Welcome to the Savvy Safety Sisters PARTNERS IN PREVENTION podcast with your host Carrie Pasquarello.

Our guest today is Dr. Joe Arboleda-Velasquez. His work focuses on CADASIL (cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy), the most common inherited small-vessel disease (SVD) of the brain, and, more generally, on ischemic stroke. He is working towards the development of new and effective therapies to help patients suffering from CADASIL and vascular dementia.

CADASIL Awareness: #Stroke #MS #Dementia #Alzheimer’s

CADASIL is a genetic neurological condition that affects the small blood vessels in the brain and often leads to strokes. Unfortunately, it’s frequently undiagnosed or misdiagnosed.

For additional CADASIL Resources & Signs, and Symptoms, visit: https://www.thinkcadasil.org/

Want to help cure CADASIL?
Mass Eye and Ear, in its 202nd year since its founding, is a nonprofit specialty hospital in Boston, Massachusetts, that is world-renowned for its research in vision, hearing, cancer, and Dr. Joe Arboleda-Velasquez ’s/ CADASIL. Mass Eye and Ear leads the Harvard Medical School Departments of Ophthalmology and Otolaryngology-Head and Neck Surgery, and is a member of the Mass General Brigham healthcare system. Mass Eye and Ear is home to the world’s largest private vision and hearing research centers and is committed to research, discovery, and innovation, bringing hope and healing to patients in Boston, throughout the nation, and the world.

How you can help: Philanthropic support will significantly accelerate research to develop a treatment for the thousands of people living with CADASIL. Outright gifts and multi-year pledges can be made by check, credit card, wire, or stock transfer. Credit card gifts: Giving.MassEyeAndEar/ CADASIL
Gifts by check: Payable to Foundation of Mass Eye and Ear and mail to: Mass Eye and Ear Development Office 243 Charles Street Boston, MA 02114

More ways to: https://masseyeandear.org/makeagift/g... For questions or additional information, please contact Melissa Paul, Chief Development Officer, at 617-686-1440 or [email protected]
Mass Eye and Ear is a 501(c)3 charity with Tax ID: 04-2785453. Charitable gifts are 100% tax-deductible in accordance with IRS regulations.

 Carrie Pasquarello, CEO of Global Secure Resources Inc., Global Secure Student https://www.globalsecurestudent.com/ Community Awareness Prevention Programs.

To learn more about CADASIL, dementia, and Alzheimer’s, go to: ThinkCADASIL https://www.thinkcadasil.org/ & The National Organization for Rare Disorders (NORD) https://rarediseases.org/ https://rarediseases.org/?s=CADASIL

In this powerful International Women’s Day conversation, host Carrie Pascarella of Global Secure Resources welcomes Maria Alexandria Cetățoiu — congenital heart disease survivor, bioengineering PhD candidate, and founder of the Swiss med-tech startup CC Cardio. Born with a rare and complex heart condition that required multiple surgeries and lifelong care, Maria refused to let her diagnosis define her limits. Instead, she transformed her experience into purpose — inventing a groundbreaking medical device designed to improve life expectancy and quality of life for patients with complex congenital heart disease. Maria shares her deeply personal journey from patient to innovator, the challenges facing adults living with childhood heart conditions, and her mission to bring hope to families navigating devastating diagnoses. She also delivers an inspiring message to young women pursuing careers in STEM and medical innovation. This episode shines a special light on the unsung heroes behind many survival stories — the parents who advocate fiercely for their children. We extend heartfelt gratitude to Maria’s mother, whose strength, courage, and unwavering advocacy helped shape Maria’s path and continues to inspire hope for families facing similar battles. As we also recognize Rare Disease Month and American Heart Month, this conversation reminds us that awareness drives action, innovation saves lives, and empowered women change the world.

✨ Learn how you can support Maria’s mission, advance medical innovation, and help turn hope into tangible solutions for patients worldwide. https://cccardio.ch/

Learn more about GSR: Global Secure Resources and Global Secure Student https://www.globalsecurestudent.com/
https://globalsecureresources.com/
Medjet - http://www.medjet.com/globalsecure
Global Rescue -  https://partner.globalrescue.com/globalsecureresources/index.html

Maria Alexandra Cetățoiu, ScM, is a final-year PhD candidate in Bioengineering at Politecnico di Milano, Italy. Her research, supervised by Dr. Francesca Berti and Dr. Giancarlo Pennati, is conducted in collaboration with the CardioEngineering team at Boston Children’s Hospital/Harvard Medical School and the BioCardioLab at Fondazione Monasterio. Her work centers on developing advanced computational pipelines to support the study, diagnosis, and treatment of complex congenital heart disease (CHD). Previously, she earned a Master of Medical Sciences from Brown University’s Warren Alpert Medical School.

Born with a single-ventricle heart and palliated with the Fontan procedure, she brings a deeply personal perspective to her work and is dedicating her career to advancing therapies for the Fontan circulation. Specifically, she is the co-founder of CC Cardio, a Swiss-based MedTech startup headquartered in Lugano, Ticino, recently awarded first prize at the Boldbrain Startup Challenge, focused on developing a dedicated circulatory support pump for single-ventricle hearts.

Rare Disease Day - Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families, and carers.

Welcome to the savvy safety sisters PARTNERS IN PREVENTION podcast I’m your host, Carrie Pasquarello With Global Secure Resources, today's guest is Dr. Erin Kyle, DNP, RN, CNOR, NEA BC. She’s a national leader in evidence-based perioperative practice and a passionate advocate for patient-centered care.

Today, we will discuss Preparing for the Unexpected: Disabilities, Decisions & Planning Ahead. Preparedness is not about expecting the worst — it is about creating confidence, reducing stress, and ensuring your wishes and safety are respected during unexpected life changes.

Tips:

1. Start the Conversation Early. Difficult conversations are often the ones families avoid—but they are the most important. Talk openly about medical wishes, caregiving preferences, financial planning, and quality-of-life priorities. Planning ahead reduces stress and ensures decisions reflect personal values rather than rushed choices during a crisis.
2.  Put Legal and Medical Documents in Place. Essential documents provide clarity and authority during emergencies. Consider preparing: • Healthcare Proxy or Medical Power of Attorney • Living Will or Advance Directive • HIPAA Authorization Forms • Financial Power of Attorney. Having these documents ensures trusted individuals can advocate and act on your behalf if needed. 
3.  Build a Personal Safety & Support Network. Unexpected health changes or disabilities often require teamwork. Identify trusted family members, friends, healthcare providers, and community resources who can step in if needed. Share key information with them so they are prepared to help quickly and confidently.
4. Organize Critical Information in One Accessible Place. Create a secure and easy-to-access system that includes: • Medical history and medication lists • Insurance information • Emergency contacts • Password and account access plans • Care instructions or daily routines. When information is organized, families and caregivers can respond more quickly and effectively.
5. Plan for Lifestyle, Travel, and Daily Living Changes. Unexpected disabilities can impact mobility, communication, independence, and travel plans. Consider accessibility needs, transportation options, home safety adjustments, and contingency plans. Thinking ahead allows individuals to maintain independence and confidence even during life changes.

Resources: February 28th is Rare Disease Day, raising awareness and driving change for the 300 million people worldwide living with a rare disease and their families.

 https://www.rarediseaseday.org/
Thnk CADASIL https://www.thinkcadasil.org/
Learn more about Baylie's Story here https://www.baylieswish.org/https://w...
Medical forms https://www.baylieswish.org/legal-forms
Global Secure Resources and Global Secure Student https://www.globalsecurestudent.com/ https://globalsecureresources.com/
Medjet - http://www.medjet.com/globalsecure
Global Rescue - https://partner.globalrescue.com/glob...

CADASIL Awareness Day.
In the most recent Savvy Safety Sisters PARTNERS IN PREVENTION podcast, I had the privilege of interviewing Angelique, a 25-year-old Project Coordinator from Pretoria, South Africa. Angelique shared her journey of living with CADASIL, a rare genetic stroke disorder that she and her two sisters were diagnosed with following their father’s diagnosis. Despite CADASIL's challenges, Angelique has achieved significant milestones, including graduating with distinction in Psychology and earning a teaching certification. Our conversation shed light on the impact of CADASIL on her daily life and future plans, the misconceptions surrounding the disease, and the invaluable support from loved ones and the medical community. Angelique's resilience, passion for the arts, and dedication to raising awareness about CADASIL were truly inspiring. We emphasize the importance of empathy and supportive care for those affected by CADASIL. Please share this podcast with friends and families. CADASIL is sometimes misdiagnosed with MS, ALS, and other diseases.

Resources: Think CADASIL https://www.thinkcadasil.org/cadasil-signs-symptoms
Cure CADASIL https://curecadasil.org/
Please watch Angelique Barnard’s video about CADASIL
YouTube video: https://youtu.be/1jpfP-JY-_0?si=Wr9AONW98CnLfhSO

Visit Angelique Barnard’s Instagram account:
instagram.com/_artgelique_
Instagram - art account: instagram.com/angeliquebarnard_art
Global Secure Resources https://www.globalsecureresources.com/ 
Global Secure Student https://www.globalsecurestudent.com/ 

Welcome to the Savvy Safety Sisters PARTNERS IN PREVENTION podcast. In today's episode, we will be discussing CADASIL, a disease that is often misdiagnosed as MS or another neurological disorder.

My guest is Dr. Fanny Elahi, a physician-scientist with a doctorate in neurogenetics, a residency in neurology, and a fellowship in neurodegenerative disorders. Her work at Mount Sinai Hospital in New York City involves researching the vascular contributions to cognitive impairment and finding ways to better protect the brain function of individuals with CADASIL, which stands for cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy.

Dr. Elahi is dedicated to developing new therapies at The Elahi Lab to protect brain function and prevent dementia. She is an Associate Professor and a renowned expert in CADASIL.

You can find Dr. Elahi at ELAHI  LAB 
www.ELAHILAB.com 
https://www.mountsinai.org/
Icahn School of Medicine at Mount Sinai
To participate in our clinical studies, please contact the clinical research team at [email protected].

To get a clinic appointment with Dr. Elahi, please contact Ms. Shanel Muirhead at [email protected] or call 212-241-7076.


DR. Elahi CV

Carrie Pasquarello
CEO of Global Secure Resources Inc.
 -Global Secure Student
Community Awareness Prevention Programs

To learn more about CADASIL, dementia, and Alzheimer’s, go to the  National Organization for Rare Disorders (NORD)        
https://rarediseases.org/
https://rarediseases.org/?s=CADASIL 

Think CADASIL 
https://www.thinkcadasil.org/

Welcome to the Savvy Safety Sisters Podcast!
Let's Talk Safety.

We are all looking forward to a great summer. We can make it even more memorable and fun by learning a few strategies to enhance our safety and security, making for a fantastic summer! We aim to teach you skills to avoid wasting time, money, and energy so you can kick back, enjoy, relax, and reconnect with family and friends. Today, we will cover the following: Summer Water Safety, Travel Tips, Cybersecurity, and Petty Crime & Scams. CPR, or cardiopulmonary resuscitation, can help save a life during cardiac arrest, when the heart stops beating or beats too ineffectively to circulate blood to the brain and other vital organs. However, even after training, remembering the CPR steps and administering them correctly can be a challenge.
To be prepared when moments matter, please click the link below. https://www.redcross.org/take-a-class/cpr/performing-cpr/cpr-steps#:~:text=CPR%2C%20or%20cardiopulmonary%20resuscitation%20can,correctly%20can%20be%20a%20challenge.

Resources:
POWERFUL TECHNOLOGY DESIGNED TO PROTECT YOU AND THE PEOPLE YOU LOVE: https://invisawear.com/
THE ANTI-THEFT, ANTI-FATIGUE, ANTI-CHAOS TRAVEL BAG
https://conmigobags.com/
Medjet: Global Secure Resources Discount link: http://www.medjet.com/globalsecure
Travel Tips: https://conmigobags.com/travel-safety/a-parents-guide-to-student-travel-safety-tips/
Tips For International Travelers: https://www.globalsecurestudent.com/blog/tips-for-first-time-international-travelers
Cybersecurity Awareness Homeland Security – _Stop. Think. Connect. https://www.stopthinkconnect.org/
Travel Tips for National Cybersecurity Awareness Month https://medium.com/@glosecresources/travel-tips-for-national-cybersecurity-awareness-month-e285bc09bb2c
Petty Crime and Scams International Travel Trends: Scams and Crime https://globalsecureresources.com/posts/scams-and-crimes.html

We encourage everyone to keep water safety in mind and reduce child drowning.
We want everyone to follow five simple steps to stay safer this summer • Designate a water watcher every single time children in my care are in or near the water. • Make sure kids know how to swim. • Learn CPR. • If there is a pool, always remove portable pool ladders when they are not in use. • Ensure all permanent pools have a proper fence and gate and safer drain covers.
Learn more about rip currents. Rip currents are particularly dangerous because they are difficult to identify, and the worst events can occur during otherwise good weather when your guard might be let down. They also tend to be strongest during low tide. Don't underestimate the power of water; even rivers and lakes can have undertows. Significant rip currents are more likely to occur with a strong onshore wind.
Learn how to break the grip of the rip.
Keep children safe around water.
https://www.cdc.gov/drowning/prevention/index.html

25 July is World Drowning Prevention Day World Drowning Prevention Day, declared through the April 2021 UN General Assembly Resolution A/RES/75/273 “Global drowning prevention”, is held annually on 25 July. This global advocacy event serves as an opportunity to highlight the tragic and profound impact of drowning on families and communities and offer life-saving solutions to prevent it. An estimated 236,000 people drown every year, and drowning is among the ten leading causes of death for children aged 5-14 years. More than 90% of drowning deaths occur in rivers, lakes, wells, domestic water storage vessels, and swimming pools in low- and middle-income countries, with children and adolescents in rural areas disproportionately affected.

Strategize your safety today! Be proactive, prepared, and protected!
See you at the next Savvy Safety Sisters Podcast. Please like and share!

Welcome to the savvy safety sisters PARTNERS IN PREVENTION podcast.
Sandra Bagwell, Ryan's mom, shares her story to shine a light on the fentanyl epidemic.

Today, we're talking about a chemical drug that is 50 times more potent than heroin. It is similar to morphine but about 100 times more potent.
The drug traffickers are putting fentanyl in all kinds of products. They're putting it in cocaine, they're putting it in marijuana, and fentanyl is being pressed into counterfeit pills.

We must start conversations with loved ones to share awareness to prevent poisoning and harm.
Start the conversation today, you might save a life.

Learn more at DEA - https://www.dea.gov/resources/fentany... “Fentanyl is the single deadliest drug threat our nation has ever encountered. Fentanyl is everywhere. From large metropolitan areas to rural America, no community is safe from this poison. We must take every opportunity to spread the word to prevent fentanyl-related overdose death and poisonings from claiming scores of American lives every day.” - DEA Administrator Anne Milgram

Resources and more information:
https://txaf.org/
https://lvof.org/
https://www.dea.gov/fentanylawareness

CADASIL Awareness: Why should you know more about this disease? #Stroke #MS #Dementia #Alzheimer’s Welcome to the savvy safety sisters PARTNERS IN PREVENTION podcast. Our guest today is Michael Kennedy. We will be discussing a disease called CADASIL -.Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy. What are some common symptoms and challenges that individuals with CADASIL and caregivers face?

We want to empower our listeners with education and advocacy from experts, and today, we will cover this important topic, which affects families worldwide and is often misdiagnosed.


For more information:
National Organization for Rare Disorders (NORD) https://rarediseases.org/
Medline plus https://medlineplus.gov/genetics/condition/cerebral-autosomal-dominant-arteriopathy-with-subcortical-infarcts-and-leukoencephalopathy/#resources

Michael’s Books:
https://www.amazon.com/Tuckers-Surprise-Michael-Kennedy/dp/1614685401 https://www.amazon.com/Billies-Vacation-Michael-Kennedy/dp/1614684847 https://www.playhollow.com/products/gracees-gang?_pos=1&_sid=66cce3ae4&_ss=r

International Women's Day 2024

Hello and welcome to the Savvy Safety Sisters partner and prevention podcast. I'm your host, Carrie pasquarello of Global Secure Resources, and this month, we want to celebrate International Women's Day and Women's History Month by spotlighting amazing women changing the course of the world with their actions, their thoughts, and their hopes for a better and safer future so today, I am thrilled to introduce DR. ANGI FIEGE of Rachael's First Week.

ABOUT RACHAEL'S FIRST WEEKRachael's First Week LIVE! is a program dedicated to protecting the lives of high school seniors and college freshmen as they transition into young adult women and men. These can be tumultuous years when peers often look to each other for guidance as they encounter novel and potentially dangerous situations rather than engaging experienced mentors to provide solutions. The mission of Rachael's First Week is to develop the decision-making skills of teens as they enter this time of monumental change in their lives.

Please visit:

Rachael's First Week at https://rachaelsfirstweek.org and share with students and parents.

Breathe, Nolan, Breathe https://youtu.be/WZrqrzG3UA8?si=1dAJfRQ8e5ocGh7B

Study Abroad Safety: www.globalsecurestudent.com/book

Welcome to the savvy safety sisters PARTNERS IN PREVENTION podcast. Our guest today is Sheila Connor. We will be discussing a disease called CADASIL.
Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy

We want to empower our listeners with education and advocacy by experts, and today, we will cover this important topic as it affects families worldwide and is often misdiagnosed.

• What is CADASIL?
• How can I or my loved one help improve care for people with CADASIL?
• Where can I find more information about CADASIL?
• Learn about related topics.
• For more information, please visit-
• https://curecadasil.org/
• https://www.elahilab.com
• https://rarediseases.org/
• https://www.ninds.nih.gov/health-information/disorders/cadasil https://www.globalsecurestudent.com/