By Bonni Howard
5
3333 ratings
The podcast currently has 55 episodes available.
Join Bonni as she gets personal about all things EDS, with filmmaker and EDS warrior Jen Kain. They discuss Jen's upcoming documentary, "Exhausted Existence: An EDS Story”, which explores living with chronic illness through a therapeutic lens.
Bonni and Jen share tears and laughs as they discuss their common struggles, coping strategies, and what keeps them going through it all. They talk about mental health, dynamic disability, living with unpredictability, societal judgments, and other tribulations of living with a chronic, invisible illness.
One needn't have EDS or HSD to appreciate this conversation or the film's premise, as it’s relatable to anyone living with chronic illness or who knows someone with a chronic health condition.
Film Website: https://www.goodstuff-story.co/exhuas...
Film Trailer: https://vimeo.com/897950041
Contribute to the film: https://www.goodstuff-story.co/donate
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Having a chronic illness can bring about so many challenges, not only physical but also social, emotional, and psychological. We deserve to have certain rights to thrive despite these challenges! This is where the "Chronic Illness Warriors' Bill of Rights" comes in.
Last week, Bonni talked about the first five of the eleven principles that she believes people with chronic illness should embrace to live more happy and full lives. This week, Bonni continues that discussion, revealing the last six principles.
She learned each principle through much trial and error and now wants to share them with you so that you can live life more fully despite your chronic illness.
This is part two of a two-part episode. If you missed part one, you can find it on audio or video at the links below.
YouTube
Spotify
Apple
Bonni loves hearing from her audience, so please don’t hesitate to reach out to her on her socials below: :
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Over a lifetime of living with chronic illness, Bonni has learned that people with chronic illnesses have many physical, social, emotional, and psychological challenges. They deserve to have certain rights so they can better manage and navigate all their challenges. This "Chronic Illness Warriors' Bill of Rights", lays out eleven principles that Bonni tries to live by. She learned each of these through a lot of trial and error and now she wants to share them with you to make your lives more full, happy, peaceful, and equitable.
This is part one of a two-part episode, so please set your notifications to be alerted when part two is released.
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This week Bonni returns to the mic after a long hiatus and much self-reflection. In honor of May being EDS Awareness Month, she sits down with Samantha Brechner to talk about the raw and real ways that having Ehlers-Danlos Syndrome has affected each of their lives.
You’ll hear the following and more:
#EhlersDanlosAwareness #MedicalPTSD #Gaslighting #Dysautonomia #MastCellActivationDisorder #SmallFiberPeripheralNeuropathy #InvisibleIllness #Disability #YouDontLookSick #EhlersDanlosSyndrome #ADHD #Dyspraxia #Subluxations #LongCovid #Anxiety #Depression #ToxicPositivity #ChronicIllness #ChronicPain
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This week Bonni continues to celebrates one year of podcasting with a look back at the most life changing lessons of the past year. Listen to hear some of the most profound teachings from the last year of The Chronically Courageous podcast.
Please listen to the end for an important announcement about where the podcast is headed and follow Bonni on social media using the links below for updates of what is to come.
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This week Bonni celebrates one year of podcasting with a look back at the most life changing lessons of the past year. Listen to hear some of the most profound teachings from the last year of The Chronically Courageous podcast.
Things You’ll Hear About in this Episode:
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This week Bonni answers listeners’ questions about how to navigate the healing journey. Tune in to find out how Bonni answers the following listener questions:
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This week Bonni is joined by her fiancé, David Pinkus to talk about the importance of recognizing and celebrating progress over perfection throughout the healing journey. With some recent health challenges resurfacing, they discuss how to recognize and identify progress from a 50,000 foot level vs. focusing on the day-to-day ups and downs.
Bonni and David hone in on their recent travels, acknowledging the very real challenges that can arise when traveling with chronic illness, but the very tangible wins that they both recognized in Bonni’s ability to travel now vs. before she embarked on her healing journey.
Join Bonni and David as they celebrate Bonni's progress and share tips on how to track and recognize your own progress as you continue to strive for greater health.
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This week Bonni shares about her recent recurrence of symptoms and how she has been managing through them. She provides ten tools and techniques on how to gracefully navigate the sometimes inevitably bumpy journey of healing from chronic illness.
Show Resources:
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The podcast currently has 55 episodes available.