Patient Advocates do more than raise money—they are active participants in the drug development process. While the ALS Ice Bucket Challenge garnered global attention, lesser-known patient advocates also flex their expertise to drive new treatments and cures.  In this episode, we talk with two moms, one who is a patient herself, about their work as partners in research and development, helping bring treatments for two rare diseases to the market. 

Susan Ruediger, Founder and Chief Mission Officer, CMT Research Foundation  

Nasha Fitter, CEO, FOXG1 Research Foundation