The Encephalitis Podcast

Dr Ava Easton, CEO of Encephalitis International interviews the director of the documentary Shot in the Arm, Scott Hamilton Kennedy . Talking about vaccine hesitancy and misinformation. Find more about the film here www.shotinthearm.com and for more information about vaccine preventable forms of encephalitis please visit www.encephalitis.info/vaccine-preventable-encephalitis.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/

Our support groups are listed here https://www.encephalitis.info/online-support-meetings

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational/

X: https://twitter.com/encephalitis

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational/

TikTok: https://www.tiktok.com/@encephalitisint 

Dr Ava Easton was joined by Professor Michael Wilson from the Centre of Encephalitis and Meningitis at UCSF to talk about metagenomics and encephalitis.

For more information about Professor Wilson's work please visit https://encephalitis.ucsf.edu/

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/

Our support groups are listed here https://www.encephalitis.info/online-support-meetings

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational/

X: https://twitter.com/encephalitis

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational/

TikTok: https://www.tiktok.com/@encephalitisint 

TRIGGER WARNING: In this podcast episode, Dr Ava Easton CEO Encephalitis International, talks with Prof Arun Venkatesan about the difficult topic of death from encephalitis. This is something which will be sadly and unfortunately familiar to many families and friends who's loved ones have fallen ill from this condition.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/

Our support groups are listed here https://www.encephalitis.info/online-support-meetings

Read more information about death from encephalitis on our website https://www.encephalitis.info/effects-of-encephalitis/death-from-encephalitis

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ

Follow Encephalitis International

Facebook: https://www.facebook.com/encephalitisinternational/

X: https://twitter.com/encephalitis

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational/

TikTok: https://www.tiktok.com/@encephalitisint 

In our final episode of 2023, Dr Ava Easton, host of the Encephalitis Podcast, talks to Phillippa Chapman, Deputy Chief Executive of Encephalitis international, and Bella Bardswell, co-founder of Stellafai.

The trio talk about the monumental decision to change the name of the Encephalitis Society to Encephalitis International, the reasons and thinking behind the strategic evolution, and what comes next as we celebrate our 30th anniversary in 2024.

For more information about Encephalitis International, https://www.encephalitis.info/ 

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/become-a-member/

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ

Follow Encephalitis International Facebook: https://www.facebook.com/encephalitisinternational/

X: https://twitter.com/encephalitis

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational/

YouTube: https://www.youtube.com/@encephalitisinternational

TikTok: https://www.tiktok.com/@encephalitisint

Threads: https://www.threads.net/@encephalitisinternational

Dr Lance Turtle joins The Encephalitis Podcast to talk about the Japanese encephalitis virus and its impact on Australia over the past 12 months.

Lance is a Reader and Honorary Consultant Physician in Infectious Diseases at the University of Liverpool.

As always, the questions are asked by our host, Dr Ava Easton, Chief Executive of the Encephalitis Society.

The Encephalitis Podcast is available on all podcast channels and on our YouTube channel.

For more information about Dr Lance Turtle: https://www.liverpool.ac.uk/infection-veterinary-and-ecological-sciences/staff/lance-turtle/ 

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

For more information about Japanese encephalitis, visit https://www.encephalitis.info/japaneseencephalitis 

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/

Follow the Encephalitis Society:

Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

Welcome to a special World Encephalitis Day edition of the Encephalitis Podcast.

Dr Ava Easton, Chief Executive of the Encephalitis Society, is joined by Dr Thomas Pollak, from Kings College London, and Dr Jesus Ramirez-Bermudez, of the National Institute of Neurology and Neurosurgery of Mexico, to talk about some two new important research papers around mental health and encephalitis.

An important note for our viewers and listeners: this podcast will be touching on some difficult areas, including more broad mental health issues and difficult topics such as self-harm and suicide.

If this is something which may lead to difficult emotions for you or for someone you know, please know that our support team are here to help and can be reached on [email protected] or by calling +44(0)1653 699599.

Also, in the links to this episode, you will find some resources which we have put together around mental health which we believe will be helpful to anyone affected by encephalitis and also their family and friends. This includes links to useful organisations around the world, a factsheet on mental health and lots of sources of support and information.

For more information about World Encephalitis Day on Wednesday, 22nd February, please visit www.worldencephalitisday.org

For information about mental health and encephalitis, visit https://www.encephalitis.info/pages/category/mental-health-and-encephalitis

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

Best-selling author Susannah Cahalan joins host Dr Ava Easton for a special World Encephalitis Day edition of The Encephalitis Podcast.

Ten years ago, Susannah published Brain on Fire: My Month of Madness, the award-winning memoir and New York Times bestseller, which quickly become a Bible for members of the encephalitis community and many more people around the world.

Brain on Fire follows Susannah’s struggle with encephalitis and, in particular, her diagnosis and recovery.

It was later developed into a Hollywood film by Charlize Theron and starred Chloe Grace Moretz.

Susannah chats to Ava about the 10th anniversary, why the book resonated with so many people, its legacy, how she reacted when Hollywood came calling, and the impact it has had on the encephalitis community.

The 10th anniversary edition of Brain on Fire is available from all good booksellers, including

UK readers (Kindle and Paperback) https://www.amazon.co.uk/Brain-Fire-My-Month-Madness/dp/1451621388

USA - https://www.simonandschuster.com/books/Brain-on-Fire-(10th-Anniversary-Edition)/Susannah-Cahalan/9781451621389

For more information about World Encephalitis Day on Wednesday, 22nd February, please visit www.worldencephalitisday.org

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

In this episode, Dr Ava Easton talks to author and motivational speaker Jackie Stebbins.

In 2017, the former trial lawyer from Bismarck, North Dakota, became ill with encephalitis and experienced a host of difficulties, such as insomnia, paranoia, hallucinations and memory loss.

In the summer of 2018, after being voluntarily hospitalized in the psychiatric ward, she was finally diagnosed with seronegative autoimmune encephalitis.

To help her recovery, she began writing and speaking about her journey with encephalitis.

Today, Jackie hosts the podcast, Brain Fever and is also the author of the JM Stebbins blog. In 2022, her memoir, Unwillable: A Journey to Reclaim My Brain, was published by Wisdom Editions.

We hope you enjoy this conversation with the articulate and passionate encephalitis awareness advocate!

For more information about Jackie and her book, blog and podcast, please visit https://www.jmstebbins.com/

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society:

Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

In this edition of The Encephalitis Podcast, Dr Ava Easton is joined by Dr Greta Wood for a discussion around seizures and encephalitis.

In this wide-ranging conversation, they discuss an important new research paper before answering some questions around seizures and encephalitis.

Greta is an Academic Clinical Fellow in Infectious Diseases at the University of Liverpool and has a wide range of research interests, including the socio-economic impact of infectious diseases and multi-morbidity.

She is also a member of the COVID-19 Clinical Neuroscience Study which is investigating the neurological and neuropsychiatric complications of COVID-19.

The Encephalitis Podcast is also available on podcast channels, such as Apple, Google Play, Podbean and Spotify.

Find out more about seizures and encephalitis by viewing our factsheet: https://www.encephalitis.info/seizures-and-encephalitis

For more information about Greta, visit https://www.liverpool.ac.uk/infection-veterinary-and-ecological-sciences/staff/greta-wood/

The research paper, Acute seizure risk in patients with encephalitis, can be found here: https://neurologyopen.bmj.com/content/4/2/e000323 

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

We are delighted to welcome back Professor Benedict Michael to The Encephalitis Podcast.

Ben talks to host Dr Ava Easton about the COVID-19 Clinical Neuroscience Study – a £2.3 million research study looking in the acute neurological and neuropsychiatric complications of COVID-19.

He also shares his thoughts on being a front-line medic during the pandemic, the NHS in general and the upcoming Encephalitis Conference.

Ben is a Professor of Neuroscience at the University of Liverpool, a Medical Research Council Clinician Scientist and Honorary Consultant Neurologist at the Walton Centre, also in Liverpool. Ben is also Vice President of our Scientific Advisory Panel and helps to drive forward our research agenda and organise the Encephalitis Conference, among many other important areas of our work.

For more about the COVID-CNS study or to take part, visit https://www.liverpool.ac.uk/covid-clinical-neuroscience-study/

Follow the COVID-CNS study on Twitter: https://twitter.com/covidcns

Follow Ben on Twitter: https://twitter.com/BenedictNeuro

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society