com 

And don’t forget to follow the Migraine Foundation Aotearoa New Zealand on Facebook and Instagram 

Aaaaand of course, make sure you’ve pressed follow wherever you’re listening from and leave a 5 star review! Thank you! Love you the most!

You can find me over on instagram and tiktok, I'm @thatssochronic

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Welcome back to That’s So Chronic! Today I am chatting to the CEO of AEPIOS - a free and secure online platform that helps connect people with a shared diagnosis to one another. But what people might not know is that Christina is living with fibromyalgia and chronic migraine herself, and that’s what we’re chatting about today.

In this episode Christina talks us through getting a diagnosis, how she managed her symptoms while studying in a double PhD programme, the challenges moving states has had on her treatment plan, and of course the story of how AEPIOS came to be. 

If you would like to know more about AEPIOS, check out their website: www.aepios.com

And if you would like to know about That’s So Chronic, you can find us on Instagram and Tiktok: @thatssochronic 

Don’t forget to press follow, and leave a 5 star review! That REALLY helps and I will love you forever for it! 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Well hello! Welcome back to That’s So Chronic. Today you are in for a treat as we get to know Dr Kevin J. Payne, and he talks us through his diagnosis of multiple sclerosis, or more commonly known as, MS. 

In this episode Dr Payne talks about the journey of finally getting a diagnosis (and a name!) for his symptoms, how he manages these symptoms, what has inspired his work at yourlifelivedwell.co (including writing his book), he teaches me some new information about stress, and then we get to the big one… How and why he became a pro skydiver.

…I KNOW! I told you you were in for a treat!

For more information about Dr Payne and the work he does, check out yourlifelivedwell.co, find him on instagram at @yourllwell and @drkjpayne, or listen to his podcast (just search “Your Life Lived Well”)

And if you’re after that embarrassing bungy jump video… you’ll have to come and find me on Instagram or Tiktok, I’m @thatssochronic

As always, it’s a pleasure to be in your ears! See you next week!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Hello favourite people! Welcome to That’s So Chronic! Today we’re chatting about irritable bowel syndrome (IBS), polycystic ovarian syndrome (PCOS) and premenstrual dysphoric disorder (PMDD) with Emma Maguire.

In this episode Emma shares the road to getting these diagnoses, how sometimes implementing an immediate management strategy like a FODMAP diet is just a little bit unsustainable, what it’s like living, performing and working with multiple chronic illnesses, and some advice for pre diagnosis Emma. 

Find Emma on instagram @em_ma_maguire and on twitter @eph__em__era 

If you have any thoughts or feels don’t be afraid to reach out! I’m @thatssochronic on instagram and tiktok!

(Also, if you made it to the end and did that special favour, thank you SO much!!!)

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

It’s the final Tuesday of the month which means a That’s So: episode! Today I’m chatting with Miranda Allen and we are talking about the award winning documentary Unrest and all things myalgic encephalomyelitis (ME/CFS)

Unrest was created by Jennifer Brae who is an independent documentary filmmaker based in LA. Jennifer was studying towards her PhD at Harvard, when suddenly a mysterious illness left her bedridden. She decided to turn the camera on herself, and document the process. What unfolded over the next few years was an eventual diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome. 

Stream Unrest now: https://unrest.film or on Netflix  

And as promised, here is Miranda’s appearance on Penn & Teller’s Fool Us: https://www.youtube.com/watch?v=CfGGIQbsrrE ... I TOLD YOU you had to see it to believe it!!

Let’s keep the convo going over on Instagram and Tiktok, I’m @thatssochronic

I actually love making these That’s So episodes! So thank you for listening!

@thatssochronic | @jessssbrien | #ThatsSoChronic

If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email ([email protected]), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! Welcome back to That’s So Chronic! Today’s episode is with Rosie Roulette, and we are chatting about hypermobile ehlers danlos syndrome (hEDS), fibromyalgia, suspected postural orthostatic tachycardia syndrome (POTS), a little bit of endometriosis, and the moment when Rosie discovered they had a rare form of brain tumor (colloid cyst).

In this episode Rosie talks about how these diagnoses can to be, as well as how they have shaped their creative practice, what inspires them to be so open about chronic illness and disability, and whether that surgeon was right… Would Rosie ever be a dancer again?

You can find Rosie on instagram and facebook: @rosieroulette 

As well as their chronic illness cabaret: @chroniccabaret

And of course, you can find me on instagram and tiktok: @thatssochronic 

Rosie was the year above me at drama school and being able to chat to them now about their journey was a great check in for me to remember that we really have no idea what’s going on behind the scenes for people, even people that we might see every single day. 

PS there are some weird tech issues throughout this episode, so it’s not your headphones breaking! Sorry! Xoxo

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Hello favourite people! Welcome back to That’s So Chronic! Today we are heading all the way over to New York and hearing from Eh-den Perlove!

Eh-den is living with a diagnosis of the rare autoimmune condition scleroderma, which affects the connective tissues in the body, so aka, almost everything.

In this episode Eh-den takes us through the journey of actually getting a diagnosis, how scleroderma affects her and how she has had to accommodate, she also gives us a run down of the 12 specialists (!!!) she sees regularly, and to be honest she just really gives us an insight into what it’s like living with a chronic illness. 

As scleroderma is a rare condition, if you’re listening and you too have scleroderma and you feel comfortable reaching out, we would love to hear from you! 

For more info on SheNYC Arts: shenycarts.org

And for more info on this podcast you can find That’s So Chronic on instagram & tiktok: @thatssochronic 

Aaaaaaand click here to share your story!! https://forms.gle/csebLkwfwAjiLApK9

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday friends! Welcome back to That’s So Chronic. Of course I’m bias, but you are in for a treat this episode! I get to sit down and chat to my friend Laura Sheridan all about her diagnosis of multiple sclerosis (MS)

In this episode Laura explains how her MS diagnosis came to be, how she navigated traveling around South East Asia so soon after that diagnosis, her experience changing to different treatments, and the big one: moving to NZ from Ireland and having to manage visas, doctors, insurance, as well as her MS. 

You might recognise Laura from her previous That's So: episode where we discussed Adam Kay’s book This Is Going To Hurt!

Don’t forget to head to @thatssochronic on instagram and tiktok to see some BTS goodies!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! Welcome back to That’s So Chronic! Today I am talking to Tori Joy Geiger following the release of her first book From Vulnerable To Victorious. Tori was born with a congenital heart defect, more specifically ebstein's anomaly, but as you can imagine her story doesn’t just end there.

In this episode Tori talks us through her open heart surgeries (her first being when she was just 4 days old!) the basketball game where she was whisked off in an ambulance, her tips and tricks to exercising with a CHD, what inspires her to share her story so openly, and the funny moments she finds herself in when doctors discover she doesn’t have part of her subclavian artery in her left arm.

You can find Tori on instagram @torijoygeiger, as well as over on her website torijoygeiger.com

And if you’re interested in finding out more about her book From Vulnerable To Victorious, you can order your copy here: www.amazon.com/dp/B09J43644Q

If you have any thoughts, you want to reach out or you would like to see a little more behind the scenes snippets of That’s So Chronic, head to @thatssochronic on instagram and tiktok!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Ideas for That’s So episodes: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday friends! Welcome back to another episode of That’s So Chronic! Today’s episode is with Hannah Queenan and we’re chatting about her diagnosis of Type 1 Diabetes, as well as the process of becoming a new mum.

Pop in your headphones and get ready!

In this episode Hannah shares so openly her experience of being diagnosed Type 1 in her twenties, the grieving process that comes along with that, how she felt starting insulin injections, how it works when you’re pregnant with type 1 diabetes, the importance of a support group, and Hannah talks us through the birth of her adorable baby that didn’t quite go to plan.

I feel so honoured that Hannah chose me and That’s So Chronic to share her story with today, and I’m so grateful our mutual friend was able to connect us! 

If you have any thoughts, you want to reach out or you would like to see a little more behind the scenes snippets of That’s So Chronic, head to @thatssochronic on instagram and tiktok!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Ideas for That’s So episodes: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.