In this episode, you’ll learn David's not-so-super-quick secrets. You’ll discover their favourite book, favourite place, scariest thing they’ve done and (our favourite) the weirdest thing they’ve ever done. What actions do they think needs to change to help people with chronic illnesses. Discover what is still possible after a diagnosis or accident, only on the DISabled to ENabled podcast.  Get your ENabled Warrior Symptom Tracker book to help track and manage your symptoms, instantly spot triggers and get the best possible care from your doctors  Mans search for meaning - victor frankle Click here to get your copy: https://mmini.me/meaning Connect with David Francisco: www.DavidFranciscomusic.com Book and album are available spotify, apple music and all other good music platforms Social media search: @davidfranciscomusicGet your ENabled Warrior Symptom Tracker book to help track and manage your symptoms, instantly spot triggers and get the best possible care from your doctors Join our tribe of ENabled warriors who fight back against chronic illness!Facebook / ENabled Warriors  Insta: @ DISabledtoENabledGet your FREE 7 chronic illness hacks doctors never tell you here. Follow our founder Jessie Ace as she shares her journey with Multiple Sclerosis and starting a business on www.jessieace.comWIN $100! Leave a review on iTunes, and each month we’ll choose one person at random to win. Here are some prompts to help you: who was your favorite guest and what did you learn from them? Will you listen to another episode? What did you like best about the show? Click here to learn how to leave a review on desktop and on a Phone. Android users may need to download the apple podcasts appGet the written out version of the episodes here: https://mmini.me/transcriptionThis episode is sponsored by our friends at Beekeepers Naturals. Check out their natural medicine cabinet full of all-natural medicines that bees make.  Use code WARRIOR for 10% off.

In this episode, you’ll learn more about how David turned to music and started speaking about driving safety after his accident as we carry on our chat with David Francisco.  Tune in to the last part of our interview where we find out about David's not-so-super-quick secrets. You’ll discover their favourite book, favourite place, scariest thing they’ve done and (our favourite) the weirdest thing they’ve ever done. What actions do they think needs to change to help people with chronic illnesses. Discover what is still possible after a diagnosis or accident, only on the DISabled to ENabled podcast.  Get your ENabled Warrior Symptom Tracker book to help track and manage your symptoms, instantly spot triggers and get the best possible care from your doctors  Connect with David Francisco: www.DavidFranciscomusic.com Book and album are available spotify, apple music and all other good music platforms Social media search: @davidfranciscomusic Join our tribe of ENabled warriors who fight back against chronic illness!Facebook / ENabled Warriors  Insta: @ DISabledtoENabled twitter @DISabletoenableGet your FREE 7 chronic illness hacks doctors never tell you here. Follow our founder Jessie Ace as she shares her journey with Multiple Sclerosis and starting a business on www.jessieace.comWIN $100! Leave a review on iTunes, and each month we’ll choose one person at random to win. Here are some prompts to help you: who was your favorite guest and what did you learn from them? Will you listen to another episode? What did you like best about the show? Click here to learn how to leave a review on desktop and on a Phone. Android users may need to download the apple podcasts app Get the written out version of the episodes here: https://mmini.me/transcription

Warriors thanks for joining me for another episode of The disable to enable1:00 podcast with me Your host Jessie as today's episode is sponsored by our friends at beekeepers naturals natural health products created by bees. The products are so good that I have not had a cold the entire winter. Did you know that without bees we'd have no coffee crazy. Check out mi.me slash Bs and use code warrior Timpson off today or click the link in the show notes by clicking this link by the way beekeepers naturals will give back to the disabled to enable podcast. Hey, no worries. Okay, we are here with Hannah Marie theists to have a chat about how the coronavirus is affecting her at the moment. So So Hannah is based in Switzerland, and I'm in the UK. So let's have a chat about how each of our countries are kind of dealing with this whole pandemic. Whatever the calling it now epidemic pandemic, I have no idea. It's all a very scary kind of time. So let's have a chat with Hannah about how she is feeling about the whole Corona virus type thing and what2:00 She is doing to kind of keep yourself healthy. Hey, how's it going?2:07 Yeah, um, well, thank you. Thank you for asking. I know these are very troubled times for a lot of people and there's I think there's actually most mostly worry and anxiety around rather than actual illness. Yeah, sure, we're getting excited about the illness rather than the actual illness. Thankfully still, but2:27 I personally as we were talking about before, my routines haven't really changed.2:35 Switzerland yesterday got new directives on what we should do and what we can and can't do and sort of thing and what we've been asked to do. Although I'm not Swiss, I have been living here for over 20 years now. So I consider myself more Swiss than anything else. And and it's basically it went from sort of events can have 100 people and restaurant and bars can have 50 people and you know, don't3:00 overly interact with people and stay away if you're sick and wash your hands and all that all that normal stuff, but yesterday we got more directives and now it's really no restaurants are shut. All shops apart from grocery stores are shut yes stations are open medical care is open but basically everything else is everything social hairdressers are down and you know all small shops and I really, really actually feel very, very big heartache for all these people who are going to lose most or all of their income in business. For this time being a small business owner myself, thankfully everything for me is online, but for other people it's not.3:43 And I just hope that everyone gets to stay healthy and happy and, and calm and peaceful through this3:51 with the help of these directives and also, more over Switzerland also has basically close the borders. So that4:00 You can only get in if you're Swiss or if you're, if you have sort of a permit to live here.4:07 And both trains or public transport and, and flights and everything have been massively reduced, just to not keep people together. And it is, of course, a very, very serious situation. And I am glad that Switzerland is reacting in this way. Because then maybe we have a chance to actually flatten the curve. And I've been at home since Oh, about not even a week. But as we were saying before, my, my schedule hasn't really changed because I work from home and I sleep at home and I eat at home and in all these things. And in kind of visiting my businesses, I don't go out much during the week anyway. So it's not a huge thing for me to not have to stay home but be asked to stay home. And because of course5:00 chronic conditions people and especially immune, or new people are one of the risk groups.5:08 Yes, maybe a little bit more. So if you have a high blood sugar as a as in this specific case of diabetes, then if you have normal one, but still, we're part of the risk group. So I'm not really very sad5:21 at home right now and try to do my part, show solidarity with those who have

In this episode, you’ll learn more about spinal cord injury and life after an accident as we chat with David about her diagnosis. The highs and the lows. Symptoms to medication to things he’s found to help his condition. In the next episode find out about how he has spoken about driving safely and how he released an album. Get your ENabled Warrior Symptom Tracker book to help track and manage your symptoms, instantly spot triggers and get the best possible care from your doctors   Connect with David Francisco: www.DavidFranciscomusic.com Book and album are available spotify, apple music and all other good music platforms Social media search: @davidfranciscomusic Join our tribe of ENabled warriors and fight back against your chronic illness!Facebook / ENabled Warriors  Insta: @ DISabledtoENabledFollow our founder Jessie Ace as she shares her journey with Multiple Sclerosis and starting a business on www.jessieace.comGet your FREE 7 chronic illness hacks doctors never tell you here. WIN $100! Leave a review on iTunes, and each month we’ll choose one person at random to win. Here are some prompts to help you: who was your favorite guest and what did you learn from them? Will you listen to another episode? What did you like best about the show? Click here to learn how to leave a review on desktop and on a Phone. Android users may need to download the apple podcasts app Get the written out version of the episodes here: https://mmini.me/transcription

Part 3 Mrs Dalaway - viginia woolf  a celebration of life. Reminder of how much you can do in a day.  Weirdest thing: played competitive table tennis, dressed up as her dog, dog and owner look alike competition,  Amazing place - Sweden. Roadtrip with mum and two brothers the year her dad died. Flew to Gothenburg to Stockholm.  Scariest thing - voluntarily going on a banana boat. Scarier things that were not so voluntary.  Connect with Celestine:www.glowwormfilms.co.ukTwitter - @celestinefraserInstagram - @celobean  Sick of negative Facebook groups?Join the ENabled tribe:Search Facebook: ENabled Warriors Or Insta: DISabledtoENabled Reduce stress now go to ENabledwarriors.org our free Facebook messenger 5 day stress course ______________________ This episode is sponsored by our friends at Beekeepers Naturals. Check out their natural medicine cabinet full of all-natural medicines that bees make.  Use code WARRIOR for 10% off.

Part 2 We discuss gratefulness. CFS had so much stigma, you get people saying ‘i’m tired too I had a late one last night’. When you tell people you have a genetic condition of EDS and PoTS they treat you differently. It meant I had better care and treatment from doctors because people took it more seriously.  It took Celestine. I’m not I’ve ever come to terms with it, it’s something I’ll always be coming to terms with. As a child, you never think you’ll get any kind of diagnosis. It feels so good to have answers.  I produced a short documentary, ill, actually. It follows 3 young people with difficult chronic illnesses and how they each navigate social media. Some are open about itt online and build communities around it and others don’t talk about it at all and others wouldn’t even know there was something wrong.  We got funding and It all happened very very quickly, it was an intense process. We’d worked on it for about 3 years. Working out what story we wanted to tell.  Zoe Hunter-Gordon the director worked on it together. Learning about the research needed to be done. Reaching out to different charities. BRI/BBC scheme celebrating the anniversary of the internet. Aout embracing the digital. Got on to the born-digital scheme.  How each of the people used social media to show their illness in very different ways.  Ben - @benmudge_Jameisha - @youlookokaytome/ They’ve all found ways to make a career alongside their conditions.  Celestine couldn’t find any representation in films/tv that focused on young people with disabilities. It was born from an absence of representation.  Is disability becoming a more socially recognizable thing?  People relate to disability in a very obvious way, i.e. A Wheelchair. In programs, they use wheelchairs as a dramatic plot twist. The stores don’t have to be disabled storylines but wouldn’t it be nice if invisible disabilities were included in storylines? Celestine set up her own production company Glow worm films so look out for that! She wants to focus on the people who don't have much representation. There are a lot of minorities that need representation too.  Would you prefer to have an illness that’s invisible or visible and why? Let us know in the comments.  ‘Elderly people ask me to get up for them on the tube’  Hear Celestines advice for people newly diagnosed.  Connect with Celestine:www.glowwormfilms.co.ukTwitter - @celestinefraserInstagram - @celobean  Sick of negative Facebook groups?Join the ENabled tribe:Search Facebook: ENabled Warriors Or Insta: DISabledtoENabled Go to www.DISabledtoENabled.com for help and advice on how you can live well with a chronic illness Reduce stress now go to ENabledwarriors.org our free Facebook messenger 5-day stress course______________________ This episode is sponsored by our friends at Beekeepers Naturals. Check out their natural medicine cabinet full of all-natural medicines that bees make.  Use code WARRIOR for 10% off.

we are here with Sneha Davi let's have a little bit of a chat about the coronavirus because Coronavirus or COVID-19 is something that is affecting everybody right now. It is a global worldwide thing.And for people with chronic illnesses it is you know, obviously a really worrying time for everybody, though, so say how whereabouts are you at the moment and how is it kind of affecting you? Yeah, so um, so I am alsoclassified as an immunocompromised individual. And so I think, you know, initially, it had been incredibly terrifying for me. And it still is because, you know, the more you hear about it, and the more you hear stories, it becomes even more anxiety-inducing, at least for me. And so I think, you know, the biggest thing, it's affecting every part of my life right now, as I'm sure it is for everyone around the world. But you know, for me, specifically, my university is now going to be entirely online, which is bizarre to me, because last year, we, you know, struggled to even cancel one day of school because of a snow day. And I go to a large public university, and so it brings in an additional challenging dimension. And so I think another thing is, too is that I currently cannot go home to my parents as well because my dad is a provider and he has seen coronavirus patients so for fear that he is a carrier because of the reallyEasy to catch it is really, he does not want you to same location as he is. And so it's been kind of tricky to because I'm kind of stuck where no one is at my college, you know, college town. And that's been interesting as well. And and the other thing too is that I am in between infusions in starting different infusions. And so I really need to get on another infusion because my previous one causing allergic reaction and, but I'm just having to kind of wait this out because that will make me even more immunosuppressed and taking that's also been interesting, and I quite frankly don't even want to go inside a hospital right now. Um, because of the fear of COVID patients there as well. So I think it's been hard and also just my day to day things that I do like climbing, going to coffee shops and everything like that has been, it's just been kind of hard to be in my house, even though I have you know, went through a period of about five years of, of real isolation. This isThis kind of hits differently because right now I'm able to, you know, like, go outside and climb and stuff like that. Whereas earlier, I was really sick and I didn't feel like going anywhere. So isolation was a little bit easier at that time. Yeah, definitely. And I think, um, and it's the same for you, but I kind of feel like, it's not just the virus. That's scary, but I kind of feel like, I'm kind of scared of the public reaction to it. Yeah, in the UK, we've had lots of like, things like stockpiling and things like that CES, as you saw, you know, getting emptier and emptier and things likethat. they've, they've kind of been a little bit. And I don't know if this is right or not, maybe, maybe, but I kind of feel like they've been quite reactive in the government's approach to the coronavirus in the UK. I mean, it was only yesterday. Our schools are still open. And, wow, why? Things to select None for now, but they made a decision yesterday to put something in place called social distance.You've heard about this. Oh, absolutely. Oh, yes. Yesterday a meter over away from everybody right now, apparently.So we've got to stay away from everybody say, Yeah, like a meter away from everybody. And then they've closed bars and restaurantsand theatres and stuff like that. So, yeah, people are really kind of self-isolating at home now and right. It's a weird time to be alive. It'sreally, it's really bizarre even my professors during my last class, because at that time, we, we had only had two weeks of virtualclasses. But as of a couple of days ago, the rest of the semester is virtual classes, but even our professors were like, kind of like it

Topics discussed: What is Ehlers danlos syndrome (EDS) and post tachycardia syndrome (P.O.T.S)?Ehlers danlos syndrome is a group of connective tissue disorders. Celestine has hypermobile ehler’s danlos syndrome. EDS is A deficiency of collagen - a protein - it’s the glue that holds your body together.  Affects her joints by partial dislocations and causes chronic fatigue. puts a lot of pressure on the joints because the muscles aren't’ strong enough to hold them.  P.o.t.s - is a dysfunction of the autonomic nervous syndrome. Body temperature, heart rate, digestion, blood being circulated around.  Both multisystemic conditions. People go through good and bad patches. It’s not a progressive illness, it's a collagen deficiency from birth.  “You’ve got a slightly wonky body that wasn’t built right.” First signs, at age 17, noticed getting more tired than peers. Just after starting to drive, being taken to Abbey road by her driving instructor, Started having a terrible pain in her neck, thought she was anxious because of driving lessons. The pain got more and more intense. Lessons got shorter. She tried to just get on with A levels, but was getting more and more tired.  She now thinks, ‘Maybe I should have intervened faster than I did’.  Had a stressful time at home because her dad had been diagnosed with a type 4 brain tumour. He had to have major brain surgery. They all plodded on as best they could while he was going through treatment.  This period of massive stress was when my symptoms started setting in.  Stress is a major trigger with many people with P.o.T.S. Your body is in a flight or fight state constantly especially when your family is going through a really hard time.  Celestine was in denial at first, worried people would think she had an anxiety problem and worried doctors would dismiss physical symptoms and put it down to anxiety.  She was misdiagnosed with CFS, something a lot of young people particularly young women get diagnosed with. Most people diagnosed with that aren’t happy with the diagnosis because it’s more a diagnosis of the symptoms not the condition itself. She had symptoms that were different. Then she was dx with Myasthenia gravis - she couldn’t tell you a single thing about it now but at one time she was an expert. Celestine was put on a lot of steroids which made her self conscious as it affected her appearance. Then she went back to CFS and got really bad headaches. Saw a neurologist who was a headache specialist. He noticed she had a lot of markers for Hypomobility. He sent her to a rheumatologist. It was a big relief at the time.  The diagnosis process is currently far too long at the moment. It needs to be sped up because people are becoming far sicker than they need to be and a lot of it is preventable. Hypermobile EDS doesn’t require expensive tests, it just needs a doctor to look at you and do the baker scale, hypomobility scale. Involves bending your body in a few different ways. It’s something GP’s could do it doesn’t require an expert.  Never shared an illness story before because she felt she wasn’t taken very seriously by doctors because of age.  Felt at times patronized by doctors and was diagnosed with anxiety in the first year of being ill. She says she doesn't think an 18-year-old girl is taken very seriously by doctors. You get told your body's changing anyway so new symptoms are just part of the deal.  Connect with Celestine:www.glowwormfilms.co.ukTwitter - @celestinefraserInstagram - @celobean  Sick of negative Facebook groups?Join the ENabled tribe:Search Facebook: ENabled Warriors Or Insta: DISabledtoENabledGo to www.DISabledtoENabled.com for help and advice on how you can live well with a chronic illnessReduce stress now go to ENabledwarriors.org our free Facebook messenger 5-day stress course______________________ Thank you to our friends at Beekeepers Naturals for sponsoring this episode. Check out their natural medicine cabinet full of all-natural medicines that bees make.

Part 3: My advice and super quick secrets round.  The 5 stages of grief. Everyone goes through it. Nitika’s best piece of advice is going to a therapist who gave her permission to feel sadness and trauma that affected her body.  Don’t think you have to take any advice from any non-medical people.  ‘I have a team that I'm working with so thanks but no thanks.’  Connect with Nitika: https://nitikachopra.com/ Sick of negative Facebook groups?Join the ENabled tribe:Search Facebook: ENabled Warriors Or Insta: DISabledtoENabled Go to www.DISabledtoENabled.com for help and advice on how you can live well with a chronic illness Join the VIP waitlist to get the ENabled warrior Tracker Journal before anyone else click here to join through Facebook Messenger: http://mmini.me/waitlist________________________Thank you to our friends at Beekeepers Naturals for sponsoring this episode. Check out their natural medicine cabinet full of all-natural medicines that bees make.  Use code WARRIOR for 10% off.

Part 2: Finding acceptance Nitika describes going through phases of acceptance and phases of feeling low.  Hitting rock bottom at 25 was tough but there was a level acceptance of ‘this is where I’m at’ I just have to figure this out and deal with it.’  Setting up something bigger than herself to help others.  She set up Bella Life Magazine and had 100 people writing for the magazine, and started posting YouTube videos and online. She was soon approached by the exec of a production company and offered her her own talk show - naturally beautiful.   ‘I’ve officially done everything I could have to get me to this place.’ Nitika also discusses how she started running events and inspired by going to an event called, ‘curvy con’, she decided to set up a convention for chronic illness. Connect with Nitika: https://nitikachopra.com/ Sick of negative Facebook groups?Join the ENabled tribe, all chronic illnesses welcome. Search Facebook: ENabled Warriors Or Insta: DISabledtoENabled Go to www.DISabledtoENabled.com for help and advice on how you can live well with a chronic illnessManage stress now for free go to ENabledwarriors.org Facebook messenger 5-day stress course.________________________Thank you to our friends at Beekeepers Naturals for sponsoring this episode. Check out their natural medicine cabinet full of all-natural medicines that bees make.  Use code WARRIOR for 10% off.