Kate Swaffer, MSc, BPsych, BA, Retired Nurse
Chair, CEO & co-founder, Dementia Alliance International
Kate Swaffer is a humanitarian and an award-winning campaigner for the rights of people with dementia and older persons globally. She has a Master of Science in Dementia Care, a Bachelor of Psychology, a BA, a graduate Diploma in grief counselling, and is a retired chef, and a retired nurse.
Swaffer has played a key role in campaigning for the human and legal rights for people with dementia including equal access to the CRPD. She has been tireless in her work on reframing dementia as a disability, for rehabilitation for dementia, and is the first person in the world with dementia, diagnosed herself at the age of 49, to be a keynote speaker at the WHO.
Swaffer has won many national and international awards for her work including 2017 Australian Of The Year in South Australia, and the 2018 Global Leader, top 100 Women Of Influence in Australia. She has contributed to key policy documents including work for the Australian Aged Care Quality Agency, the World Health Organisation (WHO) Quality Rights initiative, the International Consortium for Health Outcomes Measurement (ICHOM) and is an Ambassador for StepUp for Dementia Research in Australia.
Swaffer has two honorary university positions, has been very active as a researcher, and is a highly published author and poet. Her uncompleted doctoral work, and other research projects includes Dementia as a Disability, Disability Rights, Human and Legal Rights, Stigma, Quality of Life, and the Public Discourse of Dementia. She has published two books, What the hell happened to my brain? Living beyond dementia (2016) and Diagnosed with Alzheimer’s or Another Dementia (2016), two poetry books, and countless journal articles, media appearances, interviews, publications, and blogs.
Topics of discussion:
- What was it like being diagnosed with dementia at the age of 49?
- What do you wish you knew then, that you know now?
- Why have you been campaigning for dementia as a disability, and for human rights all people with dementia for over a decade?
- Tell us about the stigma and discrimination you have experienced since diagnosis.
- Have there been any gifts having dementia?
Kate's LinkedIn: https://www.linkedin.com/in/kate-swaffer-502a5b13/