The Talking Type 1 Podcast

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In this episode, I speak to Melissa. Melissa has been living with type 1 diabetes for 14 years. Melissa also lives with another autoimmune condition called Lupus. Lupus is a long-term condition that causes joint pain, skin rashes and tiredness. There's no cure, but symptoms can improve if treatment starts early. Melissa shares how she manages living with two autoimmune conditions.

One of the biggest challenges that Melissa has overcome was obtaining an insulin pump. Mellisa shares how self-advocacy including knowing her rights as a patient meant that she was able to access the insulin pump she needed. 

We talk about Melissa’s telemedicine/virtual appointments experience, life at university, entering the workplace with type 1 and the important role her family play in helping her to manage her type 1. 

Useful links
Melissa on Instagram
Melissa on Twitter
Melissa Email Address
Can I get an insulin pump on the NHS? - JDRF, the type 1 diabetes charity
Young people | Living with arthritis, managing pain
World Foods Book - Nutrition Information
Tips for dealing with difficult pre-employment medical screening issues
Equality Act 2010: guidance - GOV.UK
What reasonable adjustments are: Reasonable adjustments

A bit about the show and host
The Talking Type 1 podcast is a diabetes podcast by Daniel Newman. Daniel brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

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In this episode, I speak to Scott. Scott has been living with type 1 diabetes for 21 years.
We talk about all aspects of Scott’s life with type 1 from his school years to his adult life. Scott’s journey is one filled with overcoming denial about type 1 diabetes which thankfully now has changed.

A retinopathy appointment was the catalyst for change for Scott and it led to him joining the Diabetes Online Community. The biggest change for Scott was joining The Diabetes Football Community which was founded by Chris Bright who I spoke to in episode 7 of the podcast so listen to that after this episode. The football team consists of players who all live with type 1 diabetes. This community allowed Scott to represent his country at an international tournament but most importantly allowed him to finally accept his type 1 diabetes.

You can find Scott on Twitter his handle is:

Other resources mentioned:
Sara - Type 1 Hurdles
1bloodydrop.com
The Diabetes Football Community
Chris Bright - Twitter

In this episode when talking about glucose levels we use mmols. If you use mg/dL to measure your glucose levels per then multiply the number by 18 to convert. 

If you would like to ask a question or be a guest on the show then you can email me at [email protected]. I read all my messages and might include your question in a future episode. You can find Daniel on Instagram and Twitter. 

A bit about the show and host

The Talking Type 1 podcast is a diabetes podcast by Daniel Newman. Daniel brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

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In this episode, I speak to Jo who’s been living with type 1 diabetes for 5 years. Jo lives in India and we talk about her diagnosis story and the challenges she faced after her dad was diagnosed with cancer six months after she was diagnosed with type 1. 

In India, there is a stigma and societal myths around living with diabetes and Jo shares how she is breaking the stigma and myths at work, with her family and friends and inspiring others living with type 1 diabetes. 

Jo is also an international diabetes advocate and talks about the importance of community as a place of support and education. 

You can find Jo on Instagram her handle here.

Links to other mentions in the episode:
League of Diathletes - Instagram
League of Diathletes - Website
Diabetes in Style - Instagram
Young Leaders in Diabetes
Beat It Productions - Youtube

In this episode when talking about glucose levels we use miligrams per decilitre. If you use mmols to measure your glucose levels per then divide the number by 18 to convert. 

If you would like to ask a question or be a guest on the show then you can email me at [email protected]. I read all my messages and might include your question in a future episode. You can find Daniel on Instagram and Twitter. 

A bit about the show and host

The Talking Type 1 podcast by Daniel Newman brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit subscribe.

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In this episode, I speak to Kate whose been living with type 1 diabetes since the age of 4. 

Kate and I discuss her life with diabetes, how she navigated school years, life as an elite athlete and the breakdown of her relationship with type 1 in high school. We also talk about the impact living with multiple health conditions had on her career as a lawyer and how this led to her retiring. Kate’s journey is remarkable because despite all the challenges she never lost the will to help others and this has led to her writing her book Relentless which we discuss towards the end of the show. 

We do talk about Kate’s journey with eating disorders and disordered eating so please take this is a trigger warning. 

 In this episode when talking about glucose levels we use mg/dl. If you use mmols per decliter then multiply the mmol number by 18 to convert. 

You can find Katherine on Instagram here, Twitter here, Facebook here, website here and Tumblr
Order your copy of Relentless here and listen to The Phunky Diabetic Podcast here

If you would like to ask a question or be a guest on the show then you can email me at [email protected]. I read all my messages and might include your question in a future episode. You can find Daniel on Instagram and Twitter. 

A bit about the show and host
The Talking Type 1 podcast by Daniel Newman brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit subscribe

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In this episode, I speak to Mike Roberson aka GlucoseGang Mike whose been living with type 1 diabetes for over 21 years. 

Mike and I talk about a lot in this episode including his dedication to in his own words ‘the journey of hiding his type 1 diabetes’ to finally accepting and embracing the condition. We talk about Mike's experiences of the healthcare system in the USA including access to insulin and the serious topic of rationing insulin. We also talk about how type 1 diabetes helped Mike find his purpose including creating Glucose Gang, the impact type 1 diabetes has had on his identity including his view on masculinity, and the importance of men talking about their mental health with a professional where we both share our personal experiences.

You can find Mike on Instagram here.

If you would like to ask a question or be a guest on the show then you can email me at [email protected]. I read all my messages and might include your question in a future episode. You can find Daniel on Instagram and Twitter. 

A bit about the show and host

The Talking Type 1 podcast by Daniel Newman brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit subscribe

Send us Fan Mail

In this episode, I speak to Andrew whose been living with type 1 diabetes for 35 years. 

Andrew and I discuss his life with type 1 diabetes and other topics including how type 1 has impacted his work and family life, men’s mental health, diabetes technology and his life-changing moment in 2016. This moment led Andrew on a journey of researching and learning more about type 1 diabetes in particular diabetes technology and diet. Andrew self advocated in order to receive funding for an insulin pump and he moved to a Keto diet and has recently moved to a low-fat high carb diet with the help of the book Mastering Diabetes. 

I’m aware in the community that discussion about how someone chooses to manage their diabetes with what they eat can at times be divisive however I believe that it’s down to the individual to choose what works for them and I’m all for conversations of people sharing their own personal experiences. I don’t believe that one person should tell another person the diet they are choosing to follow is wrong because it’s an individual decision.

You can find Andrew on Instagram here and Youtube here

Books Andrew recommends:
Think Like a Pancreas (Third Edition): A Practical Guide to Managing Diabetes with Insulin

Mastering Diabetes: The Revolutionary Method to Reverse Insulin Resistance Permanently in Type 1, Type 1.5, Type 2, Prediabetes, and Gestational Diabetes

Dr Bernstein's Diabetes Solution: A Complete Guide To Achieving Normal Blood Sugars

These links are affiliate links and I receive a commission if you purchase an item using these links. The advice and information shared on the podcast is not medical advice or information so please speak to your Healthcare team before making any changes to your diabetes management. 

If you would like to ask a question or be a guest on the show then you can email me at [email protected]. I read all my messages and might include your question in a future episode. You can find Daniel on Instagram and Twitter. 

A bit about the show and host

The Talking Type 1 podcast by Daniel Newman brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit subscribe.

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In this episode, I speak to Riva Greenberg whose been living with type 1 diabetes for over 48 years. Riva is an inspirational speaker, author, and global diabetes advocate. 

Riva and I discuss her diagnosis story, why it took 32 years for her to see a diabetes educator, the biggest challenges Riva has faced whilst living with type 1 diabetes, and the current paradigms of healthcare. 

Riva is the founder of the Flourishing Treatment Approach. FTA is focused on the whole person rather than just one ailment. Healthcare professionals are seen as partners and coaches to patients. Riva has shared this approach with HCP’s across the world. 

We also talk about:

- Riva's biggest challenge faced living with type 1 diabetes
- the current paradigm of healthcare 
- coping approach vs flourishing approach - what's the difference
- the flourishing approach in action 
- how to have a conversation with your HCP about the flourishing treatment approach

You can learn more about the Flourishing Treatment Approach by clicking here.

You can find Riva here: 
Twitter
LinkedIn
Diabetesstories.com

Riva's books are:
Diabetes Do's and How to's 
50 Diabetes Myths That Can Ruin Your Life: And the 50 Diabetes Truths That Can Save It   
The ABCs Of Loving Yourself With Diabetes

These links are affiliate links and I receive a commission if you purchase an item using these links. 

If you would like to ask a question or be a guest on the show then you can email me at [email protected]. I read all my messages and might include your question in a future episode. You can find Daniel on Instagram and Twitter. 

A bit about the show and host

The Talking Type 1 podcast by Daniel Newman brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit subscribe

Send us Fan Mail

In this episode, I speak to Antony and Joyce whose daughter Maya was diagnosed with type 1 diabetes at 14 months old. Antony and Joyce talk about Maya's diagnosis story and  family life after her diagnosis, the impact diabetes technology has had on Maya and overcoming fears and how it’s turned their lives around and we also discuss:

-  building relationships with schools. 
- Maya's Celiac disease diagnosis
- how they are teaching Maya to develop resilience towards her type 1
- talking about health in the black community

There's also a special mention of Google and the role to played in Maya's diagnosis. I enjoyed this conversation with Antony and Joyce and I appreciate their honesty and openness throughout our chat. 

You can find Maya and Joyce on Instagram here. 
The link to the Facebook group is UK Diabetic Dads

Would you like to be a guest on the show?
If you would like to ask a question or be a guest on the show then you can email me at [email protected]. I read all my messages and might include your question in a future episode. You can find Daniel on Instagram and Twitter. 

A bit about the show and host
The Talking Type 1 podcast by Daniel Newman brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit subscribe

Send us Fan Mail

In this episode, I speak to Heather whos son Joe was diagnosed with type 1 diabetes in 2019 about how her and her family navigated their first year of a type 1 diagnosis. 

The backdrop to our chat is a letter Heather wrote to Joe about their and his first year living with type 1 diabetes. The letter provides an open and emotional insight into what the first year has been like for the family. It documents the good and bad times and everything inbetween. Reading the letter for this first time touched my heart. You can read the letter here. 

Heather and I also talk about: 
- Heather’s motivation for writing the letter to Joe
- Joe’s diagnosis story including a number of missed diagnosis’ 
- learning to accept that both the good and bad times can co-exist when diagnosed with type 1 
- how the type 1 diagnosis has impacted on Joe’s younger brother 
- dealing with separate grief and working together as parents and the importance of talking to each other

I enjoyed this conversation with Heather and appreciate her honesty and openness throughout our chat. 

You can find Heather on: 

Instagram
Letter to Joe

Want to be a guest on the show?

If you would like to ask a question or be a guest on the show then you can email me at [email protected]. I read all my messages and might include your question in a future episode. You can find Daniel on Instagram and Twitter. 

A bit about the show and host

The Talking Type 1 podcast by Daniel Newman brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit subscribe

Send us Fan Mail

In this episode, I speak to Valerie about her life living with type 1 diabetes for 27 years. 

Valerie is a coach and consultant for equity and belonging, speaker, author and facilitator. 

In our chat, we have a real deep dive into Valerie's life and the challenges that she has had to overcome especially being diagnosed with type 1 diabetes whilst looking after two children. We also talk about: 

- how Valerie overcome an eating disorder prior to her diagnosis and how she had to navigate not relapsing after her type 1 diabetes diagnosis
- Valerie's Peanut Butter and Jelly sandwich moment
- the importance of accountability when managing her type 1 diabetes
- the impact of health economics
- why self-talk is important when managing type 1 diabetes

Trigger Warning - the episode contains a discussion around eating disorders.

You can find Valerie on:
LinkedIn
Website
Facebook

Useful links
Diabetics with Eating Disorders: DWED
Beat | The UK's Eating Disorder Charity
Diagnosis + Diabulimia: QiQi's Journey
Research Paper from McDonald. p, et al:

If you would like to ask a question or be a guest on the show then you can email me at [email protected]. I read all my messages and might include your question in a future episode. You can find Daniel on Instagram: Dan | Type 1 Diabetes Blogger (@t1d_dan) and Twitter: Dan (@t1d_dan)

A bit about the show and host
The Talking Type 1 podcast by Daniel Newman brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. 

The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 24 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. 

Remember to hit subscribe