The On-Air Advocate

As we continue our Rare Disease Awareness Interview Series , I am excited to welcome, Kerry Morgan Hughes,M.Ed Harmony 4 Hope Founder and President

Kerry combines her passion for education and music to impact the landscape of Rare Disease. Merging music and storytelling, the mission of Harmony 4 Hope (H4H) is to fuel scientific discoveries in rare disease, educate future healthcare practitioners and researchers and uplift children and affected families through The H4H Rare Playlists.

In 2009, inspired by the 350 million people worldwide collectively impacted by 7,000 distinct rare diseases, Kerry began her journey in Rare Disease Activism. Half of the people impacted by these diseases are children and 35% of these children will not live to see their 5th birthday. Education and early diagnosis can improve quality of life and potentially save lives! The H4H Rare Storytellers Program was created to empower patients and directly address this educational need. The program currently runs in Chicago and Milwaukee with a Boston Chapter anticipated to launch in the Fall of 2019.

Listen in as Kerry shares more about rare disease, Harmony 4 Hope, upcoming events, & how you can get involved.

Resource: Harmony 4 Hope

Events Sites: Marquette University Medical College of Wisconsin Rush-University Medical Center Other Services Northwestern University Feinberg School of Medicine

As we kick off our Rare Disease Awareness Interview Series , I am excited to welcome, Kirsten, Entrepreneur, Founder of online store Graphic Organic Graphic Designer, Chronic Illness Blogger, Chronic Illness & Mental Health Advocate & Denise , MSW, Founder/Life Coach , Chronic Warrior Collective, LLC (Formerly, Chronic Connection, LLC) Chronic Warrior Society

Kirsten is 22 years old and lives in Belgium. She has experienced chronic pain and fatigue since I was 9 years old but got diagnosed with fibromyalgia and M.E. at 19 years old. After high school she took graphic design, art and business courses. Kirsten joined the spoonie community and became a young adult board member of the Chronic Warrior Collective (then: Chronic Connection) and met many inspiring fellow warriors. In October 2017 she opened her online store Graphic Organic where they sell eco-friendly and fair-trade graphic tees and stationary. She also does freelance graphic design projects and blogging on the side.

Listen in as we learn more about Kirsten’s condition & her inspiring journey plus, how Denise of Chronic Warrior Collective has played a very impactive roll for so many in the rare/chronic community .

Kirsten’s Website: https://www.graphic-organic.com

As we wrap up our Perseverance Series, I am excited to welcome, Juliana Ruggiero author, writer & cerebral palsy advocate.

Juliana was born at 31 weeks, weighing in at 3 pounds 10 ounces. She was diagnosed with Cerebral Palsy at the age of 3. Now 20, a student in her second year of college. Julians is a huge advocate for Cerebral Palsy, a writer and author. Juliana’s goal is to inspire and lift people up through her writing.

Listen in & get ready to be inspired as Juliana shares with us his empowering story & journey.

As we continue our Perseverance Series, I am excited to welcome back, Tylia Flores, author, writer & cerebral palsy advocate.

Tylia L Flores is a 23-year-old born with cerebral palsy. Although her condition has affected her mobility, it has never affected her will and determination to make a difference in the world. Through her many life challenges and obstacles, she discovered her passion for writing. Tylia’s goal in life is to share her stories with the world. In doing so, she hopes to help others with disabilities realize that they, too, have the potential to make their dreams come true.

Listen in & get ready to be inspired as Tylia shares with us his empowering story & journey.

Resource: https://tyliaflores.com

As we continue our Perseverance Series, I am excited to welcome, Bob Runkel, Producer of The DJ Bob Show.

DJ Bob Runkel has been involved with music, entertainment, and pop culture for as long as he can remember. He does not let his diagnosis of Cerebral Palsy stop him from achieving his dream of radio success. He has conducted interviews with a central focus on nostalgia and pop culture.

Listen in get ready to be inspired as DJ Bob shares with us his empowering story & journey.

Resource:

www.djbobshow.com

As we kick off our Perseverance Series, I am excited to welcome, Evelyna Castro, Ms.Wheelchair WA. 2014 / Makeup and Voice-Over Artist.

Evelyna Castro was born and raised in San Jose, CA and relocated with her family in 2006 to Washington State. Evelyna was born with Spina Bifida and uses a manual wheelchair to get around. She is the 2nd oldest of 5 children.

Evelyna has been involved in wheelchair sports since she was very young thanks to her parents who put her on the sports team Wheels On Fire. Evelyna eventually competed in track where she won 4 Silver metals at Nationals, and archery where she won 2nd place at nationals. She also competed in other sports. Evelyna went on to study Theatre at Foothill Theatre Conservatory in Los Altos Hills CA., Prosthetic Makeup at Cinema Makeup School in Los Angeles, CA, Radio Broadcasting at The Academy of Radio & Television Broadcasting, Evelyna is currently attending school to be a health coach at the local college.

In 2014 Evelyna competed for the title of Ms. Wheelchair WA. and WON to her surprise!!

Listen in & get ready to be inspired as Evelyna shares her story & journey.

“You have been assigned this mountain so that you can show others it can be moved.” ― Mel Robbins

As we wrap up our 2019 Reset Series, I am excited to welcome, Janis Weber Lutz, Personal Trainer / Performance Coach / DMS Specialist.

Janis has been a certified personal trainer and group exercise instructor since 1985.

She was introduced to the Deep Muscle Stimulator (DMS) while attending a continuing education conference in 2002, where I live, in Las Vegas, Nevada.

Extremely impressed after a 5-minute treatment which provided complete relief from upper back pain that weeks of chiropractic treatment and massage had been unable to resolve. She purchased a DMS and began using it in my practice. And since 2002 she has provide pain relief and restoration utilizing the DMS. She is continually grateful for such an efficient, effective tool. 

Listen in as Janis shares more information on this amazing tool that was developed to increase the quality of life by reducing/eliminating pain. In addition, some tips, tools & info on overall health & wellness as we hit the “Reset” button for 2019. 

Resource: 

www.deepmusclestimulator.net 

As we continue our 2019 Reset Series, I am excited to welcome back, Robin Richards, M.A., E.d.S. Teacher, Speaker, Writer, Founder and Coach of MamasMomentum. 

Listen in as we are talking health and wellness with Robin Richards, founder and teacher of MamasMomentum and a WW coach (Weight Watchers Leader). 

We will discuss Robin’s personal journey with evolving her health and wellness through a focus on mindset partnered with practicing yoga for almost three decades. Robin’s journey with practicing yoga and integrating it as part of improving overall health of mind, body and spirit is inspired by her journey to transform childhood trauma into triumph.

We will also be introduced to yoga and the multiple styles of practice that exist. We will learn the benefits for mind, body and spirit that yoga provides for everybody with every body. As an added bonus, we will learn two breathing techniques to improve focus and clarity as well as expel toxins to support detoxification.

~ MamasMomentum

Teaching & Learning for Vibrant Living

Resource: 

Robin contact at: [email protected]​ 

As we continue our 2019 Reset Series, I am excited to welcome, Hal Honeyman, husband, father & owner/founder of The Bike Rack / Project Mobility. 

Listen in as Hal shares his families inspirational journey and the great impact having triplets, born 13 weeks premature had on their life and what lead to the development/mission of Creative/Project Mobility. 

In 2004, Hal received the Hometown Hero award through his local Red Cross organization. In 2008, he was given the DiVinci award by the Michigan National Multiple Sclerosis Society. Just recently, Hal has been named a Hallmark Hero. 

Hal is truly “Changing Lives One Bike At A Time” ❤️

Resources: 

www.projectmobility.org 

Project Mobility

The Bike Rack

As we continue our 2019 Reset Series, I am excited to welcome back, Dr. Zarinah - Dr. Zee , Speaker, Best-Selling Author, Founder/CEO of Rebound Sports & Rehab, LLC

Listen in as we zoom in on Health & Nutrition for the New Year with Dr. Zee. We will explore different foods, diet, cooking & recipes that will help us in the process of truly becoming  the MVP of our own Health💪🏽