Healthcare is often a tangled web of bureaucracy and inefficiencies. In this week’s episode, both of our storytellers share their experiences navigating its many flaws.

Part 1: Zoe Wisnoski’s takes matters into her own hands when her son has months of ongoing fevers.

Part 2: During the pandemic, epidemiologist Bryon Backenson becomes disheartened when the public stops cooperating with public health authorities.

Zoe Wisnoski is a seeker of stories, adventure, travel, and moments that stick with you. She stumbled into the world of storytelling through a training put on by Story Collider. Her passion for activism buoyed by a penchant for oversharing has finally found a home. Formerly a feminist policy analyst with a Masters in Public Policy from the Humphrey School of Public Affairs, now a full time - still feminist - mother, Zoe spends her time attempting to create joy amidst utter chaos. When her son was diagnosed with the super rare, to date minimally understood, genetic disease Tatton Brown Rahman Syndrome (TBRS), Zoe reoriented her educational and professional background to meeting his needs and volunteering with the TBRS Community, the nonprofit aimed at supporting families and advancing research for TBRS. In 2024 she joined the board of directors and continues to search for answers.

Bryon Backenson is an epidemiologist. He is currently the director of the Bureau of Communicable Disease Control at the New York State Department of Health. He and his team investigate, respond to, and research infectious disease outbreaks. He is also a professor in the University at Albany College of Integrated Health Sciences, where he teaches in the Department of Epidemiology and Biostatistics. When not thinking about disease, he spends his time hiking, fishing, and reading. While he talks about epidemiology and infectious diseases all the time in classes, meetings, and webinars, this is the first time he’s tried to tell his own story in this kind of format.

Learn more about your ad choices. Visit megaphone.fm/adchoices

See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.