Nona and Helen are delighted to share a dear friend and colleague, Cath Duncan, with you on the Autoimmune Campfire podcast. They recorded a two-part conversation on Cath’s experience with chronic illness and her incredible resilience and creativity and how she has intentionally fueled her ability to thrive in the face of challenges.

Cath Duncan is a mixed-media artist living in Utrecht, Netherlands. Her paintings are inspired by her first career as a Grief Therapist and her personal experiences of loss and grief, which include vision and hearing impairments, chronic illness, pregnancy loss, adoption, and immigration. Nature is both her muse and sanctuary, offering sensory experiences and healing metaphors that sustain her, shape her creative process and inspire her explorations of the relationships between inner and outer landscapes. Cath is the author of Untangle Your Grief - Questions and Art After Loss, and she has exhibited her art in South Africa, the Netherlands, and the UK, and sold her original paintings to private collectors around the world.

Cath’s art website:

https://www.cathduncan.com

Cath’s Untangle Your Grief book:

https://cathduncan.com/untangle-your-grief/

Cath’s Insta:

https://www.instagram.com/cathd/

Cath’s Delight series…

https://www.cathduncan.com/delight-practice

Cath provided attribution for the indigenous perspective on disability that she talked about. She got it from Indigenous scholars and activists, Dorothy Lonewolf Miller, (Blackfeet) (https://en.wikipedia.org/wiki/Dorothy_Lonewolf_Miller) and Jennie R. Joe (Navajo) (https://en.wikipedia.org/wiki/Jennie_R._Joe).

We welcome your comments and look forward to hearing from you. What are you taking away from this conversation?

This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit theautoimmunecampfire.substack.com

Nona and Helen are delighted to share a dear friend and colleague, Cath Duncan, with you on the Autoimmune Campfire podcast. They recorded a two-part conversation on Cath’s experience with chronic illness and her incredible resilience and creativity and how she has intentionally fueled her ability to thrive in the face of challenges.

Cath Duncan is a mixed-media artist living in Utrecht, Netherlands. Her paintings are inspired by her first career as a Grief Therapist and her personal experiences of loss and grief, which include vision and hearing impairments, chronic illness, pregnancy loss, adoption, and immigration. Nature is both her muse and sanctuary, offering sensory experiences and healing metaphors that sustain her, shape her creative process and inspire her explorations of the relationships between inner and outer landscapes. Cath is the author of Untangle Your Grief - Questions and Art After Loss, and she has exhibited her art in South Africa, the Netherlands, and the UK, and sold her original paintings to private collectors around the world.

Cath’s art website: 

https://www.cathduncan.com 

Cath’s Untangle Your Grief book: 

https://cathduncan.com/untangle-your-grief/

Cath’s Insta: 

https://www.instagram.com/cathd/

Cath’s Delight series…

https://www.cathduncan.com/delight-practice

We welcome your comments and look forward to hearing from you. What are you taking away from this conversation?

This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit theautoimmunecampfire.substack.com

Hello there, Nona and I are sharing Bonus Episode 2 in our series of interviews we’ve been having around living well with a chronic condition including guests who have an autoimmune / chronic condition or work with those who have an autoimmune diagnosis.

In this episode, Nona and Helen interview Elizabeth Cush. Elizabeth Cush is a licensed clinical professional counselor, a life coach for highly sensitive women, and business owner. She’s also the host of the Awaken Your Wise Woman podcast.  Elizabeth has worked in the mental health field for over 19 years where she incorporates the body, mind, and spirit into her work. You can find her here:

https://www.elizabethcushcoaching.com/

We talk about Internal Family Systems / Parts Work in this podcast and refer to Richard Schwartz who is the founder of this body of work. You can learn more here or in one of his many books:

https://ifs-institute.com/about-us/richard-c-schwartz-phd

We share our perspectives, learning and benefits in this podcast.

We know it goes without saying, but the information provided on The Autoimmune Campfire is for educational or informational purposes only. It is not intended nor implied as a substitute for professional medical advice, diagnosis, or treatment. Always consult your physician or other qualified healthcare provider with any questions you may have regarding a medical condition or treatment plan. The Autoimmune Campfire does not recommend or endorse any specific tests, physicians, products, procedures, opinions, or other information that may be mentioned on this site or podcast. 

What resonated for you in the conversation? We’d love to hear from you in the comments.

This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit theautoimmunecampfire.substack.com

Hi there, we’re releasing some interviews that Nona and I completed and we wanted to share them with you. We hope you enjoy listening as much as we enjoyed these conversations and we’d love to hear what you think.

In this 1st Bonus episode, Nona and Helen talk to Natalie Eslick about her story with chronic conditions and how creativity supports her in flourishing.

Natalie Eslick is a wildlife artist and creative guide whose work bridges the gap between humans and the natural world. Through her meticulously rendered portraits in pencil and paint, she invites viewers to recognize themselves in the eyes of our wild kin, while her teaching practice empowers others to forge their own creative connections with nature. As an Associate Member of Artists for Conservation and founder of both Hedgerow and The Wild Sketchbook communities, Natalie's work serves multiple paths toward the same goal: reconnecting wild-hearted humans with the natural world.

Her artistic practice, which earned her recognition through works featured in Sharon Blackie's bestselling book 'Hagitude', demonstrates the same core values she teaches - curiosity, compassion, and courage in approaching both art and nature. Whether through her detailed wildlife portraits that bring the wild into homes and hearts, or her gentle, supportive education programs that help artists develop their skills and confidence, Natalie creates spaces for deep connection and recognition of our inherent bonds with the natural world. Her integrated approach to art and teaching emphasizes process and connection over perfection, encouraging both viewers and students to discover their own unique ways of honoring and celebrating our wild kin.

You can learn more about Natalie and her programs here: https://www.natalieeslick.com/

What resonated for you in the conversation? We’d love to hear from you in the comments.

This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit theautoimmunecampfire.substack.com

In this emotional and insightful episode, hosts Helen and Nona of the Autoimmune Campfire podcast welcome their husbands, Rob and Erick, to share their perspectives on living with spouses who have chronic conditions. They discuss the impact on family life, the challenges of diagnosis, and the adjustments required post-diagnosis. Both couples reflect on the hidden gifts and lessons learned through these experiences, emphasizing gratitude, love, and commitment. This episode also marks the season finale, offering heartfelt gratitude to their listeners and teasing an exciting return for season two.

00:00 Welcome to the Autoimmune Campfire

00:26 Introducing Our Guests: Rob and Erick

00:52 The Spouses' Perspective: Impact on Family

02:01 Nona and Erick's Journey Together

04:00 Helen and Rob's Story

07:34 Challenges and Diagnosis: Erick's Experience

21:43 Rob's Reflections on Helen's Diagnosis

34:40 Hidden Gifts and Gratitude

39:59 Closing Thoughts

Thanks for listening to The Autoimmune Campfire! Subscribe for free to receive episodes straight to your inbox.

Connect with us

If you want to learn more about who we are and what we do or to work with us, please check our respective websites:

https://www.nonajordan.com/

https://www.helensamsonmullen.com

We are delighted to work with our wonderful producer, Richard Wilmore at

https://www.makeyourdayricher.com/

Thank you for joining us - we’d love to hear from you! Leave a comment below.

This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit theautoimmunecampfire.substack.com

In episode 13 of The Autoimmune Campfire, coaches Helen and Nona delve into the topic of resilience when faced with unexpected challenges related to chronic conditions. They share personal stories of recent medical issues, Helen's encounter with GI problems and Nona's discovery of a new lesion during an MS follow-up. The conversation highlights the importance of slowing down, recognizing one's habitual responses, and finding ways to disrupt negative patterns by practicing mindfulness, self-kindness, and gratitude. They also discuss how resilience can be cultivated through continuous self-care and embracing change as an inevitable part of life. This heartfelt episode offers insights and practical advice for anyone managing life with a chronic condition.

00:00 Welcome to the Autoimmune Campfire

00:18 Catching Up and Personal Updates

00:34 Bumps in the Road: Personal Challenges

02:29 Navigating Health Setbacks

05:12 Understanding Resilience

08:44 Personal Stories of Resilience

27:58 Lessons Learned and Moving Forward

Thanks for listening to The Autoimmune Campfire! Subscribe for free to receive new episodes straight to your inbox.

Hey, let’s connect!

If you want to learn more about who we are and what we do or to work with us, please check our respective websites:

https://www.nonajordan.com/

https://www.helensamsonmullen.com

We are delighted to work with our wonderful producer, Richard Wilmore at

https://www.makeyourdayricher.com/

Thank you for joining us - we’d love to hear from you! Leave a comment below.

Additional resource: Article on Resilience:

https://www.cnbc.com/2017/06/06/adam-grant-how-to-improve-resilience.html

This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit theautoimmunecampfire.substack.com

Navigating Wellbeing with Autoimmune Conditions

In this episode of the Autoimmune Campfire, hosts Helen and Nona engage in a heartfelt discussion about the complexities of maintaining well-being while living with a chronic condition. They delve into the PERMA model from positive psychology, exploring how Positive Emotion, Engagement, Relationships, Meaning, and Accomplishment can contribute to flourishing despite health challenges. Helen and Nona share personal experiences, tackle the impact of toxic positivity, and emphasize the importance of acknowledging all emotions. Listen in for actionable insights on nurturing wellbeing and finding joy amidst adversity.

00:00 Welcome to the Autoimmune Campfire

00:18 Holiday Recap and Personal Updates

01:32 Choosing Wellbeing: An Introduction

06:07 The Theory of Wellbeing: PERMA

08:42 Personal Stories and Practices

18:49 Toxic Positivity vs. True Wellbeing

25:13 Key Takeaways and Final Thoughts

29:47 Upcoming Episodes and Farewell

Resources:

An article about the PERMA Well-being Theory:

https://ppc.sas.upenn.edu/learn-more/perma-theory-well-being-and-perma-workshops#:~:text=what%20enables%20it%3F-,Dr.,are%20strategies%20to%20increase%20each.

Thanks for listening to The Autoimmune Campfire! Subscribe for free to receive new episodes straight to your inbox.

Connect with us

If you want to learn more about who we are and what we do or to work with us, please check our respective websites:

https://www.nonajordan.com/

https://www.helensamsonmullen.com

We are delighted to work with our wonderful producer, Richard Wilmore at

https://www.makeyourdayricher.com/

Thank you for joining us - we’d love to hear from you! Leave a comment below.

This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit theautoimmunecampfire.substack.com

Nurturing Connections: The Heartbeat of Wellbeing

In this episode of the Autoimmune Campfire, hosts Helen and Nona explore the profound impact of connections on living well with a chronic condition. They share personal stories about the value of community and meaningful relationships, emphasize quality over quantity in friendships, and discuss the Harvard study on happiness, highlighting the importance of positive social connections. They also offer insights into maintaining relationships despite the challenges posed by autoimmune diseases and provide three key takeaways on the power of intentional connections. Join Helen and Nona for an enlightening conversation about the joy and necessity of human connection.

00:00 Welcome to the Autoimmune Campfire

00:27 Weekend Highlights and Personal Stories

04:45 The Importance of Connection

06:05 Challenges of Connection with Autoimmune Conditions

07:29 Research Insights on Connection and Wellbeing

11:12 Personal Experiences and Strategies for Connection

25:28 Lessons on Building Meaningful Connections

32:11 Closing Thoughts and Next Episode Preview

Resources: The definition we used for connection was from the work of Dr Brené Brown. Helen highly recommends her books - The gifts of imperfection, Daring Greatly, Dare to Lead, Rising Strong, Atlas of the Heart.

Thanks for listening to The Autoimmune Campfire! Subscribe for free to receive new episodes straight to your inbox.

Connect with us

If you want to learn more about who we are and what we do or to work with us, please check our respective websites:

https://www.nonajordan.com/

https://www.helensamsonmullen.com

We are delighted to work with our wonderful producer, Richard Wilmore at

https://www.makeyourdayricher.com/

Thank you for joining us - we’d love to hear from you! Leave a comment below.

This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit theautoimmunecampfire.substack.com

Approaching Pain Differently

In episode 10 of the Autoimmune Campfire, hosts Helen and Nona delve into managing chronic pain through mindfulness and breathwork. They discuss the latest pain science and the role of mindfulness in handling pain, especially for those with autoimmune conditions. They emphasize the importance of breathing techniques and practices like Yoga Nidra to support the nervous system. The episode also explores the value of non-attachment to outcomes, running personal experiments, and being gentle with oneself. Join the conversation for insights and practical tools to enhance your well-being.

00:00 Welcome to the Autoimmune Campfire

00:43 Weekend Recap: Art and Gratitude

02:22 Understanding Pain and Mindfulness

05:57 Exploring Pain Science

10:14 The Power of Breathwork and Yoga Nidra

14:47 Mindfulness Practices and Personal Stories

32:06 Lessons on Mindfulness and Pain Management

37:34 Conclusion and Next Week's Topic

Thanks for listening to The Autoimmune Campfire! Subscribe for free to receive new episodes delivered straight to your inbox.

Resources referred to in the episode:

Jon Kabat-Zinn books are all recommended, Nona mentioned Full Catastrophe Living.

Helen’s favorite mindfulness apps: Calm and Happier 

Self-compassion mindfulness guided practice resources: https://self-compassion.org/self-compassion-practices/#guided-practices

Nona’s Yoga Nidra:

https://filedn.com/lF62cTjtorSXJlWX9RcxC6m/Substack%20Yoga%20Nidra%20October%2022.mp3

Connect with us

If you want to learn more about who we are and what we do or to work with us, please check our respective websites:

https://www.nonajordan.com/

https://www.helensamsonmullen.com

We are delighted to work with our wonderful producer, Richard Wilmore at

https://www.makeyourdayricher.com/

Thank you for joining us - we’d love to hear from you! Leave a comment below.

This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit theautoimmunecampfire.substack.com

Embracing Movement with Autoimmune Conditions

In episode nine of 'Autoimmune Campfire,' hosts Helen and Nona discuss the importance of incorporating joy-filled movement into the lives of those with autoimmune conditions. They share personal experiences, shedding light on the mental and physical health benefits of exercise and the unique challenges faced by individuals with chronic illnesses. The episode delves into practical tips for finding exercise types that work for you, balancing different exercise forms, and the importance of compassion and adaptability in your fitness journey. Tune in for heartfelt advice and encouragement on how to move your body joyfully and enhance your health and well-being despite an autoimmune diagnosis.

00:00 Welcome to the Autoimmune Campfire

00:38 Weekend Recap and Personal Updates

02:53 Episode Introduction: Moving Our Bodies

03:13 The Importance of Exercise for Autoimmune Conditions

06:14 Personal Experiences with Exercise

07:08 Adapting Exercise to Your Body's Needs

09:28 Finding Joy in Movement

14:06 Relearning Your Body with Autoimmune Conditions

27:50 Support Systems and Resources for Exercise

33:43 Conclusion and Next Episode Preview

Resources mentioned in the episode:

Best exercises for rheumatoid arthritis:

https://www.arthritis.org/health-wellness/healthy-living/physical-activity/other-activities/best-exercises-for-rheumatoid-arthritis

https://www.webmd.com/rheumatoid-arthritis/ss/slideshow-ra-exercises

MS resource - Gretchen Hawley:

https://www.drgretchenhawley.com

We welcome hearing your recommendations in the comments.

Thanks for listening to The Autoimmune Campfire! Subscribe for free to receive new episodes in your inbox.

Connect with us

If you want to learn more about who we are and what we do or to work with us, please check our respective websites:

https://www.nonajordan.com/

https://www.helensamsonmullen.com

We are delighted to work with our wonderful producer, Richard Wilmore at

https://www.makeyourdayricher.com/

Thank you for joining us - we’d love to hear from you! Leave a comment below.

This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit theautoimmunecampfire.substack.com