The Sickle Cell Podcast

In this episode, we explore the journey of aging with sickle cell disease through the inspiring stories of 80-year-old Ms. Pat McGill and Linda Wade. Ms. Pat shares her decades-long experience living with sickle cell, providing invaluable insight into the challenges and triumphs of aging with the condition. Linda Wade, founder of the Mark Thomas Foundation and caregiver to her late husband who had sickle cell, joins the conversation to discuss her role in supporting the sickle cell community and her personal journey of advocacy.

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Join host Maia Garrison as she speaks with passionate advocates shining a light on sickle cell disease. La'Shardae Scott, the 2022 SCAY Advocate of the Year, discusses her non-profit organization that bridges the gap by transitioning pediatric patients to adult sickle cell care. Faith Adjei-Sarpong, the Digital SCAY Advocate of the Year, shares how she inspires warriors through social media to live life fully despite having sickle cell disease. Prepare to be inspired by their dedication to raising awareness and empowering the sickle cell community.

Find:

La'shardae Scott

Faith Adeji- Sarpong

Instagram:

@faiithooo

@lashardae_scott or @scottcenteroh

Join hosts Cassandra Trimnell and Maia Garrison as they hear from Holly John, Senior Director of Patient Advocacy at Agios Pharmaceuticals, recognized as the SCAY Community Partner of the Year for her groundbreaking work integrating patient voices into drug development and advocacy. Also, meet Ayana Johnson, the SCAY Youth Advocate of the Year, a high schooler who has launched a nonprofit, lobbied for legislation, and engaged with President Biden, inspiring fellow youth warriors. Prepare to be moved by their passion and dedication to revolutionizing sickle cell care.

Find Ayana Johnson

Instagram: _ayana_lee_

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Featuring Christina Augustine and Dr. Alexander I. Ngwube, MD, this episode provides an comprehensive exploration on bone marrow transplant (BMT) for sickle cell disease, blending personal experiences with professional expertise.

A huge thank you to Be the Match for Sponsoring this episode. For more information about Be the Match, visit: https://sicklecellconnect.com

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Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support

For the month of July, we are bringing awareness to sickle cell trait. Abibat Oshiobugie Suleiman is the host for today's episode. Abi talks with special guests Abisola and Seyi Shof, also known as “the Shofs” on social media, about their involvement in the sickle cell community, their love story with SCT, the challenges they had to face with telling their families, and weighing the options for marriage and children that led them to their IVF journey with PGD testing. 

Find Abisola and Seyi Shof on

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The first of our Hot Topic 🔥 series. Hosts Stephen and Cass have THAT conversation about two individuals wanting to have children but are faced with a chance of having a child with sickle cell disease. 

Do you believe people who are "genetically incompatible" (like AS and AS) should have children? Send in your responses to [email protected]

Cass chats with the 2021 Sickle Cell Advocates of the Year (SCAY) Award recipients about how they got involved and what they’ve achieved. This episode features:

A big thank you to our partner AllStripes!

Visit https://sc101.org/SCAY to connect and learn more about the SCAY Award winners.

Caregiving for sickle cell is underrated... Celebrating National Family Caregiver's Month, it's just Stephen and Cass this episode talking about what caregiving for sickle cell looks like – even caregiving from abroad. There is mild humor sprinkled in too. 😬 

A HUGE THANK YOU TO OUR SPONSOR: Sickle Cell Speaks 

#SickleCellSpeaks is people sharing their stories and strengths living with sickle cell. #SickleCellSpeaks talks about navigating the situations and feelings people with sickle cell face. Visit sicklecellspeaks.com to learn more.

Hosts Dr. Stephen Boateng and Cass Trimnell talk to workplace diversity and inclusion expert Tayo Rockson, MBA about discuss tips, accommodations, and how to navigate the workplace when living with sickle cell disease.

Find Tayo Rockson on

A HUGE THANK YOU TO OUR SPONSOR: Hemanext

Hemanext partners with groups like Sickle Cell 101 on resources and tools for sickle cell patients. Safer transfusions, healthier patients, that’s their mission. Visit hemanext.com to learn more about the company.

Dr. Jonathan Lassiter is a clinical psychologist living with sickle cell disease. Listen to his and guest host Naim Rasul’s gems on managing mental health issues for sickle cell disease.

Personal Website

Talks at the Schomburg

Book: Black LGBT Health in the United States

Twitter: @matjl

Instagram: @jmlassiterphd

Pronouns: he, him, his