In this episode we talk about:
Allan’s family and brother with an intellectual disability
How having a special needs sibling was different in the 1950s versus in the 2000s (and today)
How life is being your own sibling’s guardian
Family dynamics between parents and siblings
Difficulties of having a sibling join ill-equipped institutions
Not being afraid to admit negative feelings
Allan’s encouragement to fellow siblings
Allan’s Book: https://www.amazon.com/Fred-Me-Willowbrook-Survivors-Story/dp/B08ZDL1J8H
The Curious Incident of the Dog in the Night-Time: https://www.amazon.com/Curious-Incident-Dog-Night-Time/dp/1400032717
Cost of Living by Martyna Majok: https://www.pulitzer.org/winners/martyna-majok#:~:text=Directed%20by%20Obie%20Award%20winner,we%20all%20need%20each%20other
The End of Average by Todd Rose: https://www.toddrose.com/endofaverage
Willowbrook State Schook: https://en.wikipedia.org/wiki/Willowbrook_State_School
Allan’s NYU-Tandon faculty page: https://engineering.nyu.edu/faculty/allan-b-goldstein
Direct Service Provider: https://opwdd.ny.gov/providers/direct-support-professionals
Bernard Carabello: https://nysilc.org/inductees/32-2022/234-bernard-carabello
AHRC: https://www.ahrcnyc.org/
Allan on PBS News Hour: https://www.youtube.com/watch?v=5oFxwCgATW0
Check out the blog and contact Charlene here: https://thespecialneedssiblingpodcast.com/
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