We are all patients, but only one has come to be recognized as the face and voice for a growing community of activists encouraging the rise of participatory medicine. My guest today is a cancer survivor and patient advocate, Dave deBronkart, better known as e-Patient Dave.br /
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The evolving field of health medicine has many challenges, but having patients pro-actively participate in their medical decision-making shouldn’t be one of them. As an industry that has historically relied on the one-sided expertise of physicians, technology and the internet have fundamentally changed the game. Patients have much greater access to information than ever before.br /
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So why then is it still so difficult to get patients to take charge of their health? As it turns out, e-Patient Dave believes there is a science to patient engagement and behavior change that is not too different from how we describe the mechanism of action of a drug. On this episode, Dave shares what this means, what he has learned in his own personal journey on battling the ugly “C” word, what he believes is the fundamental difference between a patient and consumer, and what we need to do going forward so that patients play a more central and active role in their care.br /
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I found this conversation to be both inspirational and informative as I hope you will too. e-Patient Dave is an inspiring human being who believes the voice of the patient needs to be heard around the world. All this and more on today’s episode.br /
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Now, That’s Unusual.br /
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Visit www.thatsunusualpodcast.combr /
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ABOUT “e-Patient” Dave deBronkartbr /
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Dave deBronkart, better known as e-Patient Dave, was diagnosed with Stage IV kidney cancer in January of 2007. The best information gave him just 24 weeks to live, and with tumors in both lungs, several bones and muscle tissue, the prognosis was grim.br /
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Lucky enough to be connected with an academic medical center, Boston’s Beth Israel Deaconess, he received superior care that leveraged the best available research. Once it was clear that he had beaten the disease, deBronkart became an activist, seeking to open the healthcare information system directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed and used by the patient.br /
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Dave is the author of the highly rated Let Patients Help: A Patient Engagement Handbook and one of the world’s leading advocates for patient engagement. After beating stage IV kidney cancer in 2007 he became a blogger, health policy advisor and international keynote speaker. He is today the best-known spokesman for the patient engagement movement, attending over 500 conferences and policy meetings in fifteen countries, including testifying in Washington for patient access to the medical record under Meaningful Use.br /
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A co-founder and chair emeritus of the Society for Participatory Medicine, e-Patient Dave has appeared in Time, U.S. News, USA Today, Wired, MIT Technology Review, and the HealthLeaders cover story “Patient of the Future.” His writings have been published in the British Medical Journal, the Society for General Internal Medicine Forum, iHealthBeat, and the conference journal of the American Society for Clinical Oncology. In 2009 HealthLeaders named him and his doctor to their annual list of “20 People Who Make Healthcare Better,” and he’s appeared on the cover of Healthcare IT News and the Australian GP magazine Good Practice.br /
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To read all show notes and resources for this episode please visit: www.drgautamgulati.com/ep028