The CHC Podcast

This Town Hall Meeting deals with ‘Faith & Religion.’ This is a topic that affects everyone, but we will consider this topic through the lens of living with congenital heart conditions.

How does having a critical illness affect YOUR faith and/or religion? Today we have an expert panel. Brenton Ball is a heart patient who has undergone many open-heart surgeries over the course of his life. He was raised Catholic. Ayrton Beatty is a bereaved family-member-turned-heart warrior in her own right. Ayrton considers herself a spiritualist. And our third panelist is Nancy Jensen, a bereaved heart mom to Jessica and is a member of the Church of Jesus Christ of Latter-Day Saints, also known as the Mormon religion.

Join us as we discuss the significance of religion when dealing with chronic illness. We also discuss differences in religious practices when considering Catholicism, Mormonism, and Spiritualism.

The second segment involves questions for the panelists from our Patrons, guests, and co-hosts. The final segment is a conversation between the co-producers and the co-hosts.

Many thanks to Myles Schweitzer -- the Wild Mooseman Band for our music. We love you, Myles!

To support our show, please join our Patreon team:

https://www.patreon.com/HearttoHeart 

Hosted on Acast. See acast.com/privacy for more information.

This is the very first Town Hall Meeting for The CHC Podcast. Our theme in this episode is “Feeling Different” and it’s no surprise that people born with a congenital heart defect/condition might grow up feeling different. Whether they had their first surgery as an infant and thus always had a scar on their chest, unlike most people, or if they didn’t discover for years that they had a heart condition, people whose hearts function differently from people with anatomically normal hearts will feel different. They may have differences in exercise tolerance, they’ll possibly have difficulty in extreme changes in elevation, and they probably won’t have the same endurance as people born with anatomically perfect hearts.

But what does that mean? In this episode, Hearts Unite the Globe Patrons, and Volunteers come together to discuss what that means to them. They’ll discuss some very specific ways they feel different — Jason Crutchley discusses what it means for him to require a heart transplant AND a liver transplant. Allison Holmes talks about surviving open-heart surgery and cancer. Leslie Castro talks about living with a congenital heart condition as a military spouse.

Co-Hosts, Annie Ulchak and Scott Salvaggio also share their own unique perspectives and problems. All of these adult heart warriors also share hard-earned wisdom and advice with Listeners. The second segment features questions and stories from HUG Patrons heart dad Frank Jaworski, heart warrior Hope Jaworski, and heart dad Michael Liben.

In the final segment of the show, Co-Producers, heart mom Anna Jaworski and heart warrior Nicholle Bilodeau talk about what surprised them about the show and what they learned. They also share some of their own personal experiences.

Many thanks to Myles Schweitzer -- the Wild Mooseman Band for our music. We love you, Myles!

To support our show, please join our Patreon team: https://www.patreon.com/HearttoHeart

Hosted on Acast. See acast.com/privacy for more information.

In this third episode of The CHC Podcast, Dr. Edward Bove visits with Anna about historical figures in the field of pediatric cardiology. In the second segment, he talks to Anna about landmark surgical procedures that bear the names of some famous cardiothoracic surgeons. The episode concludes with Heart Mom Anna Jaworski chatting with Single Ventricle Heart Patient Allison Holmes. They share their feelings about the show.

The "Heart to Heart with Anna" Monkey Lungs! episode: https://www.buzzsprout.com/62761/12242283

Richard Schwindt's "Heart to Heart with Anna" episode where he talked about Monkey Lungs:

https://www.buzzsprout.com/62761/12209194

Amazon link to "King of Hearts"

https://www.amazon.com/King-of-Hearts-G-Wayne-Miller-audiobook/dp/B00009KEJ8/ref=sr_1_1?crid=3IVGK1AQLO4FO&keywords=the+king+of+hearts+walt+lillehei&qid=1680327720&s=books&sprefix=the+king+of+hearts+walt+lillehei%2Cstripbooks%2C112&sr=1-1

Many thanks to Myles Schweitzer -- the Wild Mooseman Band for our music. We love you, Myles!

To support our show, please join our Patreon team:

https://www.patreon.com/HearttoHeart

Hosted on Acast. See acast.com/privacy for more information.

This is the 2nd episode of The CHC Podcast: Congenital Heart Conversations and features co-hosts Camiecia Anthony and Anna Jaworski and Guests: Heidi, Victoria, and Rita Scoggins.

In this episode, we learn more about Heidi Scoggins and her recent scare with being diagnosed with a congenital heart defect as a young adult. Victoria Scoggins is Heidi Scoggins' aunt and she was also born with a congenital heart defect. Rita Scoggins is Victoria's mother and Heidi' grandmother.

In this episode, you'll learn more about these three women, including how they are working to take care of their heart health, what their heart conditions are, and how they're using their heart conditions to inspire others.

Wear Purple for CHD Awareness Day:

https://www.facebook.com/events/1268452243712195

Hosted on Acast. See acast.com/privacy for more information.

What is "The CHD Podcast: Congenital Heart Defect Conversations? Who are Anna Jaworski and Joe Flowers? Why did they start this podcast? More importantly, how can you get involved?

In this inaugural episode, Anna and Joe talk about who they are, why they started this podcast, and what the first season is going to look like.

January -- Inaugural Episode

February -- Heart Month! Meet the Scoggin Family and learn about the "Wear Purple for CHD" campaign!

March -- The History of CHDs and CHD Surgeries

April -- 1st Town Hall Meeting -- Let's talk about Feeling Different

May -- Mother's Day Month! Let's celebrate with a special single moms episode!

June -- Father's Day Month! Let's talk to some dads living in the CHD community.

July -- 2nd Town Hall Meeting -- Let's talk about Faith and Religion

August -- 3rd Town Hall Meeting -- Let's talk about Mental Health Issues in the CHD Community (Survivor's Guilt, PTSD, Depression)

September -- 4th Town Hall Meeting -- Let's talk about Divorce in the CHD Community

October -- Vaccines in the CHD Community

November -- 5th Town Hall Meeting -- Let's talk about Bullying

December -- 6th Town Hall Meeting -- Let's talk about the Holidays! (Holidays while hospitalized, holiday traditions, the dangers of large family gatherings, and recipes!)

How can you get involved? Become a Producer! Help us with social media! Join us in writing scripts for our shows! Learn how to be a Sound Engineer! We love working with Volunteers. Just contact Anna ([email protected]) or Joe ([email protected]) OR find us on Facebook, Instagram, LinkedIn or Twitter.

You can find Anna by looking for @AnnaJaworski and Joe by looking for Joe Flowers or jrf616 on Twitter and Instagram.

Many thanks to Myles Schweitzer -- the Wild Mooseman Band for our music. We love you, Myles!

Also, thanks to app.logo.com and Lauren England for helping us with our logo and our banner.

Hosted on Acast. See acast.com/privacy for more information.