The Talking Type 1 Podcast

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In this episode, I speak to Mila who has been living with LADA (which stands for Latent autoimmune diabetes in adults (LADA) is a slow-progressing form of autoimmune diabetes) diabetes since 2020 however Mila was originally diagnosed or misdiagnosed with type 2 diabetes in 2016. Mila is a blogger and known advocate in the diabetes online community and is also known as the Hangry Woman. In our chat we speak about: 

• coming to terms with not only a new diagnosis but also a misdiagnosis
• the difference in conversations Mila experienced when she was in a healthcare setting as a person living with type 2 diabetes in comparison to a person living with LADA 
• culturally appropriate diabetes advice
• navigating the diabetes world as a black woman
• making memes with Paul Rudd 

 Useful links:

Mila
Hangrywoman.com
Mila on Youtube
Mila on Facebook
Mila on Instagram
Mila on Twitter
Getting over a hard week. » Hangry Woman®

Superdrug
Superdrug | Beauty, Health, Skincare & Perfume
Managing your Diabetes

Social Media - Online Communities
Cherise Shockley (@BonafideCherise)
GBDoc Tweetchat Host (@GbdocTChost)
Diabetes Social Media Advocacy (@DiabetesSocMed)

Daniel on Instagram

A bit about the show and host

The Talking Type 1 podcast is a diabetes podcast by Daniel Newman. Daniel brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 25 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

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In this episode, I speak to Emily who has been living with type 1 for 7 years. You might already know Emily as she is the co-host on the Pancreas Pals podcast (go check that out!). Emily and I had a good conversation and we spoke about: 

• Emily being misdiagnosed and it taking nearly a year for her to be diagnosed with type 1
• Moving to New York 2 days after being diagnosed
• The challenges she faced navigating the healthcare system in the USA
• Emily’s diabetes burnout experience
• Looping and everything that comes with it

Useful links:
Emily on Instagram
Pancreas Pals on Instagram
https://pancreaspals.com/
Pancreas Pals on Facebook
Daniel on Instagram

A bit about the show and host

The Talking Type 1 podcast is a diabetes podcast by Daniel Newman. Daniel brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit the follow button.

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Cara's daughter lives with type 1 diabetes after being diagnosed at 14 months old. At diagnosis her daughter was also diagnosed with Primary Ciliary Dyskinesia (PCD) which is a rare, inherited, long-term condition that children are born with and they also found out that her daughter was born Situs Inversus which is a genetic condition in which the organs in the chest and abdomen are positioned in a mirror image from their normal positions. This was an intense period of time for Cara and her family, to say the least. I should also add that Cara was visiting a friend in Scotland from France where is where she lives. In our chat, Cara talks about life with type 1 and PCD, the practical challenges she and her family faced when leaving the UK to return to their home in France, and life afterwards.

A poignant part of our conversation was when Cara shares the impact that .5 of a unit of insulin had on her daughter's glucose levels when she was still a baby.

A bit about the show and host

The Talking Type 1 podcast is a diabetes podcast by Daniel Newman. Daniel brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit the follow button.

Important links
Cara Instagram
Cara - Blog
Daniel - Instagram
WEGO Health Awards

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Mer has been living with type 1 diabetes for 4 years. Mer was initially mis-diagnosed and then correctly diagnosed with type 1 diabetes at 39 years old. We also discuss:

• How education allowed Mer to learn to thrive with diabetes
• The importance of Mer’s support network after she was diagnosed with type 1
• Self-advocacy 
• Why having the choice of treatment to manage type 1 is important

Useful information

Mer on Instagram
Daniel on Instagram

A bit about the show and host

The Talking Type 1 podcast is a diabetes podcast by Daniel Newman. Daniel brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit the follow button.

Send us Fan Mail

Jen has been living with type 3c diabetes for 4 years. Jen was diagnosed with pancreatitis which led to her having a pancreatectomy. A pancreatectomy is the removal of part or all of the pancreas. This led to Jen’s diagnosis of type 3 c diabetes. We have a deep conversation about this whole process for Jen and adjusting to life after the operation as someone living with type 3c diabetes. We also discuss:

• Jen living with an autoimmune kidney condition
• being insulin dependant and being insulin resistant
• why Jen joined the type 3 diabetes
• the importance of people living with type 3c diabetes finding their tribe 

Useful information
Jen on Instagram
Daniel on Instagram
IgM Nephropathy
Pancreatectomy

A bit about the show and host

The Talking Type 1 podcast is a diabetes podcast by Daniel Newman. Daniel brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit the follow button. 

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In this episode, I speak to Liam who has been living with type 1 diabetes for 24 years. Liam is a good friend who I met through the diabetes online community. Our experiences of type 1 in some areas are similar particularly as we both come from single-parent families. Liam and I also discuss his diagnosis story and he was in a coma for 6 weeks, how his upbringing impacted his life with type 1, the struggles that he experienced and his experience of being a dad whilst living with type 1.

Liam's mum also lived with type 1 diabetes from a very young age and very sadly passed away from complications of type 1. Liam's mum helped to change the landscape of type 1 diabetes in the UK.  Liam talks openly about life with his mum. Liam also shares how his experience of multiple DKA's changed how he managed his type 1 diabetes.

Useful information
Liam on Instagram
Daniel on Instagram
Genetics of Diabetes | ADA

A bit about the show and host
The Talking Type 1 podcast is a diabetes podcast by Daniel Newman. Daniel brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit the follow button. 

Send us Fan Mail

In this episode, I speak to George West from Learn Diabetes who has been living with type 1 diabetes for 3.5 years. George was diagnosed with type 1 whilst he was in medical school. We discuss the challenges that his diagnosis bought in particular how George processed the mental aspect of it. In his first appointment with his endocrinologist, which was the day after he was diagnosed he asked to put on a flash glucose monitor! 

George talks about the first six months after his diagnosis and how he navigated various challenges including medical school, friends and exercise. Exercise was and still is a big part of George’s life and we talk about how a poignant moment with a psychologist help George to overcome the barrier of exercising with type 1 diabetes. George and his friend have set up an Instagram page called Learn Diabetes which we discuss towards the end of our chat. 

In this episode when talking about glucose levels we use mmols. If you use milligrams per deciliter then multiply the mmol number by 18 to convert. 

Useful links:
Dan | Type 1 Diabetes (@t1d_dan) • Instagram photos and videos
Learn Diabetes - Instagram

A bit about the show and host
The Talking Type 1 podcast is a diabetes podcast by Daniel Newman. Daniel brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit subscribe.

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In this episode, I speak to actor, writer, author Jade Byrne who has been living with type 1 diabetes for 31 years. Jade discusses her diagnosis story, finding the balance between managing and living with type 1 and her one-woman play Pricks. We also discuss Jade’s children’s book, Daisy Donald. Jade shares her life with type 1 in her own open and transparent way. A key takeaway from our interview is the pivotal role Jade’s late mum played in shaping how Jade viewed type 1 from a young age. 

Useful links:
Dan | Type 1 Diabetes (@t1d_dan) • Instagram photos and videos
Instagram - Jade
Twitter - Jade
Etsy store - Jade
Pricks the Play 

 In this episode when talking about glucose levels we use mmols. If you use mg per decliter then multiply the mmol number by 18 to convert. 

A bit about the show and host

The Talking Type 1 podcast is a diabetes podcast by Daniel Newman. Daniel brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit subscribe.

Send us Fan Mail

In this episode, I speak to award-winning lifestyle blogger and host of The Teenage Kicks Podcast Helen Wills aka Actuallymummy. Helen teenage daughter Maddie was diagnosed with type 1 at 9 years old. 

Helen shares her experience of Maddie’s diagnosis story, their first year of diagnosis as a family and the impact this had on the whole family. Helen also spoke of how diabetes has helped her to overcome perfection. A key takeaway from Helen’s journey was how she has and continues to navigate the change in the dynamic of her relationship with managing Maddie’s type 1 diabetes as now Maddie is a teenager and is has more independence and control over her type 1 management. 

In this episode when talking about glucose levels we use mmols and if you use mg/dL then multiply the number by 18 to convert.

***Trigger warning this episode discusses self-harm. We do not go into detail but it is spoken about as a topic of Helen’s podcast***

Useful Links
Teenage Kicks Podcast
Instagram
Twitter
Facebook
Actually Mummy - Blog
Daniel Instagram page

A bit about the show and host

The Talking Type 1 podcast is a diabetes podcast by Daniel Newman. Daniel brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit subscribe.

Send us Fan Mail

In this episode, I speak to Jen who has been living with type 1 for 25 years. Jen also lives with another auto-immune condition called Endometriosis. Endometriosis is a condition where tissue similar to the lining of the womb starts to grow in other places, such as the ovaries and fallopian tubes. Endometriosis can affect women of any age. (NHS UK website)

In her teenage years, Jen developed eating disorder behaviours and diabulimia and shares the challenges she has to overcome.

 This challenge has also led Jen on a path of self-acceptance and self-love. Jen also lives with complications of type 1 diabetes including diabetic retinopathy. Jen shares her diagnosis of retinopathy and also how this was impacted when she found out she was pregnant whilst and the changes she had to make to manage her type 1 diabetes. We also talk about Jen’s pregnancy and life as a single parent living with type 1 diabetes. In this episode when talking about glucose levels we use mg/dl. If you use mmols then divide the mg/dl number by 18 to convert.

***Trigger warning this episode discusses eating disorders and diabulimia. There is also a mention of substance, mental, emotional and physical abuse. ***

Useful links
Jen Instagram page
Daniel Instagram page

A bit about the show and host
The Talking Type 1 podcast is a diabetes podcast by Daniel Newman. Daniel brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit subscribe.